Salty skin? How salty is too salty?

[jackmommy]

Piper, I do not know for sure that his URI were viral. The doctor thought they were viral (I guess since his lungs sounded clear). Never had antibiotics. No chest xrays. He just coughed and coughed and coughed (productive and swallowed what he coughed up).

As for his stools, I do not see any pools of oil. Sometimes they look "slick" and glossy. And sometimes they are dark and dull.

My main concern and thought towards CF is the weight issue. He's just not gaining much weight.

There is a pulmonologist in my area that is listed on the CF website. He rounds at our local Children's Hospital which is not a CF site, but from nursing school I remember alot of CF kids being admitted there. Our insurance does not require a referral for specialists.

So, just to learn the process, do pulms typically do the sweat tests in their offices? Or is it a mix of dr's offices, labs and hospital settings for sweat testing? We are 2 hours away from the local CF Children's Hospital.

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues? I had spoken with a peds nurse at work who thought that pulm consult would benefit since he did not think it was normal for him to be sick with upper resp infections every other week for 2 months. Jack is also not in daycare. He goes to children's church once a week.

Thank you

 

[jackmommy]

Piper, I do not know for sure that his URI were viral. The doctor thought they were viral (I guess since his lungs sounded clear). Never had antibiotics. No chest xrays. He just coughed and coughed and coughed (productive and swallowed what he coughed up).

As for his stools, I do not see any pools of oil. Sometimes they look "slick" and glossy. And sometimes they are dark and dull.

My main concern and thought towards CF is the weight issue. He's just not gaining much weight.

There is a pulmonologist in my area that is listed on the CF website. He rounds at our local Children's Hospital which is not a CF site, but from nursing school I remember alot of CF kids being admitted there. Our insurance does not require a referral for specialists.

So, just to learn the process, do pulms typically do the sweat tests in their offices? Or is it a mix of dr's offices, labs and hospital settings for sweat testing? We are 2 hours away from the local CF Children's Hospital.

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues? I had spoken with a peds nurse at work who thought that pulm consult would benefit since he did not think it was normal for him to be sick with upper resp infections every other week for 2 months. Jack is also not in daycare. He goes to children's church once a week.

Thank you

 

[jackmommy]

Piper, I do not know for sure that his URI were viral. The doctor thought they were viral (I guess since his lungs sounded clear). Never had antibiotics. No chest xrays. He just coughed and coughed and coughed (productive and swallowed what he coughed up).

As for his stools, I do not see any pools of oil. Sometimes they look "slick" and glossy. And sometimes they are dark and dull.

My main concern and thought towards CF is the weight issue. He's just not gaining much weight.

There is a pulmonologist in my area that is listed on the CF website. He rounds at our local Children's Hospital which is not a CF site, but from nursing school I remember alot of CF kids being admitted there. Our insurance does not require a referral for specialists.

So, just to learn the process, do pulms typically do the sweat tests in their offices? Or is it a mix of dr's offices, labs and hospital settings for sweat testing? We are 2 hours away from the local CF Children's Hospital.

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues? I had spoken with a peds nurse at work who thought that pulm consult would benefit since he did not think it was normal for him to be sick with upper resp infections every other week for 2 months. Jack is also not in daycare. He goes to children's church once a week.

Thank you

 

[jackmommy]

Piper, I do not know for sure that his URI were viral. The doctor thought they were viral (I guess since his lungs sounded clear). Never had antibiotics. No chest xrays. He just coughed and coughed and coughed (productive and swallowed what he coughed up).

As for his stools, I do not see any pools of oil. Sometimes they look "slick" and glossy. And sometimes they are dark and dull.

My main concern and thought towards CF is the weight issue. He's just not gaining much weight.

There is a pulmonologist in my area that is listed on the CF website. He rounds at our local Children's Hospital which is not a CF site, but from nursing school I remember alot of CF kids being admitted there. Our insurance does not require a referral for specialists.

So, just to learn the process, do pulms typically do the sweat tests in their offices? Or is it a mix of dr's offices, labs and hospital settings for sweat testing? We are 2 hours away from the local CF Children's Hospital.

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues? I had spoken with a peds nurse at work who thought that pulm consult would benefit since he did not think it was normal for him to be sick with upper resp infections every other week for 2 months. Jack is also not in daycare. He goes to children's church once a week.

Thank you

 

[jackmommy]

Piper, I do not know for sure that his URI were viral. The doctor thought they were viral (I guess since his lungs sounded clear). Never had antibiotics. No chest xrays. He just coughed and coughed and coughed (productive and swallowed what he coughed up).
<br />
<br />As for his stools, I do not see any pools of oil. Sometimes they look "slick" and glossy. And sometimes they are dark and dull.
<br />
<br />My main concern and thought towards CF is the weight issue. He's just not gaining much weight.
<br />
<br />There is a pulmonologist in my area that is listed on the CF website. He rounds at our local Children's Hospital which is not a CF site, but from nursing school I remember alot of CF kids being admitted there. Our insurance does not require a referral for specialists.
<br />
<br />So, just to learn the process, do pulms typically do the sweat tests in their offices? Or is it a mix of dr's offices, labs and hospital settings for sweat testing? We are 2 hours away from the local CF Children's Hospital.
<br />
<br />Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues? I had spoken with a peds nurse at work who thought that pulm consult would benefit since he did not think it was normal for him to be sick with upper resp infections every other week for 2 months. Jack is also not in daycare. He goes to children's church once a week.
<br />
<br />Thank you

 

[Rebjane]

From past experience, the mom knows their child best. You feel like something is not right and CF testing sounds appropriate. Never worry what the doctor thinks of you, you just want your child to feel better.

A quick little test our CF doc told us to see if there is fat in the stool; try to toss the bm in the toilet; if is sinks there is likely no fat from malabsorption. If the bm floats; likely a fatty stool. Not a scientific test but helpful none the less.

Most of the moms/dads on this site have had to push, push, push and ask lots of questions to find what is wrong with their child; even after having a CF diagnosis.

my son had a sweat test at an accrediated CF center but in a lab by a technician. Then the doctor will call you with the results. We got out results the same day. His was negative.

My daughter who does have CF had a genetic test; our genetic testing took almost 2 weeks to get the result.

 

[Rebjane]

From past experience, the mom knows their child best. You feel like something is not right and CF testing sounds appropriate. Never worry what the doctor thinks of you, you just want your child to feel better.

A quick little test our CF doc told us to see if there is fat in the stool; try to toss the bm in the toilet; if is sinks there is likely no fat from malabsorption. If the bm floats; likely a fatty stool. Not a scientific test but helpful none the less.

Most of the moms/dads on this site have had to push, push, push and ask lots of questions to find what is wrong with their child; even after having a CF diagnosis.

my son had a sweat test at an accrediated CF center but in a lab by a technician. Then the doctor will call you with the results. We got out results the same day. His was negative.

My daughter who does have CF had a genetic test; our genetic testing took almost 2 weeks to get the result.

 

[Rebjane]

From past experience, the mom knows their child best. You feel like something is not right and CF testing sounds appropriate. Never worry what the doctor thinks of you, you just want your child to feel better.

A quick little test our CF doc told us to see if there is fat in the stool; try to toss the bm in the toilet; if is sinks there is likely no fat from malabsorption. If the bm floats; likely a fatty stool. Not a scientific test but helpful none the less.

Most of the moms/dads on this site have had to push, push, push and ask lots of questions to find what is wrong with their child; even after having a CF diagnosis.

my son had a sweat test at an accrediated CF center but in a lab by a technician. Then the doctor will call you with the results. We got out results the same day. His was negative.

My daughter who does have CF had a genetic test; our genetic testing took almost 2 weeks to get the result.

 

[Rebjane]

From past experience, the mom knows their child best. You feel like something is not right and CF testing sounds appropriate. Never worry what the doctor thinks of you, you just want your child to feel better.

A quick little test our CF doc told us to see if there is fat in the stool; try to toss the bm in the toilet; if is sinks there is likely no fat from malabsorption. If the bm floats; likely a fatty stool. Not a scientific test but helpful none the less.

Most of the moms/dads on this site have had to push, push, push and ask lots of questions to find what is wrong with their child; even after having a CF diagnosis.

my son had a sweat test at an accrediated CF center but in a lab by a technician. Then the doctor will call you with the results. We got out results the same day. His was negative.

My daughter who does have CF had a genetic test; our genetic testing took almost 2 weeks to get the result.

 

[Rebjane]

From past experience, the mom knows their child best. You feel like something is not right and CF testing sounds appropriate. Never worry what the doctor thinks of you, you just want your child to feel better.
<br />
<br />A quick little test our CF doc told us to see if there is fat in the stool; try to toss the bm in the toilet; if is sinks there is likely no fat from malabsorption. If the bm floats; likely a fatty stool. Not a scientific test but helpful none the less.
<br />
<br />Most of the moms/dads on this site have had to push, push, push and ask lots of questions to find what is wrong with their child; even after having a CF diagnosis.
<br />
<br />my son had a sweat test at an accrediated CF center but in a lab by a technician. Then the doctor will call you with the results. We got out results the same day. His was negative.
<br />
<br />My daughter who does have CF had a genetic test; our genetic testing took almost 2 weeks to get the result.
<br />
<br />

 

[izemmom]

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues?



Maybe, but it doesn't matter. <img src="i/expressions/face-icon-small-happy.gif" border="0">

If your gut tells you there's something there worth checking out, then do what you have to do. Trust your mommy instinct, and your nursing training. You won't feel better until CF is ruled out (or confirmed...strangely, you'll feel better then, too, because at least you'll know!!!).

He certainly has enough indicators to start the ball rolling, and your pediatrician can help with that, certainly. But, I wouldn't wait another month. If you have access to a pulmo or a CF center, go for it.

My CF daughter never had a sweat test, since she was diagnosed at birth due to meconium illeus, and the blood tests confirmed the DX. My non CF daughter had a sweat test soon after Emily's DX. It was done in the lab at Children's Hospital (an accredited CF center.)

Good luck to you. I hope there is no CF and that you get answers soon. We are here for you - no matter what the outcome.

 

[izemmom]

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues?



Maybe, but it doesn't matter. <img src="i/expressions/face-icon-small-happy.gif" border="0">

If your gut tells you there's something there worth checking out, then do what you have to do. Trust your mommy instinct, and your nursing training. You won't feel better until CF is ruled out (or confirmed...strangely, you'll feel better then, too, because at least you'll know!!!).

He certainly has enough indicators to start the ball rolling, and your pediatrician can help with that, certainly. But, I wouldn't wait another month. If you have access to a pulmo or a CF center, go for it.

My CF daughter never had a sweat test, since she was diagnosed at birth due to meconium illeus, and the blood tests confirmed the DX. My non CF daughter had a sweat test soon after Emily's DX. It was done in the lab at Children's Hospital (an accredited CF center.)

Good luck to you. I hope there is no CF and that you get answers soon. We are here for you - no matter what the outcome.

 

[izemmom]

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues?



Maybe, but it doesn't matter. <img src="i/expressions/face-icon-small-happy.gif" border="0">

If your gut tells you there's something there worth checking out, then do what you have to do. Trust your mommy instinct, and your nursing training. You won't feel better until CF is ruled out (or confirmed...strangely, you'll feel better then, too, because at least you'll know!!!).

He certainly has enough indicators to start the ball rolling, and your pediatrician can help with that, certainly. But, I wouldn't wait another month. If you have access to a pulmo or a CF center, go for it.

My CF daughter never had a sweat test, since she was diagnosed at birth due to meconium illeus, and the blood tests confirmed the DX. My non CF daughter had a sweat test soon after Emily's DX. It was done in the lab at Children's Hospital (an accredited CF center.)

Good luck to you. I hope there is no CF and that you get answers soon. We are here for you - no matter what the outcome.

 

[izemmom]

Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues?



Maybe, but it doesn't matter. <img src="i/expressions/face-icon-small-happy.gif" border="0">

If your gut tells you there's something there worth checking out, then do what you have to do. Trust your mommy instinct, and your nursing training. You won't feel better until CF is ruled out (or confirmed...strangely, you'll feel better then, too, because at least you'll know!!!).

He certainly has enough indicators to start the ball rolling, and your pediatrician can help with that, certainly. But, I wouldn't wait another month. If you have access to a pulmo or a CF center, go for it.

My CF daughter never had a sweat test, since she was diagnosed at birth due to meconium illeus, and the blood tests confirmed the DX. My non CF daughter had a sweat test soon after Emily's DX. It was done in the lab at Children's Hospital (an accredited CF center.)

Good luck to you. I hope there is no CF and that you get answers soon. We are here for you - no matter what the outcome.

 

[izemmom]

<br />Will the pulmonologist think that I am psycho for making an appt with him if Jack currently has no respiratory issues?
<br />
<br />
<br />
<br />Maybe, but it doesn't matter. <img src="i/expressions/face-icon-small-happy.gif" border="0">
<br />
<br />If your gut tells you there's something there worth checking out, then do what you have to do. Trust your mommy instinct, and your nursing training. You won't feel better until CF is ruled out (or confirmed...strangely, you'll feel better then, too, because at least you'll know!!!).
<br />
<br />He certainly has enough indicators to start the ball rolling, and your pediatrician can help with that, certainly. But, I wouldn't wait another month. If you have access to a pulmo or a CF center, go for it.
<br />
<br />My CF daughter never had a sweat test, since she was diagnosed at birth due to meconium illeus, and the blood tests confirmed the DX. My non CF daughter had a sweat test soon after Emily's DX. It was done in the lab at Children's Hospital (an accredited CF center.)
<br />
<br />Good luck to you. I hope there is no CF and that you get answers soon. We are here for you - no matter what the outcome.

 

[jackmommy]

Another question. I've seen probably a bazillion stools, but I work with babies and they are all either on breastmilk or formula. As for toddler stools, I'm confused on what exactly a "bulky" stool looks like?

 

[jackmommy]

Another question. I've seen probably a bazillion stools, but I work with babies and they are all either on breastmilk or formula. As for toddler stools, I'm confused on what exactly a "bulky" stool looks like?

 

[jackmommy]

Another question. I've seen probably a bazillion stools, but I work with babies and they are all either on breastmilk or formula. As for toddler stools, I'm confused on what exactly a "bulky" stool looks like?

 

[jackmommy]

Another question. I've seen probably a bazillion stools, but I work with babies and they are all either on breastmilk or formula. As for toddler stools, I'm confused on what exactly a "bulky" stool looks like?

 

[jackmommy]

Another question. I've seen probably a bazillion stools, but I work with babies and they are all either on breastmilk or formula. As for toddler stools, I'm confused on what exactly a "bulky" stool looks like?