Hi. I have a 7 year old son. We recently moved to a new state. My son had a cough that wouldn't go away and the first time seeing this Pediatrician she starts talking about how little my son is and because he was diagnosed with Pneumonia and Bronchitis within the past year and a few other issues when he was little that required Albuterol, she said wanted to test him for Cystic Fibrosis if he didn't get better in two weeks. Well, he got better and I requested a different doctor in the same group. He diagnosed Asthma and said nothing about Cystic Fibrosis. However, a month later he is now sick again. Started off like a cold but it is just lingering (like a lot of his colds). He was tested for CF as a newborn and he tested Negative. When he was born he the same weight as my daughter (6 pounds) and he was a chubby baby until I quit breastfeeding and then he lost a lot of weight. He did have reflux when he was born and took medicine for that. He is in the 5th percentile for his Height and 3rd percentile for his weight. I try to push food on him all the time but he just isn't a big eater. My point is my husband and I are short people. My husband is 5'5 and I am 5'2. I have this knot in my stomach and I really hate that I might have to bring him back to the doctor soon. I know this post is skipping around and sorts but I am just sick about my son. I feel like in the pit of my stomach he might have Cystic Fibrosis with everything that I have read. I am really scared to bring him back to the doctor. I don't think I a am asking a question here but maybe someone can tell me something to help me over this next hurdle.
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Scared to get son tested
- Thread starter anitapia
- Start date
Hi. I have a 7 year old son. We recently moved to a new state. My son had a cough that wouldn't go away and the first time seeing this Pediatrician she starts talking about how little my son is and because he was diagnosed with Pneumonia and Bronchitis within the past year and a few other issues when he was little that required Albuterol, she said wanted to test him for Cystic Fibrosis if he didn't get better in two weeks. Well, he got better and I requested a different doctor in the same group. He diagnosed Asthma and said nothing about Cystic Fibrosis. However, a month later he is now sick again. Started off like a cold but it is just lingering (like a lot of his colds). He was tested for CF as a newborn and he tested Negative. When he was born he the same weight as my daughter (6 pounds) and he was a chubby baby until I quit breastfeeding and then he lost a lot of weight. He did have reflux when he was born and took medicine for that. He is in the 5th percentile for his Height and 3rd percentile for his weight. I try to push food on him all the time but he just isn't a big eater. My point is my husband and I are short people. My husband is 5'5 and I am 5'2. I have this knot in my stomach and I really hate that I might have to bring him back to the doctor soon. I know this post is skipping around and sorts but I am just sick about my son. I feel like in the pit of my stomach he might have Cystic Fibrosis with everything that I have read. I am really scared to bring him back to the doctor. I don't think I a am asking a question here but maybe someone can tell me something to help me over this next hurdle.
Hi. I have a 7 year old son. We recently moved to a new state. My son had a cough that wouldn't go away and the first time seeing this Pediatrician she starts talking about how little my son is and because he was diagnosed with Pneumonia and Bronchitis within the past year and a few other issues when he was little that required Albuterol, she said wanted to test him for Cystic Fibrosis if he didn't get better in two weeks. Well, he got better and I requested a different doctor in the same group. He diagnosed Asthma and said nothing about Cystic Fibrosis. However, a month later he is now sick again. Started off like a cold but it is just lingering (like a lot of his colds). He was tested for CF as a newborn and he tested Negative. When he was born he the same weight as my daughter (6 pounds) and he was a chubby baby until I quit breastfeeding and then he lost a lot of weight. He did have reflux when he was born and took medicine for that. He is in the 5th percentile for his Height and 3rd percentile for his weight. I try to push food on him all the time but he just isn't a big eater. My point is my husband and I are short people. My husband is 5'5 and I am 5'2. I have this knot in my stomach and I really hate that I might have to bring him back to the doctor soon. I know this post is skipping around and sorts but I am just sick about my son. I feel like in the pit of my stomach he might have Cystic Fibrosis with everything that I have read. I am really scared to bring him back to the doctor. I don't think I a am asking a question here but maybe someone can tell me something to help me over this next hurdle.
I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was hard to accept. But once we knew, we were able to take control over her health and start treating her appropriately and that was huge.
Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was hard to accept. But once we knew, we were able to take control over her health and start treating her appropriately and that was huge.
Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was hard to accept. But once we knew, we were able to take control over her health and start treating her appropriately and that was huge.
<br />
<br />Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
<br />
<br />I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
<br />
<br />Something that is important to remember is this: whatever is going on with your son is already there, and already impacting his health, already potentially causing damage (no matter what it is.) Testing will give it a name, which is understandably intimidating- but will also give you ways to HELP him. Knowledge is power and the right knowledge can immensely improve prognosis and quality of life- not just for CF but for chronic illness in general.
<br />
<br />I'd try to move forward and get this over with, so to speak, as soon as you are able to bring yourself to... since the contemplation/dreading is so stressful and exhausting. In looking into testing- i.e. if the pediatrician orders a sweat test- don't just take him to a local lab- be sure that it's done through an accredited CF center (generally a large Children's hospital in your area.) We are here to answer any more questions you have about testing, etc. Wishing the very best. <img src="i/expressions/rose.gif" border="0">
M
Mommafirst
Guest
I think everyone on this board can understand the fear of hearing the words cystic fibrosis related to your child. We were all overwhelmed and taken down by this diagnosis. CF is there whether one knows or not. It takes its toll without proper care -- so knowing is ESSENTIAL!! Denial and avoidance are normal, natural phases in grieving over this kind of diagnosis. So what you are feeling is normal, but please don't let that fear guide you away from getting answers.
Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
((((HUGS)))
Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
((((HUGS)))
M
Mommafirst
Guest
I think everyone on this board can understand the fear of hearing the words cystic fibrosis related to your child. We were all overwhelmed and taken down by this diagnosis. CF is there whether one knows or not. It takes its toll without proper care -- so knowing is ESSENTIAL!! Denial and avoidance are normal, natural phases in grieving over this kind of diagnosis. So what you are feeling is normal, but please don't let that fear guide you away from getting answers.
Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
((((HUGS)))
Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
((((HUGS)))
M
Mommafirst
Guest
I think everyone on this board can understand the fear of hearing the words cystic fibrosis related to your child. We were all overwhelmed and taken down by this diagnosis. CF is there whether one knows or not. It takes its toll without proper care -- so knowing is ESSENTIAL!! Denial and avoidance are normal, natural phases in grieving over this kind of diagnosis. So what you are feeling is normal, but please don't let that fear guide you away from getting answers.
<br />
<br />Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
<br />
<br />((((HUGS)))
<br />
<br />Please look on the adult forum and see the hope that exists for a child with CF today. And then get the testing started.
<br />
<br />((((HUGS)))
Hi:
I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
Since I have been dx I'm MUCH healthier than I was before.
I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
Finally, there will be a cure for CF in your lifetime.
Good luck,
Bill
I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
Since I have been dx I'm MUCH healthier than I was before.
I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
Finally, there will be a cure for CF in your lifetime.
Good luck,
Bill
Hi:
I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
Since I have been dx I'm MUCH healthier than I was before.
I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
Finally, there will be a cure for CF in your lifetime.
Good luck,
Bill
I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
Since I have been dx I'm MUCH healthier than I was before.
I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
Finally, there will be a cure for CF in your lifetime.
Good luck,
Bill
Hi:
<br />
<br />I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
<br />
<br />Since I have been dx I'm MUCH healthier than I was before.
<br />
<br />I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
<br />
<br />Finally, there will be a cure for CF in your lifetime.
<br />
<br />Good luck,
<br />Bill
<br />
<br />
<br />
<br />I'm a 70 year old male with CF. I was 15 before CF had a name and I was finally dx at age 47. Before being dx, and in my 20s and 30s, I was constantly hospitalized. I laugh now about being invited to three nursing school graduations in a row (true no joke).
<br />
<br />Since I have been dx I'm MUCH healthier than I was before.
<br />
<br />I know that you are scared but the situation may not be nearly as bad as you are making it out to be. You need to have your son tested ASAP.
<br />
<br />Finally, there will be a cure for CF in your lifetime.
<br />
<br />Good luck,
<br />Bill
<br />
<br />
Agreed, we all understand your fear. I was angry when the head of the local nicu dropped the CF bomb in casual converstion when they were trying to figure out why our newborn was projectile vomiting -- to scare us unecessarily like that, especially with no family history. It's a shock, we felt blindsided; however, I've also seen a child in her teens go undiagnosed and others diagnosed later in life who are completely different children leading active, normal lives.
Agreed, we all understand your fear. I was angry when the head of the local nicu dropped the CF bomb in casual converstion when they were trying to figure out why our newborn was projectile vomiting -- to scare us unecessarily like that, especially with no family history. It's a shock, we felt blindsided; however, I've also seen a child in her teens go undiagnosed and others diagnosed later in life who are completely different children leading active, normal lives.