Seeking Advice

[mamaScarlett]

Good, I'm glad you read it. I know it was long.<br>Something to keep in mind about studies and numbers and 'statistics' is that they are very subjective. The article mentions how burkholderia cepacia is a risk factor, (just like it mentioned gest diabetes.) I have b cepacia, I've had it for 15 yrs. It has little to no impact on my Cf and certainly not on my pregnancy. For others, like the article said, its had a grave influence on pregnancy! (if you remember what it said, its pretty dark) <br>Cf is SO not a one size fits all disease. There are so many factors that make it different for each person. But one thing that does seem to be true with all cf women and pregnancy is planning. Planning=success. Maybe some bumps in the road, but overall, success.<br>Hard work too, compliance. And support! You need supportive people around you to help. Its a whole lifestyle you'd need to work towards.<br>Like Lauren said, its really not the pregnancy thats the issue, period! Its after, its the life of being an active mom. But its totally do-able and totally worth it, as long as you go into it knowing all the facts and ready. Keep reading up, keep asking and talking to other successful moms.<br>

 

[imported_Momto2]

Hi there. My husband and I went the adoption route although my PFT's were in the low 80's. My numbers declined to high 60's a bit after we adopted our daughter at 1 year of age. The stress up of being up at nights, having trouble finding time to exercise, etc all contributed. I got my stats up to mid 70's and we adopted a newborn in 2005. OK, THIS was stressful, especially with an older child. I got majorly sleep deprived and physically/emotionally exhausted. Stats went down to the 50's within a year or two. I dont think its just the pregnancy itself, but what comes afterwards! And my husband and whole family have been super-supportive. Would I change anything? Yes. I would ask for more help when I needed it instead of trying to suck it up and gut it out. However, I cant imagine our two girls, well, not being our two girls! I wouldnt trade the experience of being their mom for anything.

What's important to you? Only you and your hubby can answer that question and make the choice.

 

[imported_Momto2]

Hi there. My husband and I went the adoption route although my PFT's were in the low 80's. My numbers declined to high 60's a bit after we adopted our daughter at 1 year of age. The stress up of being up at nights, having trouble finding time to exercise, etc all contributed. I got my stats up to mid 70's and we adopted a newborn in 2005. OK, THIS was stressful, especially with an older child. I got majorly sleep deprived and physically/emotionally exhausted. Stats went down to the 50's within a year or two. I dont think its just the pregnancy itself, but what comes afterwards! And my husband and whole family have been super-supportive. Would I change anything? Yes. I would ask for more help when I needed it instead of trying to suck it up and gut it out. However, I cant imagine our two girls, well, not being our two girls! I wouldnt trade the experience of being their mom for anything.

What's important to you? Only you and your hubby can answer that question and make the choice.

 

[imported_Momto2]

Hi there. My husband and I went the adoption route although my PFT's were in the low 80's. My numbers declined to high 60's a bit after we adopted our daughter at 1 year of age. The stress up of being up at nights, having trouble finding time to exercise, etc all contributed. I got my stats up to mid 70's and we adopted a newborn in 2005. OK, THIS was stressful, especially with an older child. I got majorly sleep deprived and physically/emotionally exhausted. Stats went down to the 50's within a year or two. I dont think its just the pregnancy itself, but what comes afterwards! And my husband and whole family have been super-supportive. Would I change anything? Yes. I would ask for more help when I needed it instead of trying to suck it up and gut it out. However, I cant imagine our two girls, well, not being our two girls! I wouldnt trade the experience of being their mom for anything.
<br />
<br />What's important to you? Only you and your hubby can answer that question and make the choice.

 

[mmurray0702]

Thank you so much for this post Sara. You have reaffirmed my ideas and hopes even more. We have officially decided to try this on our own first and if all else fails we can head through the adoption route. From everything I have seen and read it IS more what comes AFTER the pregnancy than the pregnancy itself. I am currently trying to get in the BEST shape possible. I have been on prenatals and folic acid and ADEKs for 2 months solid now and been 100% compliant with treatments and about 75% compliant with exercise (getting there on that one). I also have a wonderful support system around me and I am going to take your advice..I will ask for help when I need it. I know I will want to be a super mommy but I also know it won't do anyone ANY good for me to try and do it all myself.

 

[mmurray0702]

Thank you so much for this post Sara. You have reaffirmed my ideas and hopes even more. We have officially decided to try this on our own first and if all else fails we can head through the adoption route. From everything I have seen and read it IS more what comes AFTER the pregnancy than the pregnancy itself. I am currently trying to get in the BEST shape possible. I have been on prenatals and folic acid and ADEKs for 2 months solid now and been 100% compliant with treatments and about 75% compliant with exercise (getting there on that one). I also have a wonderful support system around me and I am going to take your advice..I will ask for help when I need it. I know I will want to be a super mommy but I also know it won't do anyone ANY good for me to try and do it all myself.

 

[mmurray0702]

Thank you so much for this post Sara. You have reaffirmed my ideas and hopes even more. We have officially decided to try this on our own first and if all else fails we can head through the adoption route. From everything I have seen and read it IS more what comes AFTER the pregnancy than the pregnancy itself. I am currently trying to get in the BEST shape possible. I have been on prenatals and folic acid and ADEKs for 2 months solid now and been 100% compliant with treatments and about 75% compliant with exercise (getting there on that one). I also have a wonderful support system around me and I am going to take your advice..I will ask for help when I need it. I know I will want to be a super mommy but I also know it won't do anyone ANY good for me to try and do it all myself.

 

[imported_Momto2]

All the best to you mmurray : ) Another funny thing, that even though the date of both our daughters joining our family were relatively unknown, I still gained about 10 pounds within the few week prior to them arriving. Talk about weird! I also did this whole nesting thing too..... No matter which way you decided to start a family, it will be a very real distraction to your health, so be prepared!!! huggles.

 

[imported_Momto2]

All the best to you mmurray : ) Another funny thing, that even though the date of both our daughters joining our family were relatively unknown, I still gained about 10 pounds within the few week prior to them arriving. Talk about weird! I also did this whole nesting thing too..... No matter which way you decided to start a family, it will be a very real distraction to your health, so be prepared!!! huggles.

 

[imported_Momto2]

All the best to you mmurray : ) Another funny thing, that even though the date of both our daughters joining our family were relatively unknown, I still gained about 10 pounds within the few week prior to them arriving. Talk about weird! I also did this whole nesting thing too..... No matter which way you decided to start a family, it will be a very real distraction to your health, so be prepared!!! huggles.

 

[Deb]

It has been a while for me (my kids are 20 and 23) but I remember all the fears/doubts that you are going through. You are doing the right thing by researching and talking to others. But ultimately it is your decision about what you want. I know that there were people that thought I was crazy to take chances and also other CF patients that very rudely told me I should not be taking the chance of bringing another CF child in to the world (there was no testing when I decided to get pregnant). Regardless, it was the best decision of my life and I have never regretted a single moment.
The fact that you will be staying home with the baby is a huge plus. I also had this luxury. By not sending your baby to daycare you will eliminate a LOT of illness.
Like you I was healthy when I had my kids. I did go in to preterm labor with both of them and the time I spent on bed rest caused me to get congested so I ended up with pneumonia shortly after both births, but bounced back quickly.
Twenty years later my disease has progressed, but I am still doing well and enjoy every single day with the wonderful children I brought in to the world. They (and my husband) are what keep me strong to fight this disease.
Good luck and feel free to message me if you have specific questions.

 

[Deb]

It has been a while for me (my kids are 20 and 23) but I remember all the fears/doubts that you are going through. You are doing the right thing by researching and talking to others. But ultimately it is your decision about what you want. I know that there were people that thought I was crazy to take chances and also other CF patients that very rudely told me I should not be taking the chance of bringing another CF child in to the world (there was no testing when I decided to get pregnant). Regardless, it was the best decision of my life and I have never regretted a single moment.
The fact that you will be staying home with the baby is a huge plus. I also had this luxury. By not sending your baby to daycare you will eliminate a LOT of illness.
Like you I was healthy when I had my kids. I did go in to preterm labor with both of them and the time I spent on bed rest caused me to get congested so I ended up with pneumonia shortly after both births, but bounced back quickly.
Twenty years later my disease has progressed, but I am still doing well and enjoy every single day with the wonderful children I brought in to the world. They (and my husband) are what keep me strong to fight this disease.
Good luck and feel free to message me if you have specific questions.

 

[Deb]

It has been a while for me (my kids are 20 and 23) but I remember all the fears/doubts that you are going through. You are doing the right thing by researching and talking to others. But ultimately it is your decision about what you want. I know that there were people that thought I was crazy to take chances and also other CF patients that very rudely told me I should not be taking the chance of bringing another CF child in to the world (there was no testing when I decided to get pregnant). Regardless, it was the best decision of my life and I have never regretted a single moment.
<br />The fact that you will be staying home with the baby is a huge plus. I also had this luxury. By not sending your baby to daycare you will eliminate a LOT of illness.
<br />Like you I was healthy when I had my kids. I did go in to preterm labor with both of them and the time I spent on bed rest caused me to get congested so I ended up with pneumonia shortly after both births, but bounced back quickly.
<br />Twenty years later my disease has progressed, but I am still doing well and enjoy every single day with the wonderful children I brought in to the world. They (and my husband) are what keep me strong to fight this disease.
<br />Good luck and feel free to message me if you have specific questions.