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- Thread starter olive
- Start date
mamaScarlett
Active member
My 1st question is who told you that and what are they basing it off of? Your pfts? Current state of health? It has to be based on solid facts, which perhaps it might be for your situation.
Theres many many things to consider-that only you can honestly answer in your heart.
Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
(btw, I didn't do it, and we were very smart about preventing pregnancy)
A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
So 2 examples of BAD advice from doctors.
Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
Theres many many things to consider-that only you can honestly answer in your heart.
Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
(btw, I didn't do it, and we were very smart about preventing pregnancy)
A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
So 2 examples of BAD advice from doctors.
Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
mamaScarlett
Active member
My 1st question is who told you that and what are they basing it off of? Your pfts? Current state of health? It has to be based on solid facts, which perhaps it might be for your situation.
Theres many many things to consider-that only you can honestly answer in your heart.
Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
(btw, I didn't do it, and we were very smart about preventing pregnancy)
A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
So 2 examples of BAD advice from doctors.
Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
Theres many many things to consider-that only you can honestly answer in your heart.
Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
(btw, I didn't do it, and we were very smart about preventing pregnancy)
A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
So 2 examples of BAD advice from doctors.
Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
mamaScarlett
Active member
My 1st question is who told you that and what are they basing it off of? Your pfts? Current state of health? It has to be based on solid facts, which perhaps it might be for your situation.
<br />Theres many many things to consider-that only you can honestly answer in your heart.
<br />Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
<br />Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
<br />(btw, I didn't do it, and we were very smart about preventing pregnancy)
<br />A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
<br />So 2 examples of BAD advice from doctors.
<br />Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
<br />Theres many many things to consider-that only you can honestly answer in your heart.
<br />Do you have confidence in your doctor? If in fact your body can not sustain a pregnancy safely are you willing to be a mother in another way?-Adoption, etc? And its not just the pregnancy to consider, its after the pregnancy. Being pregnant is only 9 months of your life. Raising a child is many years-its wonderful!-Dont get me wrong, but the lifestyle of caring for a small baby and toddler can be more taxing on a cf mom than the actual pregnancy. It can be done successfully, as many moms here are proving, but it requires alot of planning, hard work and support. (like anything worthwhile in life)
<br />Most docs, especially Cf docs, are good. But of course there are some out there that aren't up to date, or are just wrong. I was given bad advice from 2 docs in my life when it came to having a baby, bad advice on both ends of the spectrum. When I was engaged and 19 a doctor suggested I tie my tubes to prevent pregnancy bc I could never hope to have children period. Even though I was extremely healthy at the time.
<br />(btw, I didn't do it, and we were very smart about preventing pregnancy)
<br />A 2nd doctor told me 4 years later that if I wanted kids with my husband I should just go ahead and 'give my husband a baby' no matter what happened to me-And I was very sick at the time. In no shape to safely carry a pregnancy.
<br />So 2 examples of BAD advice from doctors.
<br />Now, I am more healthy, I work extremely hard to stick to my health routine, whereas I did not when I was younger. I'm a stay at home mom. We planned it out, didn't rush into anything, and worked very hard for many years to safely go into a pregnancy. All women with Cf are different. You need more information before deciding anything.
I have quite bad doctors to be honest there not that specialisied in cf in my thoughts,they just said that having a baby could result in it dying or me cause i wont be able to go through the labour cause of my cf tests or something like that was very rushed and confusing to say the least. Its just i dont know what to do cause if these experts were ture in what they say i've died 6times now cause my mum kept been told by them i wouldn't make it pass such ages. so baby thing could be wrong too but i dont know
I have quite bad doctors to be honest there not that specialisied in cf in my thoughts,they just said that having a baby could result in it dying or me cause i wont be able to go through the labour cause of my cf tests or something like that was very rushed and confusing to say the least. Its just i dont know what to do cause if these experts were ture in what they say i've died 6times now cause my mum kept been told by them i wouldn't make it pass such ages. so baby thing could be wrong too but i dont know
I have quite bad doctors to be honest there not that specialisied in cf in my thoughts,they just said that having a baby could result in it dying or me cause i wont be able to go through the labour cause of my cf tests or something like that was very rushed and confusing to say the least. Its just i dont know what to do cause if these experts were ture in what they say i've died 6times now cause my mum kept been told by them i wouldn't make it pass such ages. so baby thing could be wrong too but i dont know
K
Keepercjr
Guest
Hi Olive
There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
K
Keepercjr
Guest
Hi Olive
There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
K
Keepercjr
Guest
Hi Olive
<br />
<br />There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
<br />
<br />I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
<br />
<br />Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
<br />
<br />There are real official studies done on pregnancy and CF - if you have good PFTs, the studies show that pregnancy does not cause a negative impact on our health. Of course there are exceptions (even healthy women w/o CF can have problems) but for the "average" healthy CFer, we do fine. I find the part about surviving labor laughable. I believe that every birth story I have read where a healthy CFer had a baby, CF played NO part in labor and delivery. I honestly don't even remember coughing during my births. I may have, but if I did, it wasn't much since I would have remembered. I even had a home water birth with my 2nd because I firmly believed that while CF may have had an impact on the pregnancy, it doesn't have am impact on birth. Of course if I had not been well when I went into labor, that would have changed things (I would have birthed in the hospital).
<br />
<br />I think the same things that "normal" women think about when having a baby apply to us too (ie, stable relationship, stable finances, etc), along with our health. If your health is stable, you have good PFTs, a good extended support system (you will need it!) then according to the studies, you are an acceptable candidate for having a baby (when only looking at the CF and health factor).
<br />
<br />Like Christian said, this is a decision only you can make. I suggest you spend some time on the internet and look up the studies about CF and pregnancy and familiarize yourself with the data. Good luck with whatever you choose.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>olive</b></i>
thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote></div>
PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
Go to cff.org for more information on doctors.
thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote></div>
PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
Go to cff.org for more information on doctors.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>olive</b></i>
thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote>
PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
Go to cff.org for more information on doctors.
thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote>
PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
Go to cff.org for more information on doctors.
mamaScarlett
Active member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>olive</b></i>
<br />
<br />thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote>
<br />
<br />PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
<br />Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
<br />Go to cff.org for more information on doctors.
<br />
<br />thanks so much both of u, yeah i found the labour thing quite funny too. what the pptf stand for?? i shall ceck more detailed into labour x thank you xx</end quote>
<br />
<br />PFT stands for pulmonary function test. Not sure where you are from-but if you have Cf and you aren't having them done....run, do not walk, run to a new doctor. For that matter, if you are considering having a child please please begin a relationship with an accredited Cf doctor.
<br />Yes I agree with Caroline about the birth statement. But even more so-about the affect on the baby. Your Cf should not affect the baby at all-provided typical pregnancy protocol is followed, as would be for any pregnant woman.
<br />Go to cff.org for more information on doctors.
Ive never heard of not before<img src="i/expressions/face-icon-small-sad.gif" border="0"> to behonest im abit disappointed in my cf team. Im from glasgow in scotland, the only hospital with cf doctors is gartnavel but they have admitted afew times that they dont know whats happening. Any ideas where i could see a better doctor or team??
Ive never heard of not before<img src="i/expressions/face-icon-small-sad.gif" border="0"> to behonest im abit disappointed in my cf team. Im from glasgow in scotland, the only hospital with cf doctors is gartnavel but they have admitted afew times that they dont know whats happening. Any ideas where i could see a better doctor or team??