my child does have a good quality of life. And all people with cf are differant. I know a teacher here that has been sick all his life and is now in his 30's and just now been diagnosed w/cf. You might have never had pseudo or have had once. My friend was born with it. My daughter can not take the meds that fight it. she is allergic to them. My daughter has the best of both worlds she can go to school if she feels like it or stay at home with a home school teacher and not be counted against her or get behind on her studies. There are some mean teachers in the school systems and parents can not do anything about them if they are a vested teacher with the system. My son stayed all day with a terrible ear infection and the teacher did not call me. She kept telling him that maybe that he would get to feeling better after lunch. He didn't. I am not going to subject my daughter to a teacher that upfront tells me that she is going to alert me to my daughters needs and then just blow it off when I walk out the door. Last year we went for a indoor activitity, which ended up being outside. I had to be in a meeting with the principal. The teacher asked me about her going outside. My daughter is real prone for heat strokes. I told her that. I also told her that I brought a towel if they went out for her to make it slightly damp and put it around her neck. She said don't worry, I will watch her, she will be just fine. Needless to say I came back from my meeting and the teacher was in her room with some other teachers talking. I asked her where my daughter was and when I seen her she so sick. Other people are not going to care for your child like you are. They just do not care. They do not take the time to stop and think because it is not part of their daily thing. I am making my daughters quality of life the best that is possible. I would much rather her be at home, away from people that are not there for her best interest and see her feel good and enjoy life and be able to ride her bike in the summer and swim in her pool and play with her animals. Then spend time in the hospital with tubes in her stomach just so that we can run back and forth 2 hours both ways to the cf clinic just to find out if she gained half a pound. I think that is a much better quality of life than being sick. Who knows how long anyone of us has on this earth anyway. Anyone of us might have cancer or any life threathing illness that could take us out at any minute. But I feel as a parent you need to protect your children, and these are things that I know for a fact that would kill her quicker if I sent her into the lions den. Just because you made it to be 20 does not mean that you have done everything right or wrong. Your case of cf might be differant than that of my childs. We just lost a child here last week that was 8 years old to cf. That never got to do anything, because he stayed sick all the time and stayed in the hospital. Don't be so quick to lay judgement down on others for the way things are. Not everything works the same way for everybody. That what makes the world go around.