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Scared for my son
- Thread starter mlbsmom
- Start date
clawson5104
New member
Some of these symptoms are similar to my son's. I was just very very persistant.
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
clawson5104
New member
Some of these symptoms are similar to my son's. I was just very very persistant.
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
clawson5104
New member
Some of these symptoms are similar to my son's. I was just very very persistant.
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
clawson5104
New member
Some of these symptoms are similar to my son's. I was just very very persistant.
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
clawson5104
New member
Some of these symptoms are similar to my son's. I was just very very persistant.
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
His sweat test was 43, borderline. But from what my CF nurse says, if the doctor has a reason for concern medicaid will pay for tests, quicker than a private insurance. My son was on medicaid at the time, and now on CHIPS which is state children's insurance...and I NEVER had trouble with medicaid covering anything a doctor ordered. Now EVERYTHING takes approval. I would definitely talk to the doctor & push for ambry test. It's worth the fight. I hope you get some answers soon. Good Luck and God Bless
All i have to say is when mom and dad broke up i had to stay with my grandma and when my dad finally got costed of me I was not so happy he did not know much so!!! he married my step mom and she got a crash corse so i was o happy when she di cause now i very happy and healty so what i really saying is Good luck it is hard to take care of people like us!!!!
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
All i have to say is when mom and dad broke up i had to stay with my grandma and when my dad finally got costed of me I was not so happy he did not know much so!!! he married my step mom and she got a crash corse so i was o happy when she di cause now i very happy and healty so what i really saying is Good luck it is hard to take care of people like us!!!!
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
All i have to say is when mom and dad broke up i had to stay with my grandma and when my dad finally got costed of me I was not so happy he did not know much so!!! he married my step mom and she got a crash corse so i was o happy when she di cause now i very happy and healty so what i really saying is Good luck it is hard to take care of people like us!!!!
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
All i have to say is when mom and dad broke up i had to stay with my grandma and when my dad finally got costed of me I was not so happy he did not know much so!!! he married my step mom and she got a crash corse so i was o happy when she di cause now i very happy and healty so what i really saying is Good luck it is hard to take care of people like us!!!!
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
All i have to say is when mom and dad broke up i had to stay with my grandma and when my dad finally got costed of me I was not so happy he did not know much so!!! he married my step mom and she got a crash corse so i was o happy when she di cause now i very happy and healty so what i really saying is Good luck it is hard to take care of people like us!!!!
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
But don't give up I have faith in you!!!
By the way I nora smith I got dignosed in 1995 and also had the sweat test also.
I'm only 12 amlost 13 in jan.
Just a little avdise he will have troulbe just comfort him and he be ok just like my mom did!!!!!
GOOD LUCK!!!!!!!!!!!!!!!!!(sad vvery sad emotion
V
valigirl21
Guest
YES!!!!!!! I can totally relate 2 that! Currentlywe are waiting for my son's full panel genetics test to come back with a difinitive diagnosis. Did I mention ha's already eight! The symptoms have been there sincce birth, and it was actually suggested that a sweat test be done when he was 8 mths old, but was forgotten in leui of an asthma diagnosis. It was his GI doc that finally ordered the test. It's the worstthing waiting for these results. His sweat tests were borderline (3 of them) and the first genetics panel came back negative. I was so hopeful and then the pulmonologist said that we weren't clear yet as he still thinks my son has cf. This is a great place togather pretty accurate info from those in the trenches though so ask any questions you have here and at your doc's. As for the Medicaid thing my son is being seen at an accredited facility and he has Medicaid. so check with you local provider to see what the rules are in your state.
V
valigirl21
Guest
YES!!!!!!! I can totally relate 2 that! Currentlywe are waiting for my son's full panel genetics test to come back with a difinitive diagnosis. Did I mention ha's already eight! The symptoms have been there sincce birth, and it was actually suggested that a sweat test be done when he was 8 mths old, but was forgotten in leui of an asthma diagnosis. It was his GI doc that finally ordered the test. It's the worstthing waiting for these results. His sweat tests were borderline (3 of them) and the first genetics panel came back negative. I was so hopeful and then the pulmonologist said that we weren't clear yet as he still thinks my son has cf. This is a great place togather pretty accurate info from those in the trenches though so ask any questions you have here and at your doc's. As for the Medicaid thing my son is being seen at an accredited facility and he has Medicaid. so check with you local provider to see what the rules are in your state.
V
valigirl21
Guest
YES!!!!!!! I can totally relate 2 that! Currentlywe are waiting for my son's full panel genetics test to come back with a difinitive diagnosis. Did I mention ha's already eight! The symptoms have been there sincce birth, and it was actually suggested that a sweat test be done when he was 8 mths old, but was forgotten in leui of an asthma diagnosis. It was his GI doc that finally ordered the test. It's the worstthing waiting for these results. His sweat tests were borderline (3 of them) and the first genetics panel came back negative. I was so hopeful and then the pulmonologist said that we weren't clear yet as he still thinks my son has cf. This is a great place togather pretty accurate info from those in the trenches though so ask any questions you have here and at your doc's. As for the Medicaid thing my son is being seen at an accredited facility and he has Medicaid. so check with you local provider to see what the rules are in your state.
V
valigirl21
Guest
YES!!!!!!! I can totally relate 2 that! Currentlywe are waiting for my son's full panel genetics test to come back with a difinitive diagnosis. Did I mention ha's already eight! The symptoms have been there sincce birth, and it was actually suggested that a sweat test be done when he was 8 mths old, but was forgotten in leui of an asthma diagnosis. It was his GI doc that finally ordered the test. It's the worstthing waiting for these results. His sweat tests were borderline (3 of them) and the first genetics panel came back negative. I was so hopeful and then the pulmonologist said that we weren't clear yet as he still thinks my son has cf. This is a great place togather pretty accurate info from those in the trenches though so ask any questions you have here and at your doc's. As for the Medicaid thing my son is being seen at an accredited facility and he has Medicaid. so check with you local provider to see what the rules are in your state.
V
valigirl21
Guest
YES!!!!!!! I can totally relate 2 that! Currentlywe are waiting for my son's full panel genetics test to come back with a difinitive diagnosis. Did I mention ha's already eight! The symptoms have been there sincce birth, and it was actually suggested that a sweat test be done when he was 8 mths old, but was forgotten in leui of an asthma diagnosis. It was his GI doc that finally ordered the test. It's the worstthing waiting for these results. His sweat tests were borderline (3 of them) and the first genetics panel came back negative. I was so hopeful and then the pulmonologist said that we weren't clear yet as he still thinks my son has cf. This is a great place togather pretty accurate info from those in the trenches though so ask any questions you have here and at your doc's. As for the Medicaid thing my son is being seen at an accredited facility and he has Medicaid. so check with you local provider to see what the rules are in your state.