scared fo results tomorrow

proudmomof5 · Jun 24, 2009

My son had his sweat test today. He is very used to having tests done, being in the hospital, going to doctors, and taking pills that he just really doesn't ask any more. I have not told him yet that they found a lung disease or a mass growing on his lung. I also didn't tell him why he was having the sweat test. He just kinda thought it was because he sweats so much and it taste salty. I am usually honest with him, I guess I haven't truly accepted any of it and that's why. I am not sure yet if he is positive for CF, we will find out tomorrow when he is admitted for a lung biopsy,and bronchoscopy. I know I need to tell him about the lung disease, that will never go away. He is so active. He is 10 and plays football, baseball, and wrestles. I guess I am scared. I know he will not be able to do these things much longer because his breathing is getting worse, but he seems to keep going.He so tough. He talks about walking on the high school football field in 4 years and how he can not wait to be a big "bulldog". How do I tell him at 10 years old that there is a chance he might not.I can't.I am sorry, I am rambling. I do not think I am going to sleep much, I have not in the past week. I am scared. I am afraid to hear that he has Cf, and on the other hand if by the grace of God he does not my heart breaks for all of you that have it, or loved ones with it.Thank you for listening.

proudmomof5 · Jun 24, 2009

My son had his sweat test today. He is very used to having tests done, being in the hospital, going to doctors, and taking pills that he just really doesn't ask any more. I have not told him yet that they found a lung disease or a mass growing on his lung. I also didn't tell him why he was having the sweat test. He just kinda thought it was because he sweats so much and it taste salty. I am usually honest with him, I guess I haven't truly accepted any of it and that's why. I am not sure yet if he is positive for CF, we will find out tomorrow when he is admitted for a lung biopsy,and bronchoscopy. I know I need to tell him about the lung disease, that will never go away. He is so active. He is 10 and plays football, baseball, and wrestles. I guess I am scared. I know he will not be able to do these things much longer because his breathing is getting worse, but he seems to keep going.He so tough. He talks about walking on the high school football field in 4 years and how he can not wait to be a big "bulldog". How do I tell him at 10 years old that there is a chance he might not.I can't.I am sorry, I am rambling. I do not think I am going to sleep much, I have not in the past week. I am scared. I am afraid to hear that he has Cf, and on the other hand if by the grace of God he does not my heart breaks for all of you that have it, or loved ones with it.Thank you for listening.

proudmomof5 · Jun 24, 2009

My son had his sweat test today. He is very used to having tests done, being in the hospital, going to doctors, and taking pills that he just really doesn't ask any more. I have not told him yet that they found a lung disease or a mass growing on his lung. I also didn't tell him why he was having the sweat test. He just kinda thought it was because he sweats so much and it taste salty. I am usually honest with him, I guess I haven't truly accepted any of it and that's why. I am not sure yet if he is positive for CF, we will find out tomorrow when he is admitted for a lung biopsy,and bronchoscopy. I know I need to tell him about the lung disease, that will never go away. He is so active. He is 10 and plays football, baseball, and wrestles. I guess I am scared. I know he will not be able to do these things much longer because his breathing is getting worse, but he seems to keep going.He so tough. He talks about walking on the high school football field in 4 years and how he can not wait to be a big "bulldog". How do I tell him at 10 years old that there is a chance he might not.I can't.I am sorry, I am rambling. I do not think I am going to sleep much, I have not in the past week. I am scared. I am afraid to hear that he has Cf, and on the other hand if by the grace of God he does not my heart breaks for all of you that have it, or loved ones with it.Thank you for listening.

proudmomof5 · Jun 24, 2009

My son had his sweat test today. He is very used to having tests done, being in the hospital, going to doctors, and taking pills that he just really doesn't ask any more. I have not told him yet that they found a lung disease or a mass growing on his lung. I also didn't tell him why he was having the sweat test. He just kinda thought it was because he sweats so much and it taste salty. I am usually honest with him, I guess I haven't truly accepted any of it and that's why. I am not sure yet if he is positive for CF, we will find out tomorrow when he is admitted for a lung biopsy,and bronchoscopy. I know I need to tell him about the lung disease, that will never go away. He is so active. He is 10 and plays football, baseball, and wrestles. I guess I am scared. I know he will not be able to do these things much longer because his breathing is getting worse, but he seems to keep going.He so tough. He talks about walking on the high school football field in 4 years and how he can not wait to be a big "bulldog". How do I tell him at 10 years old that there is a chance he might not.I can't.I am sorry, I am rambling. I do not think I am going to sleep much, I have not in the past week. I am scared. I am afraid to hear that he has Cf, and on the other hand if by the grace of God he does not my heart breaks for all of you that have it, or loved ones with it.Thank you for listening.

proudmomof5 · Jun 24, 2009

My son had his sweat test today. He is very used to having tests done, being in the hospital, going to doctors, and taking pills that he just really doesn't ask any more. I have not told him yet that they found a lung disease or a mass growing on his lung. I also didn't tell him why he was having the sweat test. He just kinda thought it was because he sweats so much and it taste salty. I am usually honest with him, I guess I haven't truly accepted any of it and that's why. I am not sure yet if he is positive for CF, we will find out tomorrow when he is admitted for a lung biopsy,and bronchoscopy. I know I need to tell him about the lung disease, that will never go away. He is so active. He is 10 and plays football, baseball, and wrestles. I guess I am scared. I know he will not be able to do these things much longer because his breathing is getting worse, but he seems to keep going.He so tough. He talks about walking on the high school football field in 4 years and how he can not wait to be a big "bulldog". How do I tell him at 10 years old that there is a chance he might not.I can't.I am sorry, I am rambling. I do not think I am going to sleep much, I have not in the past week. I am scared. I am afraid to hear that he has Cf, and on the other hand if by the grace of God he does not my heart breaks for all of you that have it, or loved ones with it.Thank you for listening.

JazzysMom · Jun 24, 2009

BREATHE~!

What do you do?? Well lets start with what you DONT do~~~
You dont tell him he cant or might not. You keep encouraging him to work hard on his exercise & sports.

As you learn of the dx & need to incorporate treatments you do so. Never at any point giving the idea that he shouldnt keep striving for what he wants.

There is NO way to know what he can or cant do in 4 years. As for his breathing.....it could very well imnprove once he has a dx & the correct meds.

HUGAS

JazzysMom · Jun 24, 2009

BREATHE~!

What do you do?? Well lets start with what you DONT do~~~
You dont tell him he cant or might not. You keep encouraging him to work hard on his exercise & sports.

As you learn of the dx & need to incorporate treatments you do so. Never at any point giving the idea that he shouldnt keep striving for what he wants.

There is NO way to know what he can or cant do in 4 years. As for his breathing.....it could very well imnprove once he has a dx & the correct meds.

HUGAS

JazzysMom · Jun 24, 2009

BREATHE~!

What do you do?? Well lets start with what you DONT do~~~
You dont tell him he cant or might not. You keep encouraging him to work hard on his exercise & sports.

As you learn of the dx & need to incorporate treatments you do so. Never at any point giving the idea that he shouldnt keep striving for what he wants.

There is NO way to know what he can or cant do in 4 years. As for his breathing.....it could very well imnprove once he has a dx & the correct meds.

HUGAS

JazzysMom · Jun 24, 2009

BREATHE~!

What do you do?? Well lets start with what you DONT do~~~
You dont tell him he cant or might not. You keep encouraging him to work hard on his exercise & sports.

As you learn of the dx & need to incorporate treatments you do so. Never at any point giving the idea that he shouldnt keep striving for what he wants.

There is NO way to know what he can or cant do in 4 years. As for his breathing.....it could very well imnprove once he has a dx & the correct meds.

HUGAS

JazzysMom · Jun 24, 2009

BREATHE~!
 
 What do you do?? Well lets start with what you DONT do~~~
 You dont tell him he cant or might not. You keep encouraging him to work hard on his exercise & sports.
 
 As you learn of the dx & need to incorporate treatments you do so. Never at any point giving the idea that he shouldnt keep striving for what he wants.
 
 There is NO way to know what he can or cant do in 4 years. As for his breathing.....it could very well imnprove once he has a dx & the correct meds.
 
 HUGAS

Buckeye · Jun 24, 2009

I would suggest speaking with a social worker or psychologist at the hospital to find out the best way to bring this up with your son. They deal all the time with kids with cancer and other major illnesses so they should know what is appropriate to tell a 10 year old and how to approach it.I would think telling him all the things that you think he won't be able to do is not the right approach though. You really don't know that he won't be able to do the things that he wants to do and besides that that approach would depress the heck out of me and I'm a lot older than 10.Good luck on the tests today.

Buckeye · Jun 24, 2009

I would suggest speaking with a social worker or psychologist at the hospital to find out the best way to bring this up with your son. They deal all the time with kids with cancer and other major illnesses so they should know what is appropriate to tell a 10 year old and how to approach it.I would think telling him all the things that you think he won't be able to do is not the right approach though. You really don't know that he won't be able to do the things that he wants to do and besides that that approach would depress the heck out of me and I'm a lot older than 10.Good luck on the tests today.

Buckeye · Jun 24, 2009

I would suggest speaking with a social worker or psychologist at the hospital to find out the best way to bring this up with your son. They deal all the time with kids with cancer and other major illnesses so they should know what is appropriate to tell a 10 year old and how to approach it.I would think telling him all the things that you think he won't be able to do is not the right approach though. You really don't know that he won't be able to do the things that he wants to do and besides that that approach would depress the heck out of me and I'm a lot older than 10.Good luck on the tests today.

Buckeye · Jun 24, 2009

I would suggest speaking with a social worker or psychologist at the hospital to find out the best way to bring this up with your son. They deal all the time with kids with cancer and other major illnesses so they should know what is appropriate to tell a 10 year old and how to approach it.I would think telling him all the things that you think he won't be able to do is not the right approach though. You really don't know that he won't be able to do the things that he wants to do and besides that that approach would depress the heck out of me and I'm a lot older than 10.Good luck on the tests today.

Buckeye · Jun 24, 2009

I would suggest speaking with a social worker or psychologist at the hospital to find out the best way to bring this up with your son. They deal all the time with kids with cancer and other major illnesses so they should know what is appropriate to tell a 10 year old and how to approach it.I would think telling him all the things that you think he won't be able to do is not the right approach though. You really don't know that he won't be able to do the things that he wants to do and besides that that approach would depress the heck out of me and I'm a lot older than 10.Good luck on the tests today.

brewz2 · Jun 24, 2009

I know it's a scary time right now, but try to focus on the present, and not the future right now. Wait to find out the results - there's no sense in worrying about tomrrow's problems. If it is CF, then he'll be on the road to feeling better by having the proper care, just like Melissa said. There are so many meds and treatments that will help him with his breathing.

Both of my children have CF, and the last thing I'm going to do is limit their future. Obstacles and set backs may come up, but I drill in them that there's nothing that they can't accomplish, and to reach for the stars. If you look into some of the history of people that have CF, you'll realize that anything is possible. People run marathons, and play all kinds of sports. Try not to let yourself feel hopless. Actually, doctors will tell you that exercise is the best thing for people with CF.

Again, take it one day at a time, and if you have any questions, please ask away on here - there's tons of people with wonderful advice.

Tracey, mom to Sydney, 8 w/cf & asthma and Seth 4, w/cf - Both DDF508

brewz2 · Jun 24, 2009

I know it's a scary time right now, but try to focus on the present, and not the future right now. Wait to find out the results - there's no sense in worrying about tomrrow's problems. If it is CF, then he'll be on the road to feeling better by having the proper care, just like Melissa said. There are so many meds and treatments that will help him with his breathing.

Both of my children have CF, and the last thing I'm going to do is limit their future. Obstacles and set backs may come up, but I drill in them that there's nothing that they can't accomplish, and to reach for the stars. If you look into some of the history of people that have CF, you'll realize that anything is possible. People run marathons, and play all kinds of sports. Try not to let yourself feel hopless. Actually, doctors will tell you that exercise is the best thing for people with CF.

Again, take it one day at a time, and if you have any questions, please ask away on here - there's tons of people with wonderful advice.

Tracey, mom to Sydney, 8 w/cf & asthma and Seth 4, w/cf - Both DDF508

brewz2 · Jun 24, 2009

I know it's a scary time right now, but try to focus on the present, and not the future right now. Wait to find out the results - there's no sense in worrying about tomrrow's problems. If it is CF, then he'll be on the road to feeling better by having the proper care, just like Melissa said. There are so many meds and treatments that will help him with his breathing.

Both of my children have CF, and the last thing I'm going to do is limit their future. Obstacles and set backs may come up, but I drill in them that there's nothing that they can't accomplish, and to reach for the stars. If you look into some of the history of people that have CF, you'll realize that anything is possible. People run marathons, and play all kinds of sports. Try not to let yourself feel hopless. Actually, doctors will tell you that exercise is the best thing for people with CF.

Again, take it one day at a time, and if you have any questions, please ask away on here - there's tons of people with wonderful advice.

Tracey, mom to Sydney, 8 w/cf & asthma and Seth 4, w/cf - Both DDF508

brewz2 · Jun 24, 2009

I know it's a scary time right now, but try to focus on the present, and not the future right now. Wait to find out the results - there's no sense in worrying about tomrrow's problems. If it is CF, then he'll be on the road to feeling better by having the proper care, just like Melissa said. There are so many meds and treatments that will help him with his breathing.

Both of my children have CF, and the last thing I'm going to do is limit their future. Obstacles and set backs may come up, but I drill in them that there's nothing that they can't accomplish, and to reach for the stars. If you look into some of the history of people that have CF, you'll realize that anything is possible. People run marathons, and play all kinds of sports. Try not to let yourself feel hopless. Actually, doctors will tell you that exercise is the best thing for people with CF.

Again, take it one day at a time, and if you have any questions, please ask away on here - there's tons of people with wonderful advice.

Tracey, mom to Sydney, 8 w/cf & asthma and Seth 4, w/cf - Both DDF508

brewz2 · Jun 24, 2009

I know it's a scary time right now, but try to focus on the present, and not the future right now. Wait to find out the results - there's no sense in worrying about tomrrow's problems. If it is CF, then he'll be on the road to feeling better by having the proper care, just like Melissa said. There are so many meds and treatments that will help him with his breathing.
 
 Both of my children have CF, and the last thing I'm going to do is limit their future. Obstacles and set backs may come up, but I drill in them that there's nothing that they can't accomplish, and to reach for the stars. If you look into some of the history of people that have CF, you'll realize that anything is possible. People run marathons, and play all kinds of sports. Try not to let yourself feel hopless. Actually, doctors will tell you that exercise is the best thing for people with CF.
 
 Again, take it one day at a time, and if you have any questions, please ask away on here - there's tons of people with wonderful advice.
 
 Tracey, mom to Sydney, 8 w/cf & asthma and Seth 4, w/cf - Both DDF508

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