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Sam's cold
- Thread starter rosesixtyfive
- Start date
rosesixtyfive
New member
My CF care team said I was doing the right things, and that some cough is good, because it's better than the mucus sitting there. They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking. Seems like I remember Liza mentioning that her son's doctor doesn't let him cough for very long. Sam is doing better on the antibiotics, other than a slight cough, not nearly as mucusy. Thanks!
rosesixtyfive
New member
My CF care team said I was doing the right things, and that some cough is good, because it's better than the mucus sitting there. They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking. Seems like I remember Liza mentioning that her son's doctor doesn't let him cough for very long. Sam is doing better on the antibiotics, other than a slight cough, not nearly as mucusy. Thanks!
rosesixtyfive
New member
My CF care team said I was doing the right things, and that some cough is good, because it's better than the mucus sitting there. They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking. Seems like I remember Liza mentioning that her son's doctor doesn't let him cough for very long. Sam is doing better on the antibiotics, other than a slight cough, not nearly as mucusy. Thanks!
rosesixtyfive
New member
My CF care team said I was doing the right things, and that some cough is good, because it's better than the mucus sitting there. They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking. Seems like I remember Liza mentioning that her son's doctor doesn't let him cough for very long. Sam is doing better on the antibiotics, other than a slight cough, not nearly as mucusy. Thanks!
rosesixtyfive
New member
My CF care team said I was doing the right things, and that some cough is good, because it's better than the mucus sitting there. They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking. Seems like I remember Liza mentioning that her son's doctor doesn't let him cough for very long. Sam is doing better on the antibiotics, other than a slight cough, not nearly as mucusy. Thanks!
<div class="FTQUOTE"><begin quote>They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking.</end quote></div>
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote>They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking.</end quote></div>
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote>They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking.</end quote></div>
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote>They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking.</end quote>
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<div class="FTQUOTE"><begin quote>They said there was no reason to increase CPT's unless he was struggling to breathe. The nurse also said Sam will always cough some. I'm worried this might be old-fashioned thinking.</end quote>
<br />In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
<br />
<br />If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
<br />
<br />At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
<br />In my personal, non-expert, mom-only opinion that I do realize is worth only .02 ...I would not feel comfortable with that if that was my child. Waiting until my child was struggling to breathe before increasing CPT rather than being proactive and increasing treatment at the first sign of illness in the hopes that things will not GET that bad just does not make sense to me. Each infection can potentially cause damage that cannot be undone. Our center doesn't assume a chronic cough is 'normal'/inevitable either.
<br />
<br />If you are not comfortable with this approach to care I would encourage you to get another opinion from another CF center if at all possible, especially while your son is so young and has the best chance of having his treatment managed in the best way possible.
<br />
<br />At any rate- I am really glad that he is doing better today. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />
Our doctor prefers baseline of no cough. And in DS' case if he does have a cough, it usually means he's sick. We have been told to learn his cough -- if it's a junky cough then usually his doctor prescribes antibiotics. I should mentioned that his doctor's specialty is infectious disease and is very proactive. We were also told to increase cpt/vest treatments to 'beat that cough' out of him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
Our doctor prefers baseline of no cough. And in DS' case if he does have a cough, it usually means he's sick. We have been told to learn his cough -- if it's a junky cough then usually his doctor prescribes antibiotics. I should mentioned that his doctor's specialty is infectious disease and is very proactive. We were also told to increase cpt/vest treatments to 'beat that cough' out of him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
Our doctor prefers baseline of no cough. And in DS' case if he does have a cough, it usually means he's sick. We have been told to learn his cough -- if it's a junky cough then usually his doctor prescribes antibiotics. I should mentioned that his doctor's specialty is infectious disease and is very proactive. We were also told to increase cpt/vest treatments to 'beat that cough' out of him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
Our doctor prefers baseline of no cough. And in DS' case if he does have a cough, it usually means he's sick. We have been told to learn his cough -- if it's a junky cough then usually his doctor prescribes antibiotics. I should mentioned that his doctor's specialty is infectious disease and is very proactive. We were also told to increase cpt/vest treatments to 'beat that cough' out of him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
Our doctor prefers baseline of no cough. And in DS' case if he does have a cough, it usually means he's sick. We have been told to learn his cough -- if it's a junky cough then usually his doctor prescribes antibiotics. I should mentioned that his doctor's specialty is infectious disease and is very proactive. We were also told to increase cpt/vest treatments to 'beat that cough' out of him.
<br />
<br />When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.
<br />
<br />When he was 3 months old and developed bronchitis, I'd sometimes do mini cpt treatments -- sitting in church, waiting for appointments... Figure extra cpt treatments aren't going to hurt him. And it actually seemed to calm him, he still falls asleep sometimes when we do manual cpt on him.