RSV Shot

[lemonstolemonade]

I know preemies qualify for the RSV shot (Synagis) but I was
wondering if CF babies (not premature) can qualify for it. I'm
thinking of returning to work part-time and would feel better about
our infant being in a daycare or home care situation if she had
that additional protection. Any thoughts?<br>
<br>

 

[lemonstolemonade]

I know preemies qualify for the RSV shot (Synagis) but I was
wondering if CF babies (not premature) can qualify for it. I'm
thinking of returning to work part-time and would feel better about
our infant being in a daycare or home care situation if she had
that additional protection. Any thoughts?<br>
<br>

 

[lemonstolemonade]

I know preemies qualify for the RSV shot (Synagis) but I was
wondering if CF babies (not premature) can qualify for it. I'm
thinking of returning to work part-time and would feel better about
our infant being in a daycare or home care situation if she had
that additional protection. Any thoughts?<br>
<br>

 

[Nicole]

Our son received the synagis shot his first winter. We are military though so they have some different rules.

 

[Nicole]

Our son received the synagis shot his first winter. We are military though so they have some different rules.

 

[Nicole]

Our son received the synagis shot his first winter. We are military though so they have some different rules.

 

[purplemartin]

My son will be receiving the shot as well starting next
 month.  Our ins. BCBS will pay.  Doc just noted it
as medically necessary.<br>
<br>
Edited to mention-BCBS is also paying for home health to come out
to our home and give him the shot so I don't have to take him into
a "germy" office.<br>

 

[purplemartin]

My son will be receiving the shot as well starting next
 month.  Our ins. BCBS will pay.  Doc just noted it
as medically necessary.<br>
<br>
Edited to mention-BCBS is also paying for home health to come out
to our home and give him the shot so I don't have to take him into
a "germy" office.<br>

 

[purplemartin]

My son will be receiving the shot as well starting next
 month.  Our ins. BCBS will pay.  Doc just noted it
as medically necessary.<br>
<br>
Edited to mention-BCBS is also paying for home health to come out
to our home and give him the shot so I don't have to take him into
a "germy" office.<br>

 

[lemonstolemonade]

We are blessed with pretty good insurance and if a doctor says it
is needed, it gets covered....I have heard the shots cost about
$1200 per month. I about fell over. I've emailed our clinic to see
what we might need to do and am in the process of talking to our
insurance to see what they'll do.<br>
<br>
Our infant is asymptomatic, so we're concerned that she won't
qualify.<br>
<br>
I'll keep everyone posted when I find out more. If our journey
through this process can help others, I'm glad to share!

 

[lemonstolemonade]

We are blessed with pretty good insurance and if a doctor says it
is needed, it gets covered....I have heard the shots cost about
$1200 per month. I about fell over. I've emailed our clinic to see
what we might need to do and am in the process of talking to our
insurance to see what they'll do.<br>
<br>
Our infant is asymptomatic, so we're concerned that she won't
qualify.<br>
<br>
I'll keep everyone posted when I find out more. If our journey
through this process can help others, I'm glad to share!

 

[lemonstolemonade]

We are blessed with pretty good insurance and if a doctor says it
is needed, it gets covered....I have heard the shots cost about
$1200 per month. I about fell over. I've emailed our clinic to see
what we might need to do and am in the process of talking to our
insurance to see what they'll do.<br>
<br>
Our infant is asymptomatic, so we're concerned that she won't
qualify.<br>
<br>
I'll keep everyone posted when I find out more. If our journey
through this process can help others, I'm glad to share!

 

[amber682]

My son with cf had it last year and the cf doc just told us today he'll have it this year too. I think children with cf under 2 usually get it. He doesn't turn 2 until the end of Jan. so he gets it another year.

I feel its extremely important. Before he was diagnosed with CF he was hospitalized for RSV for 5 weeks. (This is how he was eventually dx'd with cf.) It can be very very serious, he was put on a ventilator 2x in the PICU. His cousin and a family friend's baby, both around the same age as him, had it at the same time and they required a week hospitalization as well (no cf). I could go on and on about how serious RSV can be after seeing it firsthand. The shot every month is a million times better than what he went through. If your child is under 2 yrs., or even turns 2 after cold/flu season starts, I say push for the RSV shots.

 

[amber682]

My son with cf had it last year and the cf doc just told us today he'll have it this year too. I think children with cf under 2 usually get it. He doesn't turn 2 until the end of Jan. so he gets it another year.

I feel its extremely important. Before he was diagnosed with CF he was hospitalized for RSV for 5 weeks. (This is how he was eventually dx'd with cf.) It can be very very serious, he was put on a ventilator 2x in the PICU. His cousin and a family friend's baby, both around the same age as him, had it at the same time and they required a week hospitalization as well (no cf). I could go on and on about how serious RSV can be after seeing it firsthand. The shot every month is a million times better than what he went through. If your child is under 2 yrs., or even turns 2 after cold/flu season starts, I say push for the RSV shots.

 

[amber682]

My son with cf had it last year and the cf doc just told us today he'll have it this year too. I think children with cf under 2 usually get it. He doesn't turn 2 until the end of Jan. so he gets it another year.

I feel its extremely important. Before he was diagnosed with CF he was hospitalized for RSV for 5 weeks. (This is how he was eventually dx'd with cf.) It can be very very serious, he was put on a ventilator 2x in the PICU. His cousin and a family friend's baby, both around the same age as him, had it at the same time and they required a week hospitalization as well (no cf). I could go on and on about how serious RSV can be after seeing it firsthand. The shot every month is a million times better than what he went through. If your child is under 2 yrs., or even turns 2 after cold/flu season starts, I say push for the RSV shots.

 

[Ratatosk]

DS was about 5 months old when RSV season hit our area. Our CF doctor in the City was adamant that we get it; however, the local doctors normally didn't prescribe it. I imagine because it was so expensive -- $3000+ per shot.

We stressed to the local doctor it's importance, but for some reason CF wasn't considered high risk by their criteria, nor was it considered necessary by BCBS of ND. Finally we had an attorney draft a letter to BCBS stating that shots are a drop in the bucket compared to the expense of an extended hospital stay, possible lung damage, stress on parents caring for a child with a genetic disorder... Was faxed to BCBS and approved by them within minutes.

He only had the shots for the first year -- November thru March. Once a month we'd go to the clinic. They'd weigh him to determine amount of serum. Prepare the vaccine, which took 20 minutes because once mixed it had to sit -- or longer if the nurses got busy. Well worth it considering RSV hit our area especially hard that year.

A lady I work with's grandson got RSV shortly after he was born and is now 4 -- to this day he still has breathing problems -- during colder winter or if he gets a little sick, which doctors attribute to the RSV>

 

[Ratatosk]

DS was about 5 months old when RSV season hit our area. Our CF doctor in the City was adamant that we get it; however, the local doctors normally didn't prescribe it. I imagine because it was so expensive -- $3000+ per shot.

We stressed to the local doctor it's importance, but for some reason CF wasn't considered high risk by their criteria, nor was it considered necessary by BCBS of ND. Finally we had an attorney draft a letter to BCBS stating that shots are a drop in the bucket compared to the expense of an extended hospital stay, possible lung damage, stress on parents caring for a child with a genetic disorder... Was faxed to BCBS and approved by them within minutes.

He only had the shots for the first year -- November thru March. Once a month we'd go to the clinic. They'd weigh him to determine amount of serum. Prepare the vaccine, which took 20 minutes because once mixed it had to sit -- or longer if the nurses got busy. Well worth it considering RSV hit our area especially hard that year.

A lady I work with's grandson got RSV shortly after he was born and is now 4 -- to this day he still has breathing problems -- during colder winter or if he gets a little sick, which doctors attribute to the RSV>

 

[Ratatosk]

DS was about 5 months old when RSV season hit our area. Our CF doctor in the City was adamant that we get it; however, the local doctors normally didn't prescribe it. I imagine because it was so expensive -- $3000+ per shot.

We stressed to the local doctor it's importance, but for some reason CF wasn't considered high risk by their criteria, nor was it considered necessary by BCBS of ND. Finally we had an attorney draft a letter to BCBS stating that shots are a drop in the bucket compared to the expense of an extended hospital stay, possible lung damage, stress on parents caring for a child with a genetic disorder... Was faxed to BCBS and approved by them within minutes.

He only had the shots for the first year -- November thru March. Once a month we'd go to the clinic. They'd weigh him to determine amount of serum. Prepare the vaccine, which took 20 minutes because once mixed it had to sit -- or longer if the nurses got busy. Well worth it considering RSV hit our area especially hard that year.

A lady I work with's grandson got RSV shortly after he was born and is now 4 -- to this day he still has breathing problems -- during colder winter or if he gets a little sick, which doctors attribute to the RSV>

 

[folione]

My son with CF was born in April. The following 2 winters he was able to get synagis covered by insurance based on his CF doctor calling for it. His 3rd winter the Dr. said it would not be approved - but also said that he was out of the huge risk. He's been fine.

 

[folione]

My son with CF was born in April. The following 2 winters he was able to get synagis covered by insurance based on his CF doctor calling for it. His 3rd winter the Dr. said it would not be approved - but also said that he was out of the huge risk. He's been fine.