Hi,
My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this message because we have decided it is time to share the enormous amount of information we have gathered over the years with as many people involved with CF as possible.
Since the discovery of the CFTR protein, the number of scientific studies published on CF has increased from approximately 300 per year to over 1000 per year. Because of the sheer volume of studies, many are published and then shelved and forgotten, which leaves many potential therapies unexplored. To lose a single life to this disease due to unexplored science or lack of organization is tragic.
Enter Sharktank. Because medical studies are published in scientific and medical journals, they are accessible through the internet. In searching for answers, we, as members of Sharktank, have dedicated ourselves to find, understand, compile and synthesize decades of CF research from around the world. We have not done this work, or invited you to view it, so that we can sell you some supplement that might or might not do you any good. We study both basic biochemistry and the science of CF, and that has brought us to a more complete understanding of the disease. We simply want to share this information with you. It is our hope that you can share it with your health professional, and together, make use of it to stop the ravages of the disease.
The members of Sharktank either have cystic fibrosis or have children with it.
The group has over 300 members from all over the world, including scientists, microbiologists, professors, medical doctors, chemists, pharmacists, electrical engineers, home-makers, people from all walks of life.
The first product of Sharktank's research was a paper on the usefulness of inhaled glutathione as a CF therapy. Did anyone listen? Yes! Many major researchers in the field have now announced research and clinical trials involving inhaled glutathione.
Since the publication of that paper in late 1998, Sharktank has moved forward and discovered more precisely what could STOP this fatal disease. Through the dedication of Sharktank members, we hope to make a difference in the lives of people with cystic fibrosis by sharing this knowledge.
If you are interested in finding out more about Sharktank or in becoming a member, please visit <a target=_blank class=ftalternatingbarlinklarge href="http://www.sharktank.org">www.sharktank.org</a> . Be sure to read Melanie's blog with the very latest on Sharktank's developments.
We hope to see your there!
Sam
My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this message because we have decided it is time to share the enormous amount of information we have gathered over the years with as many people involved with CF as possible.
Since the discovery of the CFTR protein, the number of scientific studies published on CF has increased from approximately 300 per year to over 1000 per year. Because of the sheer volume of studies, many are published and then shelved and forgotten, which leaves many potential therapies unexplored. To lose a single life to this disease due to unexplored science or lack of organization is tragic.
Enter Sharktank. Because medical studies are published in scientific and medical journals, they are accessible through the internet. In searching for answers, we, as members of Sharktank, have dedicated ourselves to find, understand, compile and synthesize decades of CF research from around the world. We have not done this work, or invited you to view it, so that we can sell you some supplement that might or might not do you any good. We study both basic biochemistry and the science of CF, and that has brought us to a more complete understanding of the disease. We simply want to share this information with you. It is our hope that you can share it with your health professional, and together, make use of it to stop the ravages of the disease.
The members of Sharktank either have cystic fibrosis or have children with it.
The group has over 300 members from all over the world, including scientists, microbiologists, professors, medical doctors, chemists, pharmacists, electrical engineers, home-makers, people from all walks of life.
The first product of Sharktank's research was a paper on the usefulness of inhaled glutathione as a CF therapy. Did anyone listen? Yes! Many major researchers in the field have now announced research and clinical trials involving inhaled glutathione.
Since the publication of that paper in late 1998, Sharktank has moved forward and discovered more precisely what could STOP this fatal disease. Through the dedication of Sharktank members, we hope to make a difference in the lives of people with cystic fibrosis by sharing this knowledge.
If you are interested in finding out more about Sharktank or in becoming a member, please visit <a target=_blank class=ftalternatingbarlinklarge href="http://www.sharktank.org">www.sharktank.org</a> . Be sure to read Melanie's blog with the very latest on Sharktank's developments.
We hope to see your there!
Sam