Scuba Diving

[anonymous]

Rental regulators are a huge risk and articles on this issue can be found in DAN's monthly mag. Most are poorly cleaned by dive resorts and dive shops. To properly clean dive equipment is costly and a pain.

As to skiing being a risk, so it goes. I have not been downhill snow skiing since Thursday, started skiing at the age of 7 and have downhill skied with oxygen prior to my TX. Life without snow skiing entails a huge risk of dying of boredom.

Having been to over 100 feet diving, the 33 foot level is two atmospheres of pressure (1/2 volume). At 66 feet you are at 3 ATM's (1/3 volume).

CF 55 TX cepacia

 

[anonymous]

Hey Texas, 55 with Cepacia,!!!!

Not to change the subject, but I was wondering what you do to get to 55?
I have cepacia too, I am 23. I'm finding it hard to find us with Cep.
Please let me know! I'll do any workout, drink any health thing no matter how gross it is!

Christian

 

[Faust]

Yeah, if you are 55, post transplant with CF, that's just amazing. I hope you get 55 more years!

 

[anonymous]

Hi Christian,

I'm 28 with Cepacia for the last 6 years still going strong and have scuba dived (with Cep). Hope your doing well.

Roo.<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[anonymous]

Exercise all the time managed to get me to the age of 45. When I was young, (in the 50's and 60's) CF's were told not to exercise. Exercise in the past included backpacking, XC and downhill skiing, hiking, mtn. biking, scuba, kayaking (sea and whitewater), rafting, riding, run, etc. In high school I played soccer and football. If you do not exercise, you can't keep your lungs clear and functioning. Now I try and exercise at least 30 min. per day and several days per week over 1 hour. My ideal is a couple of hours 3 days per week and at least 30 minutes 6 days a week. Change what you do to not get bored. At 23 through 45 I spent several days a week hiking most of the day (5-6 hours at a time). At 43 I would paddle all day on some trips up to 20 days at a time (the Grand Canyon), plus some 2-3 hour side hikes. At the age of 34 I would run an hour at 6,300 feet 4 days a week plus ski , mtn. bike or kayak on the weekends. I have direct knowledge that exercise helped me and some other CF's that I have known. At 23 or 28 get you body moving, ride a bike, hike, mtn. bike, swim, keep in motion and cough. Try doing your PFT's now and try for one month or more, constant exercise, repeat a PFT and see if you get any improvement. I would wager that your FEV-1 will improve. Try for 6 months and see if you can reverse some of the gradual decline.

In 1995, cepacia from a CF center seriously impacted my life and my functions started a downhill slide. TX in 2000. I knew a CF that made it 8 years post TX and hiked up to 13,000-14,000 on day long hikes at the age of 45.

CF 55 TX (transplant) cepacia

 

[anonymous]

OKAY, Roo and 55 TX Cepacia,

I am fascinated and interested. So you are talking major exercise here. (extreme stuff, awesome) Well, I have to get my butt outside. Yeah, I need a major attitude change. While, I think about that, any diet/nutritional things either of you have done that you feel have helped?
I think part of it is, I have always be told and assumed I could never do that (backpack, kayak trips, ect.) So, I need to change my thought pattern and dream alot bigger.
Please keep posting, I need to know more.

Christian, 23, with Cepacia