Should it be considered?

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tiffanymarie316

New member
I know that we are supposed to trust our doctors. They've gone to college for many years and they know a lot. I'm currently 15, a female, and I've had many problems with my doctor. He diagnosed me with asthma about a year and a half ago, and for the most part, I accepted that. But my mom was diagnosed with CF when she was pregnant with my little brother. He was tested, but I never was. My mom brought that up to him when the asthma meds weren't having the desired effects, but he simply told her the tests she had must have been wrong and that she didn't have CF. I unno he's a doctor, and maybe he's right, but I am just so tired of this. I am constantly gasping for breath and my chest is heavy. I have bad arthritis in many of my joints. I have trouble digesting most food. I have a cough that alternates between wet and dry. On bad days I get lightheaded and dizzy, and weak. I don't know if I could have CF or not, but not knowing and not having a good treatment is just really exhausting and I just want to know if its possible for me to have CF and if I should ask about it. Due to another problem with that doctor, I'm getting a new one and I wasn't sure if I should bring it up when my parents make me go in. Thanks in advance for any replies :)
 
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nmw0615

New member
I'd bring it up. If you have CF, then you need to start getting treatment. If you don't, you still need to figure out what is causing your problems.
 
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Printer

Active member
Tiff:

The world is full of Doctors who can't even spell CF much diagnose or treat it. You should be seen by the CF Specialist that your Mother sees. Ignore every thing, about CF, that a non CF specialist says.
 
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windex125

Guest
I agree you shd be tested because you are hvg a lot of symptoms. Also I think its great you are getting in chg of yr body, since CF is different in symptoms a lot of us go undiagnosed. like myself in 1954 when I was born I was listed as failure to thrive and very sickly I'm not sure what they told my mom test wise but they said I had a disease called Cystic Fibrosis then at age 8 I was re tested with what was called a sweat test. It came in borderline. So then they told her I do not hv CF I went untreated for years till I took matters into my own hands in my 20's and got to a CF center where they did blood work, and also had what is called a nasal chloride test. which all came back positive. Good Luck to you. I hope for yr sake all is negative. My other 3 siblings were never tested.
 
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Deb

Guest
You definitely need a new doctor and also need to be seen at a CF center. Unfortunately there are still physicians out there that think adults cannot have CF and CF patients cannot have children. Hence your doctor saying your mother was misdiagnosed. I know this is true because I had doctors tell me there was no way I had CF. Finally at the age of 24 I went to a CF center and got the proper diagnosis. And by the way I have two children. Good luck to you.
 
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tiffanymarie316

New member
Thanks for all of your replies, I'm glad you guys see it as a reasonable concern. Hopefully I can get a new doctor soon, but IEHP doesn't make it easy at all. I appreciate your help :)
 
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