SEVERE Acid Reflux

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imported_Momto2

New member
I had a similar problem taking Bactrim, but w/o the blood involvement and it only lasted about 5 days. I feel for you, it was completely horrible!!!!! You need to see someone NOW before you end up in the ER again. You're going to really damage your esophagus and /or stomach. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Wish I could help. Can your doc pull some strings, get you into a specialist sooner?
 
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rubyroselee

New member
I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an earlier appointment if possible - you need to get this figured out.
 
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rubyroselee

New member
I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an earlier appointment if possible - you need to get this figured out.
 
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rubyroselee

New member
I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an earlier appointment if possible - you need to get this figured out.
 
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Deb

Guest
I have such severe reflux that I have aspirated into my lung. I take Nexium but most importantly I sleep with the head of my bed elevated. Used to just put bricks under the head of the bed but after aspirating I now sleep on an adjustable bed and have to have it at a 30 degree angle. This really does help. Also no eating after about 6:30 at night.
 
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Deb

Guest
I have such severe reflux that I have aspirated into my lung. I take Nexium but most importantly I sleep with the head of my bed elevated. Used to just put bricks under the head of the bed but after aspirating I now sleep on an adjustable bed and have to have it at a 30 degree angle. This really does help. Also no eating after about 6:30 at night.
 
D

Deb

Guest
I have such severe reflux that I have aspirated into my lung. I take Nexium but most importantly I sleep with the head of my bed elevated. Used to just put bricks under the head of the bed but after aspirating I now sleep on an adjustable bed and have to have it at a 30 degree angle. This really does help. Also no eating after about 6:30 at night.
 
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rmotion

New member
SEVERE Acid Reflux- go gluten free

<P>Hi:</P>
<P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P>
<P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a genetic test for celiac. Go figure.</P>
<P>Estimates that CF's are twice as likely to actually have celiac. Still a low percent. But in all I have learned the gluten(the protein found in wheat) is indicated in over 300 different diseases. Bingo Most CF's are gluten intolerant. We already have stomach problems throw in an auto immune response to wheat and you go problems.</P>
<P>look up gluten sensitvity, gluten intolerance and see if things look like you could relate.</P>
<P>Have your doc give you an IGE antibody test and then try a gluten free diet to see if you feel better. Granted it can take years for the intestines to heal but you should see some benefit. Like less gas, bloating, heartburn fatty stools, less congestions etc.</P>
<P>post me back if you want to chat.</P>
<P>Rob</P>
<P> </P>
 
R

rmotion

New member
SEVERE Acid Reflux- go gluten free

<P>Hi:</P>
<P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P>
<P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a genetic test for celiac. Go figure.</P>
<P>Estimates that CF's are twice as likely to actually have celiac. Still a low percent. But in all I have learned the gluten(the protein found in wheat) is indicated in over 300 different diseases. Bingo Most CF's are gluten intolerant. We already have stomach problems throw in an auto immune response to wheat and you go problems.</P>
<P>look up gluten sensitvity, gluten intolerance and see if things look like you could relate.</P>
<P>Have your doc give you an IGE antibody test and then try a gluten free diet to see if you feel better. Granted it can take years for the intestines to heal but you should see some benefit. Like less gas, bloating, heartburn fatty stools, less congestions etc.</P>
<P>post me back if you want to chat.</P>
<P>Rob</P>
<P></P>
 
R

rmotion

New member
SEVERE Acid Reflux- go gluten free

<P><BR>Hi:</P>
<P>I use to be on prilosec, tagament etc for years. My stomach was so bad that I was real sick.</P>
<P>I went to a nutritionist and found out I had an allergy to wheat. Told my CF doc and they gave me a test to test gluten antibodies, then a genetic test for celiac. Go figure.</P>
<P>Estimates that CF's are twice as likely to actually have celiac. Still a low percent. But in all I have learned the gluten(the protein found in wheat) is indicated in over 300 different diseases. Bingo Most CF's are gluten intolerant. We already have stomach problems throw in an auto immune response to wheat and you go problems.</P>
<P>look up gluten sensitvity, gluten intolerance and see if things look like you could relate.</P>
<P>Have your doc give you an IGE antibody test and then try a gluten free diet to see if you feel better. Granted it can take years for the intestines to heal but you should see some benefit. Like less gas, bloating, heartburn fatty stools, less congestions etc.</P>
<P>post me back if you want to chat.</P>
<P>Rob</P>
<P></P>
 
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