Risk vs. quality of life

JazzysMom · Nov 22, 2007

I am saddened by this. It would makes sense that the younger recipients were do better after tx. Their bodies haven gotten beaten up as long.

I will have to go back & reread it another time because its just tore at my hope regarding a tx which was just starting to get built up thanks to Linsdey & Q.

I realize its not a cure nor a guarantee, but when you are at end stage & there really is not quality of life.....the odds sure look good no matter what they are.

Thank you for sharing it tho!

JazzysMom · Nov 22, 2007

I am saddened by this. It would makes sense that the younger recipients were do better after tx. Their bodies haven gotten beaten up as long.

I will have to go back & reread it another time because its just tore at my hope regarding a tx which was just starting to get built up thanks to Linsdey & Q.

I realize its not a cure nor a guarantee, but when you are at end stage & there really is not quality of life.....the odds sure look good no matter what they are.

Thank you for sharing it tho!

JazzysMom · Nov 22, 2007

I am saddened by this. It would makes sense that the younger recipients were do better after tx. Their bodies haven gotten beaten up as long.

I will have to go back & reread it another time because its just tore at my hope regarding a tx which was just starting to get built up thanks to Linsdey & Q.

I realize its not a cure nor a guarantee, but when you are at end stage & there really is not quality of life.....the odds sure look good no matter what they are.

Thank you for sharing it tho!

JazzysMom · Nov 22, 2007

I am saddened by this. It would makes sense that the younger recipients were do better after tx. Their bodies haven gotten beaten up as long.

I will have to go back & reread it another time because its just tore at my hope regarding a tx which was just starting to get built up thanks to Linsdey & Q.

I realize its not a cure nor a guarantee, but when you are at end stage & there really is not quality of life.....the odds sure look good no matter what they are.

Thank you for sharing it tho!

JazzysMom · Nov 22, 2007

I am saddened by this. It would makes sense that the younger recipients were do better after tx. Their bodies haven gotten beaten up as long.

I will have to go back & reread it another time because its just tore at my hope regarding a tx which was just starting to get built up thanks to Linsdey & Q.

I realize its not a cure nor a guarantee, but when you are at end stage & there really is not quality of life.....the odds sure look good no matter what they are.

Thank you for sharing it tho!

grassisgreener · Nov 22, 2007

That is sure interesting and just reminds me even more of why it is SO important to keep our kids wcf healthy. I wish it would specify why the kids don't do as well with transplants as the adults do bc I am really curious.

"But the research will likely lead doctors to push back transplants until patients are adults, when it is less risky. "

Also, I was glad to read that although the outcomes don't seem to be as good for kids, some doctors will still transplant with this in mind:

"Faced with living two more years with new lungs or 2.5 years barely breathing, a C.F. patient is "going to choose to have at least a breathe of life for a short time,"

I suppose I am glad we don't live in a state who feels that kids wcf aren't worth transplanting...I wonder if any/how many kids from Utah have died since 1995 who could have lived longer or better with a new set of lungs? Hopefully none.

grassisgreener · Nov 22, 2007

That is sure interesting and just reminds me even more of why it is SO important to keep our kids wcf healthy. I wish it would specify why the kids don't do as well with transplants as the adults do bc I am really curious.

"But the research will likely lead doctors to push back transplants until patients are adults, when it is less risky. "

Also, I was glad to read that although the outcomes don't seem to be as good for kids, some doctors will still transplant with this in mind:

"Faced with living two more years with new lungs or 2.5 years barely breathing, a C.F. patient is "going to choose to have at least a breathe of life for a short time,"

I suppose I am glad we don't live in a state who feels that kids wcf aren't worth transplanting...I wonder if any/how many kids from Utah have died since 1995 who could have lived longer or better with a new set of lungs? Hopefully none.

grassisgreener · Nov 22, 2007

That is sure interesting and just reminds me even more of why it is SO important to keep our kids wcf healthy. I wish it would specify why the kids don't do as well with transplants as the adults do bc I am really curious.

"But the research will likely lead doctors to push back transplants until patients are adults, when it is less risky. "

Also, I was glad to read that although the outcomes don't seem to be as good for kids, some doctors will still transplant with this in mind:

"Faced with living two more years with new lungs or 2.5 years barely breathing, a C.F. patient is "going to choose to have at least a breathe of life for a short time,"

I suppose I am glad we don't live in a state who feels that kids wcf aren't worth transplanting...I wonder if any/how many kids from Utah have died since 1995 who could have lived longer or better with a new set of lungs? Hopefully none.

grassisgreener · Nov 22, 2007

That is sure interesting and just reminds me even more of why it is SO important to keep our kids wcf healthy. I wish it would specify why the kids don't do as well with transplants as the adults do bc I am really curious.

"But the research will likely lead doctors to push back transplants until patients are adults, when it is less risky. "

Also, I was glad to read that although the outcomes don't seem to be as good for kids, some doctors will still transplant with this in mind:

"Faced with living two more years with new lungs or 2.5 years barely breathing, a C.F. patient is "going to choose to have at least a breathe of life for a short time,"

I suppose I am glad we don't live in a state who feels that kids wcf aren't worth transplanting...I wonder if any/how many kids from Utah have died since 1995 who could have lived longer or better with a new set of lungs? Hopefully none.

grassisgreener · Nov 22, 2007

That is sure interesting and just reminds me even more of why it is SO important to keep our kids wcf healthy. I wish it would specify why the kids don't do as well with transplants as the adults do bc I am really curious.

"But the research will likely lead doctors to push back transplants until patients are adults, when it is less risky. "

Also, I was glad to read that although the outcomes don't seem to be as good for kids, some doctors will still transplant with this in mind:

"Faced with living two more years with new lungs or 2.5 years barely breathing, a C.F. patient is "going to choose to have at least a breathe of life for a short time,"

I suppose I am glad we don't live in a state who feels that kids wcf aren't worth transplanting...I wonder if any/how many kids from Utah have died since 1995 who could have lived longer or better with a new set of lungs? Hopefully none.

LisaV · Nov 23, 2007

did the link disappear?
or is this just more proof that I lost my mind years ago.

LisaV · Nov 23, 2007

did the link disappear?
or is this just more proof that I lost my mind years ago.

LisaV · Nov 23, 2007

did the link disappear?
or is this just more proof that I lost my mind years ago.

LisaV · Nov 23, 2007

did the link disappear?
or is this just more proof that I lost my mind years ago.

LisaV · Nov 23, 2007

did the link disappear?
or is this just more proof that I lost my mind years ago.

grsswspr · Nov 23, 2007