Shortening my routine

barbc888

New member
Quality of life is definitely an issue with CF'ers, since we spend half or most of our days trying to stay healthy. I'm sorry to hear it's become a big issue for you. That being said, here's a percussor I recently purchased, and it works great. It's very powerful, and I can take it with me when traveling. I sometimes use it instead of the vest:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.eper.ca/
">http://www.eper.ca/
</a>

Good luck!
 

barbc888

New member
Quality of life is definitely an issue with CF'ers, since we spend half or most of our days trying to stay healthy. I'm sorry to hear it's become a big issue for you. That being said, here's a percussor I recently purchased, and it works great. It's very powerful, and I can take it with me when traveling. I sometimes use it instead of the vest:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.eper.ca/
">http://www.eper.ca/
</a>

Good luck!
 

barbc888

New member
Quality of life is definitely an issue with CF'ers, since we spend half or most of our days trying to stay healthy. I'm sorry to hear it's become a big issue for you. That being said, here's a percussor I recently purchased, and it works great. It's very powerful, and I can take it with me when traveling. I sometimes use it instead of the vest:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.eper.ca/
">http://www.eper.ca/
</a>

Good luck!
 

barbc888

New member
Quality of life is definitely an issue with CF'ers, since we spend half or most of our days trying to stay healthy. I'm sorry to hear it's become a big issue for you. That being said, here's a percussor I recently purchased, and it works great. It's very powerful, and I can take it with me when traveling. I sometimes use it instead of the vest:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.eper.ca/
">http://www.eper.ca/
</a>

Good luck!
 

barbc888

New member
Quality of life is definitely an issue with CF'ers, since we spend half or most of our days trying to stay healthy. I'm sorry to hear it's become a big issue for you. That being said, here's a percussor I recently purchased, and it works great. It's very powerful, and I can take it with me when traveling. I sometimes use it instead of the vest:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.eper.ca/
">http://www.eper.ca/
</a>

Good luck!
 

point

New member
Hello - Wanted to say that you could consider lowering the % of saline - like another person already did write. If you are having a lot of coughing due to irritation, try bringing that % down and hopefully it will speed up the process of doing your HS. Also, eflow will be helpful if you can buy it and/or when it does become readily available for everyone.

Exercising really helps to work my lungs. While my dr. doesn't support me - at least on the books - I complete my HS neb while I drive to work - I have a long commute. I also, at times, use my percussor if I car-pool (aka not driving myself). Doing therapy while driving is not the safest though - saying that so someone else doesn't have to - but when it comes to maintaining quality of life there are a few trade-offs.
 

point

New member
Hello - Wanted to say that you could consider lowering the % of saline - like another person already did write. If you are having a lot of coughing due to irritation, try bringing that % down and hopefully it will speed up the process of doing your HS. Also, eflow will be helpful if you can buy it and/or when it does become readily available for everyone.

Exercising really helps to work my lungs. While my dr. doesn't support me - at least on the books - I complete my HS neb while I drive to work - I have a long commute. I also, at times, use my percussor if I car-pool (aka not driving myself). Doing therapy while driving is not the safest though - saying that so someone else doesn't have to - but when it comes to maintaining quality of life there are a few trade-offs.
 

point

New member
Hello - Wanted to say that you could consider lowering the % of saline - like another person already did write. If you are having a lot of coughing due to irritation, try bringing that % down and hopefully it will speed up the process of doing your HS. Also, eflow will be helpful if you can buy it and/or when it does become readily available for everyone.

Exercising really helps to work my lungs. While my dr. doesn't support me - at least on the books - I complete my HS neb while I drive to work - I have a long commute. I also, at times, use my percussor if I car-pool (aka not driving myself). Doing therapy while driving is not the safest though - saying that so someone else doesn't have to - but when it comes to maintaining quality of life there are a few trade-offs.
 

point

New member
Hello - Wanted to say that you could consider lowering the % of saline - like another person already did write. If you are having a lot of coughing due to irritation, try bringing that % down and hopefully it will speed up the process of doing your HS. Also, eflow will be helpful if you can buy it and/or when it does become readily available for everyone.

Exercising really helps to work my lungs. While my dr. doesn't support me - at least on the books - I complete my HS neb while I drive to work - I have a long commute. I also, at times, use my percussor if I car-pool (aka not driving myself). Doing therapy while driving is not the safest though - saying that so someone else doesn't have to - but when it comes to maintaining quality of life there are a few trade-offs.
 

point

New member
Hello - Wanted to say that you could consider lowering the % of saline - like another person already did write. If you are having a lot of coughing due to irritation, try bringing that % down and hopefully it will speed up the process of doing your HS. Also, eflow will be helpful if you can buy it and/or when it does become readily available for everyone.

Exercising really helps to work my lungs. While my dr. doesn't support me - at least on the books - I complete my HS neb while I drive to work - I have a long commute. I also, at times, use my percussor if I car-pool (aka not driving myself). Doing therapy while driving is not the safest though - saying that so someone else doesn't have to - but when it comes to maintaining quality of life there are a few trade-offs.
 

AnD

New member
I'm working on that, myself. I got a Xopenex HFA? inhaler, but while I don't think I get as much out of it as I do my nebulizer, it is a definite shortcut on days when I need one. I am going to try it with an aero chamber of some sort and see if that helps me out with it.

I got a Pari trek S last week (for $140, plus the cheap shipping is $15- includes the battery), and I can now do my Xopenex and HTS in the car, or while wandering around the house (finding small person shoes, my shoes-lol, setting the dog up to leave her for the day, clearing the table- just whatever <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). Tomorrow I am off to find some sort of netting material to make it a sling so I can wear it, and have it stay flat (per directions).

If I am in a hurry, I also do my HTS and vest together, but I think I get more up with both the HTS and my vest when I do them seperately.

I also have a flutter (that I use in the shower when I'm really congested) and an Accapella for the car, or again, if I'm really running late, I can do it while running around the house.

I can tell the difference when I only do my pulmozyme once a day or any other stuff once a day, so I am not willing to cut back on the meds I take. I just try to do things I would normally do sitting down, like make my grocery list, cut/sort coupons, read to my daughter, sew on a button (etc.), renew books online at the library, fix/organize photos and of course, come here! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

AnD

New member
I'm working on that, myself. I got a Xopenex HFA? inhaler, but while I don't think I get as much out of it as I do my nebulizer, it is a definite shortcut on days when I need one. I am going to try it with an aero chamber of some sort and see if that helps me out with it.

I got a Pari trek S last week (for $140, plus the cheap shipping is $15- includes the battery), and I can now do my Xopenex and HTS in the car, or while wandering around the house (finding small person shoes, my shoes-lol, setting the dog up to leave her for the day, clearing the table- just whatever <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). Tomorrow I am off to find some sort of netting material to make it a sling so I can wear it, and have it stay flat (per directions).

If I am in a hurry, I also do my HTS and vest together, but I think I get more up with both the HTS and my vest when I do them seperately.

I also have a flutter (that I use in the shower when I'm really congested) and an Accapella for the car, or again, if I'm really running late, I can do it while running around the house.

I can tell the difference when I only do my pulmozyme once a day or any other stuff once a day, so I am not willing to cut back on the meds I take. I just try to do things I would normally do sitting down, like make my grocery list, cut/sort coupons, read to my daughter, sew on a button (etc.), renew books online at the library, fix/organize photos and of course, come here! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

AnD

New member
I'm working on that, myself. I got a Xopenex HFA? inhaler, but while I don't think I get as much out of it as I do my nebulizer, it is a definite shortcut on days when I need one. I am going to try it with an aero chamber of some sort and see if that helps me out with it.

I got a Pari trek S last week (for $140, plus the cheap shipping is $15- includes the battery), and I can now do my Xopenex and HTS in the car, or while wandering around the house (finding small person shoes, my shoes-lol, setting the dog up to leave her for the day, clearing the table- just whatever <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). Tomorrow I am off to find some sort of netting material to make it a sling so I can wear it, and have it stay flat (per directions).

If I am in a hurry, I also do my HTS and vest together, but I think I get more up with both the HTS and my vest when I do them seperately.

I also have a flutter (that I use in the shower when I'm really congested) and an Accapella for the car, or again, if I'm really running late, I can do it while running around the house.

I can tell the difference when I only do my pulmozyme once a day or any other stuff once a day, so I am not willing to cut back on the meds I take. I just try to do things I would normally do sitting down, like make my grocery list, cut/sort coupons, read to my daughter, sew on a button (etc.), renew books online at the library, fix/organize photos and of course, come here! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

AnD

New member
I'm working on that, myself. I got a Xopenex HFA? inhaler, but while I don't think I get as much out of it as I do my nebulizer, it is a definite shortcut on days when I need one. I am going to try it with an aero chamber of some sort and see if that helps me out with it.

I got a Pari trek S last week (for $140, plus the cheap shipping is $15- includes the battery), and I can now do my Xopenex and HTS in the car, or while wandering around the house (finding small person shoes, my shoes-lol, setting the dog up to leave her for the day, clearing the table- just whatever <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). Tomorrow I am off to find some sort of netting material to make it a sling so I can wear it, and have it stay flat (per directions).

If I am in a hurry, I also do my HTS and vest together, but I think I get more up with both the HTS and my vest when I do them seperately.

I also have a flutter (that I use in the shower when I'm really congested) and an Accapella for the car, or again, if I'm really running late, I can do it while running around the house.

I can tell the difference when I only do my pulmozyme once a day or any other stuff once a day, so I am not willing to cut back on the meds I take. I just try to do things I would normally do sitting down, like make my grocery list, cut/sort coupons, read to my daughter, sew on a button (etc.), renew books online at the library, fix/organize photos and of course, come here! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

AnD

New member
I'm working on that, myself. I got a Xopenex HFA? inhaler, but while I don't think I get as much out of it as I do my nebulizer, it is a definite shortcut on days when I need one. I am going to try it with an aero chamber of some sort and see if that helps me out with it.

I got a Pari trek S last week (for $140, plus the cheap shipping is $15- includes the battery), and I can now do my Xopenex and HTS in the car, or while wandering around the house (finding small person shoes, my shoes-lol, setting the dog up to leave her for the day, clearing the table- just whatever <img src="i/expressions/face-icon-small-wink.gif" border="0"> ). Tomorrow I am off to find some sort of netting material to make it a sling so I can wear it, and have it stay flat (per directions).

If I am in a hurry, I also do my HTS and vest together, but I think I get more up with both the HTS and my vest when I do them seperately.

I also have a flutter (that I use in the shower when I'm really congested) and an Accapella for the car, or again, if I'm really running late, I can do it while running around the house.

I can tell the difference when I only do my pulmozyme once a day or any other stuff once a day, so I am not willing to cut back on the meds I take. I just try to do things I would normally do sitting down, like make my grocery list, cut/sort coupons, read to my daughter, sew on a button (etc.), renew books online at the library, fix/organize photos and of course, come here! <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Faust

New member
What I do: I wake up and do my albuterol while I do my first vest setting for 5 mins at 10 HZ's, then after my albuterol is done I turn it to the highest 25 hz's and do my huffs and coughs. Then I do my hypertonic with the vest setting on 15 hz's for 5 mins, after the vest stops I keep sitting on the foot pedal so the vest keeps going till it hits it's safety mechanism to stop after the bell has gone off. After a bit my hypertonic is done, and I again turn it to 25 hz's and do my huffs/coughs and get rid of more stuff. My last aresol is my colistin and I do that while my vest is on 20 hz's for 5 mins. I keep the vest going for a while on that setting until my neb is done, and then put it on 25 HZ's and do some real strong and productive huffs/coughs. All said and done, this takes me a little over an hour, maybe an hour and a half max if im cruising the net and not fully paying attention to my vest.


I do the same thing at night, with the exception of adding pulmozyme last to the routine (I keep the same vest routine, 5 mins each @ those settings with strong coughing at 25 hz's). Doing this routine enables me to work full time, and even with overtime. Of course we are all different, and I remember you saying your PFT's weren't as good as mine, so I have no idea what you truely require, and what may be timesink over kill for you, but that is what works for me, and it takes about 2-3 hrs from my day to keep myself in tip top shape.

As someone else has said, why are you doing pulmozyme twice a day? Everyone I know (myself included) does it once a day. I'm not sure if it would give further benefit at twice a day. Also I know there are varying opinions on the vest use, as in amount of time to use it at each setting etc, but I personally think 5 mins on each setting should be fine. Hell even if you do 10 mins, that's still only 30 mins (not with the huff settings). How long are you using your vest for on each setting? There is so much air flow in the lungs that the vest produces, I would think that after you are done with a neb, if you are doing your vest for like 15+ mins each setting, it could also be drying out your lungs due to the long periods of forced airflow.

I bet the vest settings you use are your biggest time culprit. If you could try and get more exercise during the day to help with bringing stuff up, maybe you could swap from 3 times a day vest and nebs, to twice a day? I dunno...Of course all speculation on my end, and I know we are all different, but doing my routine twice a day really works for me.
 

Faust

New member
What I do: I wake up and do my albuterol while I do my first vest setting for 5 mins at 10 HZ's, then after my albuterol is done I turn it to the highest 25 hz's and do my huffs and coughs. Then I do my hypertonic with the vest setting on 15 hz's for 5 mins, after the vest stops I keep sitting on the foot pedal so the vest keeps going till it hits it's safety mechanism to stop after the bell has gone off. After a bit my hypertonic is done, and I again turn it to 25 hz's and do my huffs/coughs and get rid of more stuff. My last aresol is my colistin and I do that while my vest is on 20 hz's for 5 mins. I keep the vest going for a while on that setting until my neb is done, and then put it on 25 HZ's and do some real strong and productive huffs/coughs. All said and done, this takes me a little over an hour, maybe an hour and a half max if im cruising the net and not fully paying attention to my vest.


I do the same thing at night, with the exception of adding pulmozyme last to the routine (I keep the same vest routine, 5 mins each @ those settings with strong coughing at 25 hz's). Doing this routine enables me to work full time, and even with overtime. Of course we are all different, and I remember you saying your PFT's weren't as good as mine, so I have no idea what you truely require, and what may be timesink over kill for you, but that is what works for me, and it takes about 2-3 hrs from my day to keep myself in tip top shape.

As someone else has said, why are you doing pulmozyme twice a day? Everyone I know (myself included) does it once a day. I'm not sure if it would give further benefit at twice a day. Also I know there are varying opinions on the vest use, as in amount of time to use it at each setting etc, but I personally think 5 mins on each setting should be fine. Hell even if you do 10 mins, that's still only 30 mins (not with the huff settings). How long are you using your vest for on each setting? There is so much air flow in the lungs that the vest produces, I would think that after you are done with a neb, if you are doing your vest for like 15+ mins each setting, it could also be drying out your lungs due to the long periods of forced airflow.

I bet the vest settings you use are your biggest time culprit. If you could try and get more exercise during the day to help with bringing stuff up, maybe you could swap from 3 times a day vest and nebs, to twice a day? I dunno...Of course all speculation on my end, and I know we are all different, but doing my routine twice a day really works for me.
 

Faust

New member
What I do: I wake up and do my albuterol while I do my first vest setting for 5 mins at 10 HZ's, then after my albuterol is done I turn it to the highest 25 hz's and do my huffs and coughs. Then I do my hypertonic with the vest setting on 15 hz's for 5 mins, after the vest stops I keep sitting on the foot pedal so the vest keeps going till it hits it's safety mechanism to stop after the bell has gone off. After a bit my hypertonic is done, and I again turn it to 25 hz's and do my huffs/coughs and get rid of more stuff. My last aresol is my colistin and I do that while my vest is on 20 hz's for 5 mins. I keep the vest going for a while on that setting until my neb is done, and then put it on 25 HZ's and do some real strong and productive huffs/coughs. All said and done, this takes me a little over an hour, maybe an hour and a half max if im cruising the net and not fully paying attention to my vest.


I do the same thing at night, with the exception of adding pulmozyme last to the routine (I keep the same vest routine, 5 mins each @ those settings with strong coughing at 25 hz's). Doing this routine enables me to work full time, and even with overtime. Of course we are all different, and I remember you saying your PFT's weren't as good as mine, so I have no idea what you truely require, and what may be timesink over kill for you, but that is what works for me, and it takes about 2-3 hrs from my day to keep myself in tip top shape.

As someone else has said, why are you doing pulmozyme twice a day? Everyone I know (myself included) does it once a day. I'm not sure if it would give further benefit at twice a day. Also I know there are varying opinions on the vest use, as in amount of time to use it at each setting etc, but I personally think 5 mins on each setting should be fine. Hell even if you do 10 mins, that's still only 30 mins (not with the huff settings). How long are you using your vest for on each setting? There is so much air flow in the lungs that the vest produces, I would think that after you are done with a neb, if you are doing your vest for like 15+ mins each setting, it could also be drying out your lungs due to the long periods of forced airflow.

I bet the vest settings you use are your biggest time culprit. If you could try and get more exercise during the day to help with bringing stuff up, maybe you could swap from 3 times a day vest and nebs, to twice a day? I dunno...Of course all speculation on my end, and I know we are all different, but doing my routine twice a day really works for me.
 

Faust

New member
What I do: I wake up and do my albuterol while I do my first vest setting for 5 mins at 10 HZ's, then after my albuterol is done I turn it to the highest 25 hz's and do my huffs and coughs. Then I do my hypertonic with the vest setting on 15 hz's for 5 mins, after the vest stops I keep sitting on the foot pedal so the vest keeps going till it hits it's safety mechanism to stop after the bell has gone off. After a bit my hypertonic is done, and I again turn it to 25 hz's and do my huffs/coughs and get rid of more stuff. My last aresol is my colistin and I do that while my vest is on 20 hz's for 5 mins. I keep the vest going for a while on that setting until my neb is done, and then put it on 25 HZ's and do some real strong and productive huffs/coughs. All said and done, this takes me a little over an hour, maybe an hour and a half max if im cruising the net and not fully paying attention to my vest.


I do the same thing at night, with the exception of adding pulmozyme last to the routine (I keep the same vest routine, 5 mins each @ those settings with strong coughing at 25 hz's). Doing this routine enables me to work full time, and even with overtime. Of course we are all different, and I remember you saying your PFT's weren't as good as mine, so I have no idea what you truely require, and what may be timesink over kill for you, but that is what works for me, and it takes about 2-3 hrs from my day to keep myself in tip top shape.

As someone else has said, why are you doing pulmozyme twice a day? Everyone I know (myself included) does it once a day. I'm not sure if it would give further benefit at twice a day. Also I know there are varying opinions on the vest use, as in amount of time to use it at each setting etc, but I personally think 5 mins on each setting should be fine. Hell even if you do 10 mins, that's still only 30 mins (not with the huff settings). How long are you using your vest for on each setting? There is so much air flow in the lungs that the vest produces, I would think that after you are done with a neb, if you are doing your vest for like 15+ mins each setting, it could also be drying out your lungs due to the long periods of forced airflow.

I bet the vest settings you use are your biggest time culprit. If you could try and get more exercise during the day to help with bringing stuff up, maybe you could swap from 3 times a day vest and nebs, to twice a day? I dunno...Of course all speculation on my end, and I know we are all different, but doing my routine twice a day really works for me.
 

Faust

New member
What I do: I wake up and do my albuterol while I do my first vest setting for 5 mins at 10 HZ's, then after my albuterol is done I turn it to the highest 25 hz's and do my huffs and coughs. Then I do my hypertonic with the vest setting on 15 hz's for 5 mins, after the vest stops I keep sitting on the foot pedal so the vest keeps going till it hits it's safety mechanism to stop after the bell has gone off. After a bit my hypertonic is done, and I again turn it to 25 hz's and do my huffs/coughs and get rid of more stuff. My last aresol is my colistin and I do that while my vest is on 20 hz's for 5 mins. I keep the vest going for a while on that setting until my neb is done, and then put it on 25 HZ's and do some real strong and productive huffs/coughs. All said and done, this takes me a little over an hour, maybe an hour and a half max if im cruising the net and not fully paying attention to my vest.


I do the same thing at night, with the exception of adding pulmozyme last to the routine (I keep the same vest routine, 5 mins each @ those settings with strong coughing at 25 hz's). Doing this routine enables me to work full time, and even with overtime. Of course we are all different, and I remember you saying your PFT's weren't as good as mine, so I have no idea what you truely require, and what may be timesink over kill for you, but that is what works for me, and it takes about 2-3 hrs from my day to keep myself in tip top shape.

As someone else has said, why are you doing pulmozyme twice a day? Everyone I know (myself included) does it once a day. I'm not sure if it would give further benefit at twice a day. Also I know there are varying opinions on the vest use, as in amount of time to use it at each setting etc, but I personally think 5 mins on each setting should be fine. Hell even if you do 10 mins, that's still only 30 mins (not with the huff settings). How long are you using your vest for on each setting? There is so much air flow in the lungs that the vest produces, I would think that after you are done with a neb, if you are doing your vest for like 15+ mins each setting, it could also be drying out your lungs due to the long periods of forced airflow.

I bet the vest settings you use are your biggest time culprit. If you could try and get more exercise during the day to help with bringing stuff up, maybe you could swap from 3 times a day vest and nebs, to twice a day? I dunno...Of course all speculation on my end, and I know we are all different, but doing my routine twice a day really works for me.
 
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