TamathaLynn
New member
Hi Megan.
I'm Tamatha the mother of 6 month old Logan. He was diagnosed with CF when he was 9 weeks old. My story is a lot like Catie's. All he did was cry nonstop he would only sleep for maybe thirty minutes at a time and that was after he ate.I was functioning on maybe two hours of sleep a night at thirty minute intervals. He was eating six ounces of formula every two hours by the time he was six weeks old,and he would cry wanting more. He had chronic diarrhea, every single day he had approximately six or seven dirty diapers per feeding. I was taking him to the doctor and every time I went they thoght I was exaggerating because he is my first child, so obviously I didn't know what I was talking about. We went through three doctors until I found one who at least attempted to help. He startd changing Logans formula. By the time he was nine weeks old he had been on seven different formulas, cried nonstop, had only gained a pound since he had been born,awful diarrhea. His pediatrician referred him to the university hospital here and they admitted him for failure to thrive. The next day they did the sweat test and was diagnosed. That day was the worst yet best day because I wasn't crazy after all and we found out what was wrong and could do something. He was started on creon 5 and has ben doing wonderfully! So far the only problems he's had is digestion so maybe it will stay that way. I'm still scared silly and really have no idea what to expect or do but I'm learning. Tonight was the first night I found this web site. I've never been here before but I'm glad I found it. I hope I was some help to you. And anyone who reads this and has any advice for me please feel free to give it.
I'm Tamatha the mother of 6 month old Logan. He was diagnosed with CF when he was 9 weeks old. My story is a lot like Catie's. All he did was cry nonstop he would only sleep for maybe thirty minutes at a time and that was after he ate.I was functioning on maybe two hours of sleep a night at thirty minute intervals. He was eating six ounces of formula every two hours by the time he was six weeks old,and he would cry wanting more. He had chronic diarrhea, every single day he had approximately six or seven dirty diapers per feeding. I was taking him to the doctor and every time I went they thoght I was exaggerating because he is my first child, so obviously I didn't know what I was talking about. We went through three doctors until I found one who at least attempted to help. He startd changing Logans formula. By the time he was nine weeks old he had been on seven different formulas, cried nonstop, had only gained a pound since he had been born,awful diarrhea. His pediatrician referred him to the university hospital here and they admitted him for failure to thrive. The next day they did the sweat test and was diagnosed. That day was the worst yet best day because I wasn't crazy after all and we found out what was wrong and could do something. He was started on creon 5 and has ben doing wonderfully! So far the only problems he's had is digestion so maybe it will stay that way. I'm still scared silly and really have no idea what to expect or do but I'm learning. Tonight was the first night I found this web site. I've never been here before but I'm glad I found it. I hope I was some help to you. And anyone who reads this and has any advice for me please feel free to give it.