SCARED to death not sure where to go from here

point

New member
Hello -- Wanted to throw in my thoughts of encouragement.

I can not imagine what it must be like to hear about the diagnosis. I was the one being diagnosed. But, I can give you a similar reality check as a few other "older" CF patients already have given. I am 29, and in great health. I have two older brothers (34 and 31) also with CF who are doing great. I know someone else who has three bros - all in their 40's doing well. I graduated from college, work a full time 40+ hr job in a great career. I am married and plan to have a family - someday soon. I watch what I eat (making sure I get plenty of high nutritious/ high calorie foods). I exercise weekly. I take enzymes when I eat, and I do daily physiotherapy. I grew up when we had nothing but enzymes and an antibiotic if we were really sick. Times have changed and the disease outlook has changed. While I can't imagine how difficult it must be to struggle and accept a diagnosis, I wanted to add some light to the topic to tell you that many of us are living our lives and not just trying to live. Keep your chin up and Kudos to you for being proactive for your child! <img src="i/expressions/heart.gif" border="0">

Best Wishes and Much Strength. Sincerely, Christina
 

point

New member
Hello -- Wanted to throw in my thoughts of encouragement.

I can not imagine what it must be like to hear about the diagnosis. I was the one being diagnosed. But, I can give you a similar reality check as a few other "older" CF patients already have given. I am 29, and in great health. I have two older brothers (34 and 31) also with CF who are doing great. I know someone else who has three bros - all in their 40's doing well. I graduated from college, work a full time 40+ hr job in a great career. I am married and plan to have a family - someday soon. I watch what I eat (making sure I get plenty of high nutritious/ high calorie foods). I exercise weekly. I take enzymes when I eat, and I do daily physiotherapy. I grew up when we had nothing but enzymes and an antibiotic if we were really sick. Times have changed and the disease outlook has changed. While I can't imagine how difficult it must be to struggle and accept a diagnosis, I wanted to add some light to the topic to tell you that many of us are living our lives and not just trying to live. Keep your chin up and Kudos to you for being proactive for your child! <img src="i/expressions/heart.gif" border="0">

Best Wishes and Much Strength. Sincerely, Christina
 
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