L
lemonstolemonade
Guest
Glad to know that it has been covered in the past. I haven't heard
anything yet from the CF clinic, but when I do, I'll let you know!
anything yet from the CF clinic, but when I do, I'll let you know!
L
lemonstolemonade
Guest
Glad to know that it has been covered in the past. I haven't heard
anything yet from the CF clinic, but when I do, I'll let you know!
anything yet from the CF clinic, but when I do, I'll let you know!
L
lemonstolemonade
Guest
Glad to know that it has been covered in the past. I haven't heard
anything yet from the CF clinic, but when I do, I'll let you know!
anything yet from the CF clinic, but when I do, I'll let you know!
Just wanted to let you know that towards the end of last years round of shots the nurse told us they had a new formula that she didn't have to let it sit for 20 min. first. It went much quicker. She did hang around for awhile after every shot though to be sure of no allergic reaction. (In RI they have a nurse come to your house once a month to administer the shot.) Now that we moved to CT we go to the pedi though.
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Just wanted to let you know that towards the end of last years round of shots the nurse told us they had a new formula that she didn't have to let it sit for 20 min. first. It went much quicker. She did hang around for awhile after every shot though to be sure of no allergic reaction. (In RI they have a nurse come to your house once a month to administer the shot.) Now that we moved to CT we go to the pedi though.
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
Just wanted to let you know that towards the end of last years round of shots the nurse told us they had a new formula that she didn't have to let it sit for 20 min. first. It went much quicker. She did hang around for awhile after every shot though to be sure of no allergic reaction. (In RI they have a nurse come to your house once a month to administer the shot.) Now that we moved to CT we go to the pedi though.
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
It can affect the child long after he/she was sick. There were posters in the hospital that said it can cause asthma, I guess because of the damage it did to the lungs.
And like Lisa said, the shot is very expensive to the insurance co. but so was the hospital bill from my son being admitted for 5 weeks and the PICU, etc. That bill was over $150,000 that the insurance had to pay. (By the way, if our state had done newborn screening for CF they would have known he had it, he would have had the RSV shots, and prob wouldn't have ever gotten RSV in the first place.)
Okay I'm done now.<img src="i/expressions/face-icon-small-smile.gif" border="0">
L
lemonstolemonade
Guest
Happy Monday everyone!<br>
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
L
lemonstolemonade
Guest
Happy Monday everyone!<br>
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
L
lemonstolemonade
Guest
Happy Monday everyone!<br>
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
<br>
I've spoken with our clinic about the RSV shot for our infant and
the Doctor feels that it is a great idea. They suggested having our
pedi order the shots so we can get them locally (maybe even at
home, as some of you have suggested and informed).<br>
<br>
I'll be calling our pedi tomorrow to find out what we need to do to
move forward. I think our next, and last, hurdle is the insurance.
If anyone has any suggestions, I'm willing to take advice!<br>
<br>
Until we know more,<br>
<br>
Anne
Our local doctor ordered the shots; however, BCBS of ND refused to cover them. CF was apparently not specifically listed under their criteria as high risk, though on other sites it was. We called the insurance company and couldn't get anywhere. Then a friend of the family, who is an attorney faxed a letter to the insurance company indicating that the cost of the shots outweighed potential lung damage and a possible 2-3 week hospital stay. Also mentioned the emotional distress we as parents had dealing with a child with a genetic disease -- within minutes the shots were approved.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
Our local doctor ordered the shots; however, BCBS of ND refused to cover them. CF was apparently not specifically listed under their criteria as high risk, though on other sites it was. We called the insurance company and couldn't get anywhere. Then a friend of the family, who is an attorney faxed a letter to the insurance company indicating that the cost of the shots outweighed potential lung damage and a possible 2-3 week hospital stay. Also mentioned the emotional distress we as parents had dealing with a child with a genetic disease -- within minutes the shots were approved.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
Our local doctor ordered the shots; however, BCBS of ND refused to cover them. CF was apparently not specifically listed under their criteria as high risk, though on other sites it was. We called the insurance company and couldn't get anywhere. Then a friend of the family, who is an attorney faxed a letter to the insurance company indicating that the cost of the shots outweighed potential lung damage and a possible 2-3 week hospital stay. Also mentioned the emotional distress we as parents had dealing with a child with a genetic disease -- within minutes the shots were approved.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
Hopefully you won't have to get an attorney. We fought for weeks and he got it approved in minutes.
ashton2005
New member
I find this interesting.. our pulm doc told us the RSV shot wouldnt be necessary this winter.. ashton will be 1 october 23.. i will mention also last year even with the shot we were hospitalized with RSV for a week or so.. should i be more vigilant about this???? i want to know of others experiences.. i felt that it should be pushed but he said ashton should be out of the woodss.. thank in advance!!!
ashton2005
New member
I find this interesting.. our pulm doc told us the RSV shot wouldnt be necessary this winter.. ashton will be 1 october 23.. i will mention also last year even with the shot we were hospitalized with RSV for a week or so.. should i be more vigilant about this???? i want to know of others experiences.. i felt that it should be pushed but he said ashton should be out of the woodss.. thank in advance!!!
ashton2005
New member
I find this interesting.. our pulm doc told us the RSV shot wouldnt be necessary this winter.. ashton will be 1 october 23.. i will mention also last year even with the shot we were hospitalized with RSV for a week or so.. should i be more vigilant about this???? i want to know of others experiences.. i felt that it should be pushed but he said ashton should be out of the woodss.. thank in advance!!!
DS only had the RSV shots the first year. He was 5 months old when they were started in November of that year. Newborns, teeny tiny infants have such teeny tiny airways, that they can get into major trouble with RSV or any upper respiratory bug -- stop breathing, have problems clearing mucus 'cuz they can't blow their noses... As they get older, their airways are larger, they're able to get rid of that stuff to a certain extent and they've probably been exposed to the viruses that cause RSV and have developed a certain immunity. As time goes on, as the child gets older, the symptoms are less severe.
DS only had the RSV shots the first year. He was 5 months old when they were started in November of that year. Newborns, teeny tiny infants have such teeny tiny airways, that they can get into major trouble with RSV or any upper respiratory bug -- stop breathing, have problems clearing mucus 'cuz they can't blow their noses... As they get older, their airways are larger, they're able to get rid of that stuff to a certain extent and they've probably been exposed to the viruses that cause RSV and have developed a certain immunity. As time goes on, as the child gets older, the symptoms are less severe.
DS only had the RSV shots the first year. He was 5 months old when they were started in November of that year. Newborns, teeny tiny infants have such teeny tiny airways, that they can get into major trouble with RSV or any upper respiratory bug -- stop breathing, have problems clearing mucus 'cuz they can't blow their noses... As they get older, their airways are larger, they're able to get rid of that stuff to a certain extent and they've probably been exposed to the viruses that cause RSV and have developed a certain immunity. As time goes on, as the child gets older, the symptoms are less severe.
L
lemonstolemonade
Guest
Our pedi's office is getting the insurance run-around for
pre-approval. They have submitted the orders to the company that
does the shots for them to attempt to get it pre-approved. If that
doesn't work, the CF clinic says that they will get involved. I'm
just glad that there are people out there who fight for us when
others fight against us.
pre-approval. They have submitted the orders to the company that
does the shots for them to attempt to get it pre-approved. If that
doesn't work, the CF clinic says that they will get involved. I'm
just glad that there are people out there who fight for us when
others fight against us.