Risky or not?

mamaScarlett

Active member
Piper I completely agree with you. (pretty much what I said in my post on this subject in preg section)
Shine, just to give you a little more feedback-when I approached my doc about preg, we worked out a 1-2 yr plan for it, where basically once I got my pfts to where we wanted them, I held them for a year without any major exacerbations. Once I was able to do that-build my body up for an extended period of time-then we went ahead with pregnancy.

Believe me, you'd feel alot more confident about going into this with a stronger body. You're so worried now (i know, I've been there)-do something for YOU, and get your body in shape first. Then it won't be about 'surviving' a pregnancy...It will be about thriving through one, enjoying your pregnancy and birth experience. You deserve to enjoy it, not worry for a year and be sick.

And btw-you're 28...you've got a little time. I'm 28 too, so I know how you feel. If I want another baby it has to be soon. But cfers are having kids well into their 30s.
 

mamaScarlett

Active member
Piper I completely agree with you. (pretty much what I said in my post on this subject in preg section)
Shine, just to give you a little more feedback-when I approached my doc about preg, we worked out a 1-2 yr plan for it, where basically once I got my pfts to where we wanted them, I held them for a year without any major exacerbations. Once I was able to do that-build my body up for an extended period of time-then we went ahead with pregnancy.

Believe me, you'd feel alot more confident about going into this with a stronger body. You're so worried now (i know, I've been there)-do something for YOU, and get your body in shape first. Then it won't be about 'surviving' a pregnancy...It will be about thriving through one, enjoying your pregnancy and birth experience. You deserve to enjoy it, not worry for a year and be sick.

And btw-you're 28...you've got a little time. I'm 28 too, so I know how you feel. If I want another baby it has to be soon. But cfers are having kids well into their 30s.
 

mamaScarlett

Active member
Piper I completely agree with you. (pretty much what I said in my post on this subject in preg section)
Shine, just to give you a little more feedback-when I approached my doc about preg, we worked out a 1-2 yr plan for it, where basically once I got my pfts to where we wanted them, I held them for a year without any major exacerbations. Once I was able to do that-build my body up for an extended period of time-then we went ahead with pregnancy.

Believe me, you'd feel alot more confident about going into this with a stronger body. You're so worried now (i know, I've been there)-do something for YOU, and get your body in shape first. Then it won't be about 'surviving' a pregnancy...It will be about thriving through one, enjoying your pregnancy and birth experience. You deserve to enjoy it, not worry for a year and be sick.

And btw-you're 28...you've got a little time. I'm 28 too, so I know how you feel. If I want another baby it has to be soon. But cfers are having kids well into their 30s.
 

mamaScarlett

Active member
Piper I completely agree with you. (pretty much what I said in my post on this subject in preg section)
Shine, just to give you a little more feedback-when I approached my doc about preg, we worked out a 1-2 yr plan for it, where basically once I got my pfts to where we wanted them, I held them for a year without any major exacerbations. Once I was able to do that-build my body up for an extended period of time-then we went ahead with pregnancy.

Believe me, you'd feel alot more confident about going into this with a stronger body. You're so worried now (i know, I've been there)-do something for YOU, and get your body in shape first. Then it won't be about 'surviving' a pregnancy...It will be about thriving through one, enjoying your pregnancy and birth experience. You deserve to enjoy it, not worry for a year and be sick.

And btw-you're 28...you've got a little time. I'm 28 too, so I know how you feel. If I want another baby it has to be soon. But cfers are having kids well into their 30s.
 

mamaScarlett

Active member
Piper I completely agree with you. (pretty much what I said in my post on this subject in preg section)
<br />Shine, just to give you a little more feedback-when I approached my doc about preg, we worked out a 1-2 yr plan for it, where basically once I got my pfts to where we wanted them, I held them for a year without any major exacerbations. Once I was able to do that-build my body up for an extended period of time-then we went ahead with pregnancy.
<br />
<br />Believe me, you'd feel alot more confident about going into this with a stronger body. You're so worried now (i know, I've been there)-do something for YOU, and get your body in shape first. Then it won't be about 'surviving' a pregnancy...It will be about thriving through one, enjoying your pregnancy and birth experience. You deserve to enjoy it, not worry for a year and be sick.
<br />
<br />And btw-you're 28...you've got a little time. I'm 28 too, so I know how you feel. If I want another baby it has to be soon. But cfers are having kids well into their 30s.
 
B

benthyrdeeders

Guest
Hi. I'm a 45 year old with two healthy boys(16,20) When I got pregnant it really wasn't a common thing...I was told at the time from my doc (who is no longer practicing) that if I was healthy enough to get pregnant, then so be it. He didn't seem phased in the least and we treated my CF basically the same except we didn't use Tobi. My issue was my sugar levels. I became gestational diabetic and I had preterm labor. Both my boys came early even though I had treatment for the preterm labor (um...if anyone has had magnisum treatments they can testify they are not fun) But...all that being said, I was not aware that my FEV1 was a factor until after the pregnancies so I didn't know enough to worry. My guess is that I was in the mid 60's at the time.
I really think you need to ask yourself if you feel healthy enough to take this on. Your mental state has a great influence also.
Best wishes!!
 
B

benthyrdeeders

Guest
Hi. I'm a 45 year old with two healthy boys(16,20) When I got pregnant it really wasn't a common thing...I was told at the time from my doc (who is no longer practicing) that if I was healthy enough to get pregnant, then so be it. He didn't seem phased in the least and we treated my CF basically the same except we didn't use Tobi. My issue was my sugar levels. I became gestational diabetic and I had preterm labor. Both my boys came early even though I had treatment for the preterm labor (um...if anyone has had magnisum treatments they can testify they are not fun) But...all that being said, I was not aware that my FEV1 was a factor until after the pregnancies so I didn't know enough to worry. My guess is that I was in the mid 60's at the time.
I really think you need to ask yourself if you feel healthy enough to take this on. Your mental state has a great influence also.
Best wishes!!
 
B

benthyrdeeders

Guest
Hi. I'm a 45 year old with two healthy boys(16,20) When I got pregnant it really wasn't a common thing...I was told at the time from my doc (who is no longer practicing) that if I was healthy enough to get pregnant, then so be it. He didn't seem phased in the least and we treated my CF basically the same except we didn't use Tobi. My issue was my sugar levels. I became gestational diabetic and I had preterm labor. Both my boys came early even though I had treatment for the preterm labor (um...if anyone has had magnisum treatments they can testify they are not fun) But...all that being said, I was not aware that my FEV1 was a factor until after the pregnancies so I didn't know enough to worry. My guess is that I was in the mid 60's at the time.
I really think you need to ask yourself if you feel healthy enough to take this on. Your mental state has a great influence also.
Best wishes!!
 
B

benthyrdeeders

Guest
Hi. I'm a 45 year old with two healthy boys(16,20) When I got pregnant it really wasn't a common thing...I was told at the time from my doc (who is no longer practicing) that if I was healthy enough to get pregnant, then so be it. He didn't seem phased in the least and we treated my CF basically the same except we didn't use Tobi. My issue was my sugar levels. I became gestational diabetic and I had preterm labor. Both my boys came early even though I had treatment for the preterm labor (um...if anyone has had magnisum treatments they can testify they are not fun) But...all that being said, I was not aware that my FEV1 was a factor until after the pregnancies so I didn't know enough to worry. My guess is that I was in the mid 60's at the time.
I really think you need to ask yourself if you feel healthy enough to take this on. Your mental state has a great influence also.
Best wishes!!
 
B

benthyrdeeders

Guest
Hi. I'm a 45 year old with two healthy boys(16,20) When I got pregnant it really wasn't a common thing...I was told at the time from my doc (who is no longer practicing) that if I was healthy enough to get pregnant, then so be it. He didn't seem phased in the least and we treated my CF basically the same except we didn't use Tobi. My issue was my sugar levels. I became gestational diabetic and I had preterm labor. Both my boys came early even though I had treatment for the preterm labor (um...if anyone has had magnisum treatments they can testify they are not fun) But...all that being said, I was not aware that my FEV1 was a factor until after the pregnancies so I didn't know enough to worry. My guess is that I was in the mid 60's at the time.
<br />I really think you need to ask yourself if you feel healthy enough to take this on. Your mental state has a great influence also.
<br />Best wishes!!
 

my65roses4me

New member
I will just say what my doctor has told me.
FEV1% is important to see where you are at on average with the proggression of the disease.
But the most important as far as putting extra strain (pregnancy) on your body is how steady you are at your FEV1. If you are and have been holding steady at lets say 50% then that shows that the rate of your progression is slow or not increasing. Also how many exascerbations (sp lol) you have a year will also help. If you have so many that within the 9 months of being pregnant you need alot of iv's then that deff something to take into consideration.
Also take into consideration that for most cfers the pregnancy and labor is not the hard part. Its the sleepless nights and days taking care of a newborn. You will most likely need help from other people during this time so you can get the much needed rest. So gathering helpers before hand would be essential. Even if its your husband, mom or dad, or a paid nanny.
From one woman to another, i would give yourself some more time to greive the loss of your dad. Losing a parent can be so hard and im sorry you are having to go thru this. By giving yourself more time you will be in a stronger mental and maybe even physical situation than you are in now. Give yourself some more "me" time before you have a child. Because afterwards it will be all about her/him. Do some more soul searching and when the time is right you will know with hardly any doubt. I say hardly because i think that all parents to be ,healthy or not, have some doubt whether its the right time or not.
Do all you can physically now and when the time comes at least you will know that you gave it your all to get prepared.
Also has your hubby been tested to see if he is a carrier? That something to consider to if you want to try and avoid an unwanted cf baby. It took our test about three weeks to come back. If you have then great just thought i would mention it.
28yrs old is still young enough. You have time. I completly understand the "too late" aspect of cf. But when i was 21 i thought the same thing. "if i dont do it now, i never will be able to". Alot of massive hemoptysis, my gallbladder removed, and a lobectomy later here i am 35 yrs old and am actually healthier now than i was then. So you never know how long you have. The most important is making sure physically and mentally you are as ready as you can be.
Sorru for my ramble. Your post got my attention so i thougt i would try to help reason this out with you. Good luck in this tough decision!
 

my65roses4me

New member
I will just say what my doctor has told me.
FEV1% is important to see where you are at on average with the proggression of the disease.
But the most important as far as putting extra strain (pregnancy) on your body is how steady you are at your FEV1. If you are and have been holding steady at lets say 50% then that shows that the rate of your progression is slow or not increasing. Also how many exascerbations (sp lol) you have a year will also help. If you have so many that within the 9 months of being pregnant you need alot of iv's then that deff something to take into consideration.
Also take into consideration that for most cfers the pregnancy and labor is not the hard part. Its the sleepless nights and days taking care of a newborn. You will most likely need help from other people during this time so you can get the much needed rest. So gathering helpers before hand would be essential. Even if its your husband, mom or dad, or a paid nanny.
From one woman to another, i would give yourself some more time to greive the loss of your dad. Losing a parent can be so hard and im sorry you are having to go thru this. By giving yourself more time you will be in a stronger mental and maybe even physical situation than you are in now. Give yourself some more "me" time before you have a child. Because afterwards it will be all about her/him. Do some more soul searching and when the time is right you will know with hardly any doubt. I say hardly because i think that all parents to be ,healthy or not, have some doubt whether its the right time or not.
Do all you can physically now and when the time comes at least you will know that you gave it your all to get prepared.
Also has your hubby been tested to see if he is a carrier? That something to consider to if you want to try and avoid an unwanted cf baby. It took our test about three weeks to come back. If you have then great just thought i would mention it.
28yrs old is still young enough. You have time. I completly understand the "too late" aspect of cf. But when i was 21 i thought the same thing. "if i dont do it now, i never will be able to". Alot of massive hemoptysis, my gallbladder removed, and a lobectomy later here i am 35 yrs old and am actually healthier now than i was then. So you never know how long you have. The most important is making sure physically and mentally you are as ready as you can be.
Sorru for my ramble. Your post got my attention so i thougt i would try to help reason this out with you. Good luck in this tough decision!
 

my65roses4me

New member
I will just say what my doctor has told me.
FEV1% is important to see where you are at on average with the proggression of the disease.
But the most important as far as putting extra strain (pregnancy) on your body is how steady you are at your FEV1. If you are and have been holding steady at lets say 50% then that shows that the rate of your progression is slow or not increasing. Also how many exascerbations (sp lol) you have a year will also help. If you have so many that within the 9 months of being pregnant you need alot of iv's then that deff something to take into consideration.
Also take into consideration that for most cfers the pregnancy and labor is not the hard part. Its the sleepless nights and days taking care of a newborn. You will most likely need help from other people during this time so you can get the much needed rest. So gathering helpers before hand would be essential. Even if its your husband, mom or dad, or a paid nanny.
From one woman to another, i would give yourself some more time to greive the loss of your dad. Losing a parent can be so hard and im sorry you are having to go thru this. By giving yourself more time you will be in a stronger mental and maybe even physical situation than you are in now. Give yourself some more "me" time before you have a child. Because afterwards it will be all about her/him. Do some more soul searching and when the time is right you will know with hardly any doubt. I say hardly because i think that all parents to be ,healthy or not, have some doubt whether its the right time or not.
Do all you can physically now and when the time comes at least you will know that you gave it your all to get prepared.
Also has your hubby been tested to see if he is a carrier? That something to consider to if you want to try and avoid an unwanted cf baby. It took our test about three weeks to come back. If you have then great just thought i would mention it.
28yrs old is still young enough. You have time. I completly understand the "too late" aspect of cf. But when i was 21 i thought the same thing. "if i dont do it now, i never will be able to". Alot of massive hemoptysis, my gallbladder removed, and a lobectomy later here i am 35 yrs old and am actually healthier now than i was then. So you never know how long you have. The most important is making sure physically and mentally you are as ready as you can be.
Sorru for my ramble. Your post got my attention so i thougt i would try to help reason this out with you. Good luck in this tough decision!
 

my65roses4me

New member
I will just say what my doctor has told me.
FEV1% is important to see where you are at on average with the proggression of the disease.
But the most important as far as putting extra strain (pregnancy) on your body is how steady you are at your FEV1. If you are and have been holding steady at lets say 50% then that shows that the rate of your progression is slow or not increasing. Also how many exascerbations (sp lol) you have a year will also help. If you have so many that within the 9 months of being pregnant you need alot of iv's then that deff something to take into consideration.
Also take into consideration that for most cfers the pregnancy and labor is not the hard part. Its the sleepless nights and days taking care of a newborn. You will most likely need help from other people during this time so you can get the much needed rest. So gathering helpers before hand would be essential. Even if its your husband, mom or dad, or a paid nanny.
From one woman to another, i would give yourself some more time to greive the loss of your dad. Losing a parent can be so hard and im sorry you are having to go thru this. By giving yourself more time you will be in a stronger mental and maybe even physical situation than you are in now. Give yourself some more "me" time before you have a child. Because afterwards it will be all about her/him. Do some more soul searching and when the time is right you will know with hardly any doubt. I say hardly because i think that all parents to be ,healthy or not, have some doubt whether its the right time or not.
Do all you can physically now and when the time comes at least you will know that you gave it your all to get prepared.
Also has your hubby been tested to see if he is a carrier? That something to consider to if you want to try and avoid an unwanted cf baby. It took our test about three weeks to come back. If you have then great just thought i would mention it.
28yrs old is still young enough. You have time. I completly understand the "too late" aspect of cf. But when i was 21 i thought the same thing. "if i dont do it now, i never will be able to". Alot of massive hemoptysis, my gallbladder removed, and a lobectomy later here i am 35 yrs old and am actually healthier now than i was then. So you never know how long you have. The most important is making sure physically and mentally you are as ready as you can be.
Sorru for my ramble. Your post got my attention so i thougt i would try to help reason this out with you. Good luck in this tough decision!
 

my65roses4me

New member
I will just say what my doctor has told me.
<br />FEV1% is important to see where you are at on average with the proggression of the disease.
<br />But the most important as far as putting extra strain (pregnancy) on your body is how steady you are at your FEV1. If you are and have been holding steady at lets say 50% then that shows that the rate of your progression is slow or not increasing. Also how many exascerbations (sp lol) you have a year will also help. If you have so many that within the 9 months of being pregnant you need alot of iv's then that deff something to take into consideration.
<br />Also take into consideration that for most cfers the pregnancy and labor is not the hard part. Its the sleepless nights and days taking care of a newborn. You will most likely need help from other people during this time so you can get the much needed rest. So gathering helpers before hand would be essential. Even if its your husband, mom or dad, or a paid nanny.
<br />From one woman to another, i would give yourself some more time to greive the loss of your dad. Losing a parent can be so hard and im sorry you are having to go thru this. By giving yourself more time you will be in a stronger mental and maybe even physical situation than you are in now. Give yourself some more "me" time before you have a child. Because afterwards it will be all about her/him. Do some more soul searching and when the time is right you will know with hardly any doubt. I say hardly because i think that all parents to be ,healthy or not, have some doubt whether its the right time or not.
<br />Do all you can physically now and when the time comes at least you will know that you gave it your all to get prepared.
<br />Also has your hubby been tested to see if he is a carrier? That something to consider to if you want to try and avoid an unwanted cf baby. It took our test about three weeks to come back. If you have then great just thought i would mention it.
<br />28yrs old is still young enough. You have time. I completly understand the "too late" aspect of cf. But when i was 21 i thought the same thing. "if i dont do it now, i never will be able to". Alot of massive hemoptysis, my gallbladder removed, and a lobectomy later here i am 35 yrs old and am actually healthier now than i was then. So you never know how long you have. The most important is making sure physically and mentally you are as ready as you can be.
<br />Sorru for my ramble. Your post got my attention so i thougt i would try to help reason this out with you. Good luck in this tough decision!
 
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