I agree. Test as much as you can. The symptoms sound so much like CF. We only had my son tested because we found out we were carriers during pregnancy and his newborn screen came back high. He still has few symptoms. No greasy stools (although very stinky), he is 95%tile weight, and has fought off colds like a champ. However, as an infant, he would wake up screaming and was VERY hard to console while awake. Looking back at things, that discomfort should have been addressed by his ped way better (knowing we were cf carriers). We were actually given an abdominal pain reliever. What he really needed was enzymes. Good luck!
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Should my son be teted?
- Thread starter mama9909
- Start date
I agree. Test as much as you can. The symptoms sound so much like CF. We only had my son tested because we found out we were carriers during pregnancy and his newborn screen came back high. He still has few symptoms. No greasy stools (although very stinky), he is 95%tile weight, and has fought off colds like a champ. However, as an infant, he would wake up screaming and was VERY hard to console while awake. Looking back at things, that discomfort should have been addressed by his ped way better (knowing we were cf carriers). We were actually given an abdominal pain reliever. What he really needed was enzymes. Good luck!
I agree. Test as much as you can. The symptoms sound so much like CF. We only had my son tested because we found out we were carriers during pregnancy and his newborn screen came back high. He still has few symptoms. No greasy stools (although very stinky), he is 95%tile weight, and has fought off colds like a champ. However, as an infant, he would wake up screaming and was VERY hard to console while awake. Looking back at things, that discomfort should have been addressed by his ped way better (knowing we were cf carriers). We were actually given an abdominal pain reliever. What he really needed was enzymes. Good luck!
I agree. Test as much as you can. The symptoms sound so much like CF. We only had my son tested because we found out we were carriers during pregnancy and his newborn screen came back high. He still has few symptoms. No greasy stools (although very stinky), he is 95%tile weight, and has fought off colds like a champ. However, as an infant, he would wake up screaming and was VERY hard to console while awake. Looking back at things, that discomfort should have been addressed by his ped way better (knowing we were cf carriers). We were actually given an abdominal pain reliever. What he really needed was enzymes. Good luck!
I agree. Test as much as you can. The symptoms sound so much like CF. We only had my son tested because we found out we were carriers during pregnancy and his newborn screen came back high. He still has few symptoms. No greasy stools (although very stinky), he is 95%tile weight, and has fought off colds like a champ. However, as an infant, he would wake up screaming and was VERY hard to console while awake. Looking back at things, that discomfort should have been addressed by his ped way better (knowing we were cf carriers). We were actually given an abdominal pain reliever. What he really needed was enzymes. Good luck!
K
kaylee04cassidy08
Guest
Push for the testing. It is simple and there is no reason not to get it if they even suspect CF. Also - if the sweat test was not done at an accredited CF center -- it may be inaccurate anyhow. Listen to your gut!
K
kaylee04cassidy08
Guest
Push for the testing. It is simple and there is no reason not to get it if they even suspect CF. Also - if the sweat test was not done at an accredited CF center -- it may be inaccurate anyhow. Listen to your gut!
K
kaylee04cassidy08
Guest
Push for the testing. It is simple and there is no reason not to get it if they even suspect CF. Also - if the sweat test was not done at an accredited CF center -- it may be inaccurate anyhow. Listen to your gut!
K
kaylee04cassidy08
Guest
Push for the testing. It is simple and there is no reason not to get it if they even suspect CF. Also - if the sweat test was not done at an accredited CF center -- it may be inaccurate anyhow. Listen to your gut!
K
kaylee04cassidy08
Guest
Push for the testing. It is simple and there is no reason not to get it if they even suspect CF. Also - if the sweat test was not done at an accredited CF center -- it may be inaccurate anyhow. Listen to your gut!
Thank you so much for all your advice. I finally got the referal through and he sees the CF doctor at Children's on the 11th. Does anyone have any advice on what can ease their stomach pains? Ive been giving him gripe water, it doesnt seem to really be helping. He doesnt sleep for more than 2 hours at a time, he just wakes up crying, Hes not hungry, he just cries for a little while until I am able to console him and get him back to sleep. They havent put him on enzymes yet, Im hoping after we see the CF doctor we can get some more answers. Thank you so much for all your advice, I will keep you posted on what the doctors have to say on the 11th!!
Thank you so much for all your advice. I finally got the referal through and he sees the CF doctor at Children's on the 11th. Does anyone have any advice on what can ease their stomach pains? Ive been giving him gripe water, it doesnt seem to really be helping. He doesnt sleep for more than 2 hours at a time, he just wakes up crying, Hes not hungry, he just cries for a little while until I am able to console him and get him back to sleep. They havent put him on enzymes yet, Im hoping after we see the CF doctor we can get some more answers. Thank you so much for all your advice, I will keep you posted on what the doctors have to say on the 11th!!
Thank you so much for all your advice. I finally got the referal through and he sees the CF doctor at Children's on the 11th. Does anyone have any advice on what can ease their stomach pains? Ive been giving him gripe water, it doesnt seem to really be helping. He doesnt sleep for more than 2 hours at a time, he just wakes up crying, Hes not hungry, he just cries for a little while until I am able to console him and get him back to sleep. They havent put him on enzymes yet, Im hoping after we see the CF doctor we can get some more answers. Thank you so much for all your advice, I will keep you posted on what the doctors have to say on the 11th!!
Thank you so much for all your advice. I finally got the referal through and he sees the CF doctor at Children's on the 11th. Does anyone have any advice on what can ease their stomach pains? Ive been giving him gripe water, it doesnt seem to really be helping. He doesnt sleep for more than 2 hours at a time, he just wakes up crying, Hes not hungry, he just cries for a little while until I am able to console him and get him back to sleep. They havent put him on enzymes yet, Im hoping after we see the CF doctor we can get some more answers. Thank you so much for all your advice, I will keep you posted on what the doctors have to say on the 11th!!
Thank you so much for all your advice. I finally got the referal through and he sees the CF doctor at Children's on the 11th. Does anyone have any advice on what can ease their stomach pains? Ive been giving him gripe water, it doesnt seem to really be helping. He doesnt sleep for more than 2 hours at a time, he just wakes up crying, Hes not hungry, he just cries for a little while until I am able to console him and get him back to sleep. They havent put him on enzymes yet, Im hoping after we see the CF doctor we can get some more answers. Thank you so much for all your advice, I will keep you posted on what the doctors have to say on the 11th!!