hey Jamie! My name is Sarah. My daughter Zoey is 8 1/2 months old with cf. We attend the CF clinic in Dallas also. Zoey's doc is Dr. Prestige. They are really sweet over there. What is your daughters doctors name? I can't believe I finally found someone who goes to the childrens medical center in dallas on this site!!! Do you live in Dallas?
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J
JamieB
Guest
Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
J
JamieB
Guest
Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
J
JamieB
Guest
Zoey -
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
We haven't been to the clinic yet. When I called to make an appointment today, I was told to wait until we have the results from our 2nd sweat test - which is scheduled for tomorrow. We live in Frisco.
Jamie
J
JamieB
Guest
Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
J
JamieB
Guest
Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
J
JamieB
Guest
Finally the results are in - 28 & 31. The doctor is going to take the results from this last test and feels she does not have CF. He had no idea why the first test was so high ( at another hospital).
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
Everyone - thank you for the kind words. This web site/forum is great. I found most of my info about the disease just from reading these message boards.
Jamie
momofmarcus
New member
I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!
momofmarcus
New member
I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!
momofmarcus
New member
I just read your message. My son only had digestive symptoms when he was diagnosted and a small runny nose. When they told me they wanted to do a sweat test to see if he had CF I thought there is no way cause all of the people that I had heard of that had CF were really sick all the time and all he had were these symptoms. However he did come out positive and at 9 1/2 years old he is doing very well he have only been hospitalized twice in the past 9 years. And that was for the Rota virus and impacted sinus. nothing serious. If She is diagnosted It will be some of a relief and then you will be scared. However He is doing great. He plays football in the winter,basketball and baseball in the spring. Let me know ifyou need to talk my email is smilesfromcj@aol.com take care stay healthy!
blondi4cf37
New member
i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!
blondi4cf37
New member
i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!
blondi4cf37
New member
i am so sorry i have cf im 11 i will be 12 but im always here for any info ive known since i was three months old im am so sorry you are in my prayers!
blondi4cf37
New member
hey i also went through the same stuff i feel so bad i have really only been scared once but thats b/c i have god on my si go head and talk to me whenever here is my msn name blondi4jesus37@hotmail.com go ahesd and talk any time i love you and you have my support bye.