Scared for my son

[mlbsmom]

Mason's results have come back and it's a 29. The nurse said that they consider normal range up to 49, and that there wasn't any need for further testing. They seemed like it was ridiculous that I even asked and that insurance wouldnt pay for it anyway with it being in the normal range.

So I guess I will just hope that they are right and maybe I will have the money one day to get the testing done myself.

Thank you your help and I wish you and your families the best of luck.

 

[mlbsmom]

Mason's results have come back and it's a 29. The nurse said that they consider normal range up to 49, and that there wasn't any need for further testing. They seemed like it was ridiculous that I even asked and that insurance wouldnt pay for it anyway with it being in the normal range.

So I guess I will just hope that they are right and maybe I will have the money one day to get the testing done myself.

Thank you your help and I wish you and your families the best of luck.

 

[mlbsmom]

Mason's results have come back and it's a 29. The nurse said that they consider normal range up to 49, and that there wasn't any need for further testing. They seemed like it was ridiculous that I even asked and that insurance wouldnt pay for it anyway with it being in the normal range.

So I guess I will just hope that they are right and maybe I will have the money one day to get the testing done myself.

Thank you your help and I wish you and your families the best of luck.

 

[mlbsmom]

Mason's results have come back and it's a 29. The nurse said that they consider normal range up to 49, and that there wasn't any need for further testing. They seemed like it was ridiculous that I even asked and that insurance wouldnt pay for it anyway with it being in the normal range.

So I guess I will just hope that they are right and maybe I will have the money one day to get the testing done myself.

Thank you your help and I wish you and your families the best of luck.

 

[mlbsmom]

Mason's results have come back and it's a 29. The nurse said that they consider normal range up to 49, and that there wasn't any need for further testing. They seemed like it was ridiculous that I even asked and that insurance wouldnt pay for it anyway with it being in the normal range.

So I guess I will just hope that they are right and maybe I will have the money one day to get the testing done myself.

Thank you your help and I wish you and your families the best of luck.

 

[Landy]

I'm glad the test came back w/i normal range. I'm sure this is a huge weight off of your shoulders.
I hope this is a true indication that he doesn't have CF, going off of what Alyssa said.

Do you think it's possible that your son would benefit from taking enzymes. I'm assuming his food isn't getting properly digested? A lot of us around here have digestive issues & the enzymes sure help. My doctor even suggests that I take Miralax in addition to the enzymes. Have doctors ever mentioned your son doing that? May be worth asking about...

 

[Landy]

I'm glad the test came back w/i normal range. I'm sure this is a huge weight off of your shoulders.
I hope this is a true indication that he doesn't have CF, going off of what Alyssa said.

Do you think it's possible that your son would benefit from taking enzymes. I'm assuming his food isn't getting properly digested? A lot of us around here have digestive issues & the enzymes sure help. My doctor even suggests that I take Miralax in addition to the enzymes. Have doctors ever mentioned your son doing that? May be worth asking about...

 

[Landy]

I'm glad the test came back w/i normal range. I'm sure this is a huge weight off of your shoulders.
I hope this is a true indication that he doesn't have CF, going off of what Alyssa said.

Do you think it's possible that your son would benefit from taking enzymes. I'm assuming his food isn't getting properly digested? A lot of us around here have digestive issues & the enzymes sure help. My doctor even suggests that I take Miralax in addition to the enzymes. Have doctors ever mentioned your son doing that? May be worth asking about...

 

[Landy]

I'm glad the test came back w/i normal range. I'm sure this is a huge weight off of your shoulders.
I hope this is a true indication that he doesn't have CF, going off of what Alyssa said.

Do you think it's possible that your son would benefit from taking enzymes. I'm assuming his food isn't getting properly digested? A lot of us around here have digestive issues & the enzymes sure help. My doctor even suggests that I take Miralax in addition to the enzymes. Have doctors ever mentioned your son doing that? May be worth asking about...

 

[Landy]

I'm glad the test came back w/i normal range. I'm sure this is a huge weight off of your shoulders.
I hope this is a true indication that he doesn't have CF, going off of what Alyssa said.

Do you think it's possible that your son would benefit from taking enzymes. I'm assuming his food isn't getting properly digested? A lot of us around here have digestive issues & the enzymes sure help. My doctor even suggests that I take Miralax in addition to the enzymes. Have doctors ever mentioned your son doing that? May be worth asking about...

 

[mlbsmom]

Thanks Lynda, after reading up on enzymes I think they are definately worth a try!

Does anyone know of the best over the counter brand to buy? There is a health food store in my area that has Pioneer digestive enzymes at a pretty good price.

 

[mlbsmom]

Thanks Lynda, after reading up on enzymes I think they are definately worth a try!

Does anyone know of the best over the counter brand to buy? There is a health food store in my area that has Pioneer digestive enzymes at a pretty good price.

 

[mlbsmom]

Thanks Lynda, after reading up on enzymes I think they are definately worth a try!

Does anyone know of the best over the counter brand to buy? There is a health food store in my area that has Pioneer digestive enzymes at a pretty good price.

 

[mlbsmom]

Thanks Lynda, after reading up on enzymes I think they are definately worth a try!

Does anyone know of the best over the counter brand to buy? There is a health food store in my area that has Pioneer digestive enzymes at a pretty good price.

 

[mlbsmom]

Thanks Lynda, after reading up on enzymes I think they are definately worth a try!

Does anyone know of the best over the counter brand to buy? There is a health food store in my area that has Pioneer digestive enzymes at a pretty good price.

 

[Alyssa]

I really think you should not give up on the idea of pushing for genetic testing -- my daughter's sweat test was in the normal range and they still paid for genetic testing - check it out yourself - I think you may have been misinformed by someone at the doctor's office. Ask to speak directly to the doctor and tell him that you have communicated with several people (start a new threat in the adult & families section for specifically people with normal sweat tests - you'll get results) or just search the archives here -- I am far from the only person on here with this story ....

Please keep pushing - any way possible. At the very least find out what you need to do to get to an accredited facility for a second opinion (GI & Pulmonologist) Get them to re-do the sweat test -- I would venture a guess that if a doctor says it is medically necessary to order a genetic test, than you will get it paid for -- <i>perhaps a doctor at an accredited facility will be more willing to work with you</i>, since they are more likely to have seen for themselves that not everyone with CF has a clearly positive sweat test result!!

I wish you well.

 

[Alyssa]

I really think you should not give up on the idea of pushing for genetic testing -- my daughter's sweat test was in the normal range and they still paid for genetic testing - check it out yourself - I think you may have been misinformed by someone at the doctor's office. Ask to speak directly to the doctor and tell him that you have communicated with several people (start a new threat in the adult & families section for specifically people with normal sweat tests - you'll get results) or just search the archives here -- I am far from the only person on here with this story ....

Please keep pushing - any way possible. At the very least find out what you need to do to get to an accredited facility for a second opinion (GI & Pulmonologist) Get them to re-do the sweat test -- I would venture a guess that if a doctor says it is medically necessary to order a genetic test, than you will get it paid for -- <i>perhaps a doctor at an accredited facility will be more willing to work with you</i>, since they are more likely to have seen for themselves that not everyone with CF has a clearly positive sweat test result!!

I wish you well.

 

[Alyssa]

I really think you should not give up on the idea of pushing for genetic testing -- my daughter's sweat test was in the normal range and they still paid for genetic testing - check it out yourself - I think you may have been misinformed by someone at the doctor's office. Ask to speak directly to the doctor and tell him that you have communicated with several people (start a new threat in the adult & families section for specifically people with normal sweat tests - you'll get results) or just search the archives here -- I am far from the only person on here with this story ....

Please keep pushing - any way possible. At the very least find out what you need to do to get to an accredited facility for a second opinion (GI & Pulmonologist) Get them to re-do the sweat test -- I would venture a guess that if a doctor says it is medically necessary to order a genetic test, than you will get it paid for -- <i>perhaps a doctor at an accredited facility will be more willing to work with you</i>, since they are more likely to have seen for themselves that not everyone with CF has a clearly positive sweat test result!!

I wish you well.

 

[Alyssa]

I really think you should not give up on the idea of pushing for genetic testing -- my daughter's sweat test was in the normal range and they still paid for genetic testing - check it out yourself - I think you may have been misinformed by someone at the doctor's office. Ask to speak directly to the doctor and tell him that you have communicated with several people (start a new threat in the adult & families section for specifically people with normal sweat tests - you'll get results) or just search the archives here -- I am far from the only person on here with this story ....

Please keep pushing - any way possible. At the very least find out what you need to do to get to an accredited facility for a second opinion (GI & Pulmonologist) Get them to re-do the sweat test -- I would venture a guess that if a doctor says it is medically necessary to order a genetic test, than you will get it paid for -- <i>perhaps a doctor at an accredited facility will be more willing to work with you</i>, since they are more likely to have seen for themselves that not everyone with CF has a clearly positive sweat test result!!

I wish you well.

 

[Alyssa]

I really think you should not give up on the idea of pushing for genetic testing -- my daughter's sweat test was in the normal range and they still paid for genetic testing - check it out yourself - I think you may have been misinformed by someone at the doctor's office. Ask to speak directly to the doctor and tell him that you have communicated with several people (start a new threat in the adult & families section for specifically people with normal sweat tests - you'll get results) or just search the archives here -- I am far from the only person on here with this story ....

Please keep pushing - any way possible. At the very least find out what you need to do to get to an accredited facility for a second opinion (GI & Pulmonologist) Get them to re-do the sweat test -- I would venture a guess that if a doctor says it is medically necessary to order a genetic test, than you will get it paid for -- <i>perhaps a doctor at an accredited facility will be more willing to work with you</i>, since they are more likely to have seen for themselves that not everyone with CF has a clearly positive sweat test result!!

I wish you well.