Sean is 10!!!

CFHockeyMom

New member
Today Sean is 10! This is big for me because when Sean was first diagnosed @ 12 weeks old we were told he had PA. The Docs were very tight lipped about what that meant as far as Sean's long term prognosis except for one of the residents. He's the one who very callously told me about PA and then explained that it was one of the more severe CF bugs and that it would shorten his life expectancy. Because the Docs were so tight lipped, I did my own research. At the time the average age for CFers to culture PA was in their early twenties with the average life expectancy of 30. Doing the math I deduced that generally speaking once PA had been cultured a patient lived roughly 10 years.

I never mentioned it to anyone but in my head, that's how long I gave Sean. Fortunately, I was wrong. Treatments have come so far for PA and other bugs that I'd nearly forgotten about my doomsday calculation unitl today.

Sean has brought so much to my life. I've learned so much from him and he has made me a stronger person.

Happy 10th Birthday, Sean (aka Pooh Bear, Scooby, Little Man)
 

karon72

New member
Congrats on his birthday and making it past your doomsday prediction. I could not help but read your and think of all the little predictions that I have made in my head, especially when Erin was first diagnosed. I remember asking what mutations are better or worse to have, about her colognizing PA, about the number on her sweat test result...so many things that don't really play into the big picture like constant CPT, preventative maintenance, good antibiotics, exercise, diet and good docs!

I know you are having a great day!
 

welshgirl

New member
happy 10th birthday sean and many more to come<img src="i/expressions/present.gif" border="0"><img src="i/expressions/moon.gif" border="0"><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/light.gif" border="0"><img src="i/expressions/face-icon-small-wink.gif" border="0">
 

kayleesgrandma

New member
Happy Birthday Sean <img src="i/expressions/present.gif" border="0"> A birthday and an anniversary in one! One thing I've learned here is that we sure can't put "limited expectations" on our list!! Good work Mom, he's here because of your hard work to keep him healthy and your love lifting him up. Congratulation Mom and Sean!!!
 

Landy

New member
Happy Birthday Sean!
You're in the double digits now!!!<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/present.gif" border="0">
 

Lungboy911

New member
Happy Double Digits B-day Sean,

Another Leo, Yeahhhhhh.....A real fighter, perfect personality for hockey from someone who knows.
 

Momofsix

New member
HAPPY  BELATED BIRTHDAY SEAN!!   My internet service
has been down for days Hope you had a wonderful joyous day!
 
Top