Scoliosis and cf

Buckeye

New member
My son has very very slight scoliosis. His Ortho doctor discovered it while treating him for something totally unrelated. There's been no mention of a brace or anything.Would all the scoliosis have anything to do with malabsorption? I know the malabsorption is what can cause Osteoporosis in cfers later in life.
 

Buckeye

New member
My son has very very slight scoliosis. His Ortho doctor discovered it while treating him for something totally unrelated. There's been no mention of a brace or anything.Would all the scoliosis have anything to do with malabsorption? I know the malabsorption is what can cause Osteoporosis in cfers later in life.
 

Buckeye

New member
My son has very very slight scoliosis. His Ortho doctor discovered it while treating him for something totally unrelated. There's been no mention of a brace or anything.Would all the scoliosis have anything to do with malabsorption? I know the malabsorption is what can cause Osteoporosis in cfers later in life.
 

Buckeye

New member
My son has very very slight scoliosis. His Ortho doctor discovered it while treating him for something totally unrelated. There's been no mention of a brace or anything.Would all the scoliosis have anything to do with malabsorption? I know the malabsorption is what can cause Osteoporosis in cfers later in life.
 

Buckeye

New member
My son has very very slight scoliosis. His Ortho doctor discovered it while treating him for something totally unrelated. There's been no mention of a brace or anything.<p>Would all the scoliosis have anything to do with malabsorption? I know the malabsorption is what can cause Osteoporosis in cfers later in life.
 

grammakaky

New member
Hi gang, I have scoliosis and my daughter has it. Her daughter has cf, but is too young to test for scoliosis. Im wondering if there is a connection. Scoliosis is also inherited, as my sisters and brother has it.
 

grammakaky

New member
Hi gang, I have scoliosis and my daughter has it. Her daughter has cf, but is too young to test for scoliosis. Im wondering if there is a connection. Scoliosis is also inherited, as my sisters and brother has it.
 

grammakaky

New member
Hi gang, I have scoliosis and my daughter has it. Her daughter has cf, but is too young to test for scoliosis. Im wondering if there is a connection. Scoliosis is also inherited, as my sisters and brother has it.
 

grammakaky

New member
Hi gang, I have scoliosis and my daughter has it. Her daughter has cf, but is too young to test for scoliosis. Im wondering if there is a connection. Scoliosis is also inherited, as my sisters and brother has it.
 

grammakaky

New member
Hi gang, I have scoliosis and my daughter has it. Her daughter has cf, but is too young to test for scoliosis. Im wondering if there is a connection. Scoliosis is also inherited, as my sisters and brother has it.
 

JORDYSMOM

New member
My son had to have a major spine surgery to correct his. I was told there was no connection to CF, but I really wonder about it. I've read differing opinions, and even one journal that stated that children with CF should have bone scans done every year.

By the time we caught Jordan's kyphosis, it was too late to correct it with a brace. His CF doctor said it was very important to correct the kyphosis, because it was putting pressure on his lungs. I think if you have an opportunity to put on a brace, and let it correct that way you should do it. Jordan ended up wearing a brace for six months after the surgery anyway. I wish we'd caught it soon enough to avoid all of that pain for him.

It did take Jordan a year to get back to his pre-surgery FEV1. It took even longer to gain all of his weight back. It was really tough on everyone, because even the little things like bathing, dressing etc. he needed help with during his recovery.

If your child ends up having to wear the brace, I'm sure you could loosen it during treatments to allow the lungs to fully expand. I'm sorry you have to worry about it. It seems like CF is more than enough for a kid to have to handle.

Stacey
 

JORDYSMOM

New member
My son had to have a major spine surgery to correct his. I was told there was no connection to CF, but I really wonder about it. I've read differing opinions, and even one journal that stated that children with CF should have bone scans done every year.

By the time we caught Jordan's kyphosis, it was too late to correct it with a brace. His CF doctor said it was very important to correct the kyphosis, because it was putting pressure on his lungs. I think if you have an opportunity to put on a brace, and let it correct that way you should do it. Jordan ended up wearing a brace for six months after the surgery anyway. I wish we'd caught it soon enough to avoid all of that pain for him.

It did take Jordan a year to get back to his pre-surgery FEV1. It took even longer to gain all of his weight back. It was really tough on everyone, because even the little things like bathing, dressing etc. he needed help with during his recovery.

If your child ends up having to wear the brace, I'm sure you could loosen it during treatments to allow the lungs to fully expand. I'm sorry you have to worry about it. It seems like CF is more than enough for a kid to have to handle.

Stacey
 

JORDYSMOM

New member
My son had to have a major spine surgery to correct his. I was told there was no connection to CF, but I really wonder about it. I've read differing opinions, and even one journal that stated that children with CF should have bone scans done every year.

By the time we caught Jordan's kyphosis, it was too late to correct it with a brace. His CF doctor said it was very important to correct the kyphosis, because it was putting pressure on his lungs. I think if you have an opportunity to put on a brace, and let it correct that way you should do it. Jordan ended up wearing a brace for six months after the surgery anyway. I wish we'd caught it soon enough to avoid all of that pain for him.

It did take Jordan a year to get back to his pre-surgery FEV1. It took even longer to gain all of his weight back. It was really tough on everyone, because even the little things like bathing, dressing etc. he needed help with during his recovery.

If your child ends up having to wear the brace, I'm sure you could loosen it during treatments to allow the lungs to fully expand. I'm sorry you have to worry about it. It seems like CF is more than enough for a kid to have to handle.

Stacey
 

JORDYSMOM

New member
My son had to have a major spine surgery to correct his. I was told there was no connection to CF, but I really wonder about it. I've read differing opinions, and even one journal that stated that children with CF should have bone scans done every year.

By the time we caught Jordan's kyphosis, it was too late to correct it with a brace. His CF doctor said it was very important to correct the kyphosis, because it was putting pressure on his lungs. I think if you have an opportunity to put on a brace, and let it correct that way you should do it. Jordan ended up wearing a brace for six months after the surgery anyway. I wish we'd caught it soon enough to avoid all of that pain for him.

It did take Jordan a year to get back to his pre-surgery FEV1. It took even longer to gain all of his weight back. It was really tough on everyone, because even the little things like bathing, dressing etc. he needed help with during his recovery.

If your child ends up having to wear the brace, I'm sure you could loosen it during treatments to allow the lungs to fully expand. I'm sorry you have to worry about it. It seems like CF is more than enough for a kid to have to handle.

Stacey
 

JORDYSMOM

New member
My son had to have a major spine surgery to correct his. I was told there was no connection to CF, but I really wonder about it. I've read differing opinions, and even one journal that stated that children with CF should have bone scans done every year.
<br />
<br />By the time we caught Jordan's kyphosis, it was too late to correct it with a brace. His CF doctor said it was very important to correct the kyphosis, because it was putting pressure on his lungs. I think if you have an opportunity to put on a brace, and let it correct that way you should do it. Jordan ended up wearing a brace for six months after the surgery anyway. I wish we'd caught it soon enough to avoid all of that pain for him.
<br />
<br />It did take Jordan a year to get back to his pre-surgery FEV1. It took even longer to gain all of his weight back. It was really tough on everyone, because even the little things like bathing, dressing etc. he needed help with during his recovery.
<br />
<br />If your child ends up having to wear the brace, I'm sure you could loosen it during treatments to allow the lungs to fully expand. I'm sorry you have to worry about it. It seems like CF is more than enough for a kid to have to handle.
<br />
<br />Stacey
<br />
<br />
 

Melissa75

Administrator
My sister had scoliosis, not enough to need a brace. She was very diligent about doing exercises 2x a day and her's pretty much went away as she got older. It was a brief problem again when she was having an epidural placed during childbirth. She also continued running and swimming during those teen years. She doesn't have CF. I just wanted to mention these exercises since no one else has. I am sure your son would not love to have more PT to do :-(
____
Melissa, 33 yrs, bronchiectasis
 

Melissa75

Administrator
My sister had scoliosis, not enough to need a brace. She was very diligent about doing exercises 2x a day and her's pretty much went away as she got older. It was a brief problem again when she was having an epidural placed during childbirth. She also continued running and swimming during those teen years. She doesn't have CF. I just wanted to mention these exercises since no one else has. I am sure your son would not love to have more PT to do :-(
____
Melissa, 33 yrs, bronchiectasis
 

Melissa75

Administrator
My sister had scoliosis, not enough to need a brace. She was very diligent about doing exercises 2x a day and her's pretty much went away as she got older. It was a brief problem again when she was having an epidural placed during childbirth. She also continued running and swimming during those teen years. She doesn't have CF. I just wanted to mention these exercises since no one else has. I am sure your son would not love to have more PT to do :-(
____
Melissa, 33 yrs, bronchiectasis
 

Melissa75

Administrator
My sister had scoliosis, not enough to need a brace. She was very diligent about doing exercises 2x a day and her's pretty much went away as she got older. It was a brief problem again when she was having an epidural placed during childbirth. She also continued running and swimming during those teen years. She doesn't have CF. I just wanted to mention these exercises since no one else has. I am sure your son would not love to have more PT to do :-(
____
Melissa, 33 yrs, bronchiectasis
 

Melissa75

Administrator
My sister had scoliosis, not enough to need a brace. She was very diligent about doing exercises 2x a day and her's pretty much went away as she got older. It was a brief problem again when she was having an epidural placed during childbirth. She also continued running and swimming during those teen years. She doesn't have CF. I just wanted to mention these exercises since no one else has. I am sure your son would not love to have more PT to do :-(
<br />____
<br />Melissa, 33 yrs, bronchiectasis
 
Top