S. Maltophilia and promixin

G

gunelle

Guest
I got off home IV's about 1 and a half week ago. I was hospitalized for 3 days, learing how to manage my own IV and while I was there my doctor started me on promixin to see if I cold handle it. I could and have started the treatment at home. Before being admitted I has been on oral antibiotics for some months, with a bug that I couldn't get ridd off. So I went to see the doctor who admitted me and changed my normal medication, replaced Gobemedicine with promixin. I didn't think too much of it at the time, but now I have found out that the bug that I cultured at my last sputum sample is S. Maltophilia. I did some reading on it and it's seems a bit "serious". Then I stared reading about promixin and have learned that it's used normally for treating pseudomanas, so now I'm a bit confused.

My doctor didn't say why he changed my medication, nor did I ask, don't know why now. But I was more occcupied about going on my first IVs. He didn't seem too worried, I mean he said it's normal for CF'ers to go on IV and to take care.

Does anyone know anything about this bug, is is possible to get ridd of it? Does is do much harm? Why am I on promixin if I don't have psedumonas? I have many questions, and probably will call my doctor tomorrow, but if anyone has some input, I would be glad to hear from you.

Many thanks
 
G

gunelle

Guest
I got off home IV's about 1 and a half week ago. I was hospitalized for 3 days, learing how to manage my own IV and while I was there my doctor started me on promixin to see if I cold handle it. I could and have started the treatment at home. Before being admitted I has been on oral antibiotics for some months, with a bug that I couldn't get ridd off. So I went to see the doctor who admitted me and changed my normal medication, replaced Gobemedicine with promixin. I didn't think too much of it at the time, but now I have found out that the bug that I cultured at my last sputum sample is S. Maltophilia. I did some reading on it and it's seems a bit "serious". Then I stared reading about promixin and have learned that it's used normally for treating pseudomanas, so now I'm a bit confused.

My doctor didn't say why he changed my medication, nor did I ask, don't know why now. But I was more occcupied about going on my first IVs. He didn't seem too worried, I mean he said it's normal for CF'ers to go on IV and to take care.

Does anyone know anything about this bug, is is possible to get ridd of it? Does is do much harm? Why am I on promixin if I don't have psedumonas? I have many questions, and probably will call my doctor tomorrow, but if anyone has some input, I would be glad to hear from you.

Many thanks
 
G

gunelle

Guest
I got off home IV's about 1 and a half week ago. I was hospitalized for 3 days, learing how to manage my own IV and while I was there my doctor started me on promixin to see if I cold handle it. I could and have started the treatment at home. Before being admitted I has been on oral antibiotics for some months, with a bug that I couldn't get ridd off. So I went to see the doctor who admitted me and changed my normal medication, replaced Gobemedicine with promixin. I didn't think too much of it at the time, but now I have found out that the bug that I cultured at my last sputum sample is S. Maltophilia. I did some reading on it and it's seems a bit "serious". Then I stared reading about promixin and have learned that it's used normally for treating pseudomanas, so now I'm a bit confused.
<br />
<br />My doctor didn't say why he changed my medication, nor did I ask, don't know why now. But I was more occcupied about going on my first IVs. He didn't seem too worried, I mean he said it's normal for CF'ers to go on IV and to take care.
<br />
<br />Does anyone know anything about this bug, is is possible to get ridd of it? Does is do much harm? Why am I on promixin if I don't have psedumonas? I have many questions, and probably will call my doctor tomorrow, but if anyone has some input, I would be glad to hear from you.
<br />
<br />Many thanks
 
M

momofcfprincess

New member
Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt.

My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My daughter has had this night time terrible cough with so much mucus and has been on Cipro for the past 21 days. I called her CF Doc and told then about a recent article I had read sbout SM and asked if they could start her on something that treats SM, if not she needed to be hospitalized. We started her on Bactrim and she is doing So much better.
Here is the article. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">

News & Articles
Bacteria Identified as New Foe for CF Patients
October 7 2010

source HealthDay


A new study links flare-ups of cystic fibrosis to a chronic bacterial infection, a finding that could give physicians new insight into the disease and offer a new target for medication.

The germ in question is called Stenotrophomonas maltophilia.

"Our study showed that chronic infection with S. maltophilia, which was previously not regarded as prognostically significant, may have a real impact on the progression of CF in patients," said study co-author Dr. Valerie Waters, an assistant professor of infectious diseases at the Hospital for Sick Children in Toronto.

"We hope that this study is a starting point for further research, which may point to therapeutic possibilities associated with controlling these infections," she said in a news release from the American Thoracic Society.

Cystic fibrosis is a congenital disease, meaning people are born with it. It produces thick mucus in the lungs and digestive tract that causes infections and can lead to early deaths. Flare-ups can permanently damage the lungs.

According to the news release, patients with cystic fibrosis are living longer (average lifespan is 35 years) but developing more of certain kinds of infections. One of those is S. maltophilia, which has been found in about a third of patients.

In the study, researchers followed almost 700 patients for 12 years. Those who showed signs of infection had weaker lungs and a higher risk of flare-ups.

"This study . . . points to the possibility that chronic infection has a real and significant clinical impact on these patients," Waters said.

The study was published online Oct. 1 ahead of print publication in the American Journal of Respiratory and Critical Care Medicine.
:
 
M

momofcfprincess

New member
Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt.

My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My daughter has had this night time terrible cough with so much mucus and has been on Cipro for the past 21 days. I called her CF Doc and told then about a recent article I had read sbout SM and asked if they could start her on something that treats SM, if not she needed to be hospitalized. We started her on Bactrim and she is doing So much better.
Here is the article. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">

News & Articles
Bacteria Identified as New Foe for CF Patients
October 7 2010

source HealthDay


A new study links flare-ups of cystic fibrosis to a chronic bacterial infection, a finding that could give physicians new insight into the disease and offer a new target for medication.

The germ in question is called Stenotrophomonas maltophilia.

"Our study showed that chronic infection with S. maltophilia, which was previously not regarded as prognostically significant, may have a real impact on the progression of CF in patients," said study co-author Dr. Valerie Waters, an assistant professor of infectious diseases at the Hospital for Sick Children in Toronto.

"We hope that this study is a starting point for further research, which may point to therapeutic possibilities associated with controlling these infections," she said in a news release from the American Thoracic Society.

Cystic fibrosis is a congenital disease, meaning people are born with it. It produces thick mucus in the lungs and digestive tract that causes infections and can lead to early deaths. Flare-ups can permanently damage the lungs.

According to the news release, patients with cystic fibrosis are living longer (average lifespan is 35 years) but developing more of certain kinds of infections. One of those is S. maltophilia, which has been found in about a third of patients.

In the study, researchers followed almost 700 patients for 12 years. Those who showed signs of infection had weaker lungs and a higher risk of flare-ups.

"This study . . . points to the possibility that chronic infection has a real and significant clinical impact on these patients," Waters said.

The study was published online Oct. 1 ahead of print publication in the American Journal of Respiratory and Critical Care Medicine.
:
 
M

momofcfprincess

New member
Hi, My daughter started culturing it in 2007, but wasnt really brought up as something to worry about until about 2 weeks ago when I read a news release about SMalt.
<br />
<br />My daughter has been hospitalized 6 times in the last 2 years but this was never brung up till this past week. My daughter has had this night time terrible cough with so much mucus and has been on Cipro for the past 21 days. I called her CF Doc and told then about a recent article I had read sbout SM and asked if they could start her on something that treats SM, if not she needed to be hospitalized. We started her on Bactrim and she is doing So much better.
<br />Here is the article. Take care <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />News & Articles
<br />Bacteria Identified as New Foe for CF Patients
<br />October 7 2010
<br />
<br />source HealthDay
<br />
<br />
<br />A new study links flare-ups of cystic fibrosis to a chronic bacterial infection, a finding that could give physicians new insight into the disease and offer a new target for medication.
<br />
<br />The germ in question is called Stenotrophomonas maltophilia.
<br />
<br />"Our study showed that chronic infection with S. maltophilia, which was previously not regarded as prognostically significant, may have a real impact on the progression of CF in patients," said study co-author Dr. Valerie Waters, an assistant professor of infectious diseases at the Hospital for Sick Children in Toronto.
<br />
<br />"We hope that this study is a starting point for further research, which may point to therapeutic possibilities associated with controlling these infections," she said in a news release from the American Thoracic Society.
<br />
<br />Cystic fibrosis is a congenital disease, meaning people are born with it. It produces thick mucus in the lungs and digestive tract that causes infections and can lead to early deaths. Flare-ups can permanently damage the lungs.
<br />
<br />According to the news release, patients with cystic fibrosis are living longer (average lifespan is 35 years) but developing more of certain kinds of infections. One of those is S. maltophilia, which has been found in about a third of patients.
<br />
<br />In the study, researchers followed almost 700 patients for 12 years. Those who showed signs of infection had weaker lungs and a higher risk of flare-ups.
<br />
<br />"This study . . . points to the possibility that chronic infection has a real and significant clinical impact on these patients," Waters said.
<br />
<br />The study was published online Oct. 1 ahead of print publication in the American Journal of Respiratory and Critical Care Medicine.
<br />:
 
R

Ratatosk

Administrator
Staff member
When they ran the culture, did you get a report back indicating what antibiotics the steno. malt was sensitive, resistant to, etc? DS was put on septra when he cultured it about 3 years ago.
 
R

Ratatosk

Administrator
Staff member
When they ran the culture, did you get a report back indicating what antibiotics the steno. malt was sensitive, resistant to, etc? DS was put on septra when he cultured it about 3 years ago.
 
R

Ratatosk

Administrator
Staff member
When they ran the culture, did you get a report back indicating what antibiotics the steno. malt was sensitive, resistant to, etc? DS was put on septra when he cultured it about 3 years ago.
 
M

marcijo

Guest
I cultured this about 6 months ago for the first time as well. They said its not really one to worry about-but now with the new studies I am a bit freaked out! It seems like the doxy I am on doesn't always kick it....I plan on bringing the article about the new findings on Steno Malt and showing it to my doctor. I am allergic to sulfa based drugs-I am guessing the ran a sensitivity at the time I cultured it-I plan on asking what it was sensitive too and maybe starting that.

I keep getting sick but it doesn't really start as a cold and then move into my lungs...it feels like the bacteria is just acting up in there-which would make sense with the steno malt. I have asked my doctor about this and he is thinking I am getting a virus each time....but I tend to think (and especially now with this article) that it's the steno.
 
M

marcijo

Guest
I cultured this about 6 months ago for the first time as well. They said its not really one to worry about-but now with the new studies I am a bit freaked out! It seems like the doxy I am on doesn't always kick it....I plan on bringing the article about the new findings on Steno Malt and showing it to my doctor. I am allergic to sulfa based drugs-I am guessing the ran a sensitivity at the time I cultured it-I plan on asking what it was sensitive too and maybe starting that.

I keep getting sick but it doesn't really start as a cold and then move into my lungs...it feels like the bacteria is just acting up in there-which would make sense with the steno malt. I have asked my doctor about this and he is thinking I am getting a virus each time....but I tend to think (and especially now with this article) that it's the steno.
 
M

marcijo

Guest
I cultured this about 6 months ago for the first time as well. They said its not really one to worry about-but now with the new studies I am a bit freaked out! It seems like the doxy I am on doesn't always kick it....I plan on bringing the article about the new findings on Steno Malt and showing it to my doctor. I am allergic to sulfa based drugs-I am guessing the ran a sensitivity at the time I cultured it-I plan on asking what it was sensitive too and maybe starting that.
<br />
<br />I keep getting sick but it doesn't really start as a cold and then move into my lungs...it feels like the bacteria is just acting up in there-which would make sense with the steno malt. I have asked my doctor about this and he is thinking I am getting a virus each time....but I tend to think (and especially now with this article) that it's the steno.
 
M

momofcfprincess

New member
No, I have never seen any reports like that our nurse just looked up on her RX list and it said Bactrim was used to treat SM and thats what she is on now.... and seems to be working <img src="i/expressions/face-icon-small-smile.gif" border="0">.

Maybe I should request that report. Do you get one with this info. at your clinic????
 
M

momofcfprincess

New member
No, I have never seen any reports like that our nurse just looked up on her RX list and it said Bactrim was used to treat SM and thats what she is on now.... and seems to be working <img src="i/expressions/face-icon-small-smile.gif" border="0">.

Maybe I should request that report. Do you get one with this info. at your clinic????
 
M

momofcfprincess

New member
No, I have never seen any reports like that our nurse just looked up on her RX list and it said Bactrim was used to treat SM and thats what she is on now.... and seems to be working <img src="i/expressions/face-icon-small-smile.gif" border="0">.
<br />
<br />Maybe I should request that report. Do you get one with this info. at your clinic????
 
M

marcijo

Guest
Here's a link to the recent article I read on Steno Malt:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medicalnewstoday.com/articles/203301.php
">http://www.medicalnewstoday.com/articles/203301.php
</a>
I plan on printing it out and bring it into my doctor. I have seen others out there that are recent - all published in Oct 2010.
 
M

marcijo

Guest
Here's a link to the recent article I read on Steno Malt:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medicalnewstoday.com/articles/203301.php
">http://www.medicalnewstoday.com/articles/203301.php
</a>
I plan on printing it out and bring it into my doctor. I have seen others out there that are recent - all published in Oct 2010.
 
M

marcijo

Guest
Here's a link to the recent article I read on Steno Malt:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.medicalnewstoday.com/articles/203301.php
">http://www.medicalnewstoday.com/articles/203301.php
</a><br />
<br />I plan on printing it out and bring it into my doctor. I have seen others out there that are recent - all published in Oct 2010.
 
G

gunelle

Guest
Hi everyone, thanks for replying. Yes, that article is a bit scary. I hope they find out something clear soon, and that it won't be that bad news :/ I am feeling better, after the IVs, and hope to continue feeling good with taking promixin, and hopefully I won't culture C.Malt at my next sputum culture.

Any one else with this bug? And is taking promixin?
 
G

gunelle

Guest
Hi everyone, thanks for replying. Yes, that article is a bit scary. I hope they find out something clear soon, and that it won't be that bad news :/ I am feeling better, after the IVs, and hope to continue feeling good with taking promixin, and hopefully I won't culture C.Malt at my next sputum culture.

Any one else with this bug? And is taking promixin?
 
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