Siblings who both have CF

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MCPappy

New member
Hey everyone.  I am 20 and I have a 22 year old brother, we
both have CF.  We both were diagnosed when we were in high
school and now go to the same college.  We have completely
different ways of dealing with the disease and most of the time I
get really frustrated with him because we handle everything so
different from each other.  I mean I don't expect us to be the
same and I know people deal with situations differently but its
really hard not to compare to see who is doing more meds and taking
better care of themselves and who is the healthier one. Ya know? I
was just wondering if anyone else has a brother or sister who has
CF too and if this tends to happen to them.  Thanks everyone
=)<br>
Happy Saturday!
 
F

Faust

New member
If I had a sibling with CF I would probably have to kill them via decapitation with my ancient japanese sword...Ya know, that whole Highlander thing...


THERE CAN BE ONLY ONE!!!
 
J

Jane

Digital opinion leader
My two boys both have CF. They do deal with stuff differently. They have completely different personalities. The younger one is quiet and sweet, the older one is angry and intense. When they were little I thought my older one, being a great fighter, would really sock it to his disease. Fight back with all he had. Instead he became sad and depressed and defeated.

My younger one is completely compliant (so far). He rolls with things pretty well. He gets really upset when his brother doesn't take care of himself. They have so much in common with their disease and medical routine, it is kinda weird to see how differently they handle their cf.
 
A

anonymous

New member
Sorry, this is off-topic, but I had to laugh when Sean mentioned Highlander. I LOVE HIGHLANDER! There CAN only be one. Thanks for reminding me how great Highlander is.

BTW, I have a younger brother but he doesn't have CF, so no help from me about your question. Just got a little over-excited from Highlander flash-backs.
 
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Faust

New member
Heh yeah of course I wouldn't decapitate my CF sibling, but for some reason Highlander came to my mind. The first movie was amazing, but the sequels were being stupid.
 
J

Jane

Digital opinion leader
I enjoyed the tv version. Especially Adrian Paul<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

julie

New member
I just have to interject here... Whether or not what Sean said was funny, it's completely off topic and making light of what the initial poster had asked/shared with us. I don't think we always need to be serious, but there is a time and a place... and this post was NOT it.

Sean, once again... please keep in mind the whole appropriate time/place thing. Lord knows you are old enough to know better!
 
B

Brad

New member
Hello Melissa

I have a younger sister and a older brother, all three of
us have Cf, It seems the oldest has to do more that I
do and my younger sister does less that me.
I take nebs 4 times a day, I also use inhailers 2 kinds.
and I have more colds that her, my older brother
does his nebs 2 or 3 times a day, he is on Tobi
I have never used it , he also uses pulmazine < spelling ?

But as I am sure every one on this site will tell You.
Every case of Cf is different in some way from the next.

I don't know if that helps.
 
P

princessjdc

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i>

I just have to interject here... Whether or not what Sean said was funny, it's completely off topic and making light of what the initial poster had asked/shared with us. I don't think we always need to be serious, but there is a time and a place... and this post was NOT it.



Sean, once again... please keep in mind the whole appropriate time/place thing. Lord knows you are old enough to know better!</end quote></div>



I agree with Julie, it does get annoying when someone tries to change the subject on a topic that someone else wrote. as for me having a sibling with cf, I dont, Im the oldest of the three and the only one that got it, but if I did it would probably be different and frusting if they wouldnt take care of themselves like they should.
 
A

anonymous

New member
just want to say sorry your post got a little hijacked and I hope you can find more who can relate to your situation.
 
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anonymous

New member
I have a younger brother with Cf along with my self. We have it totally different his CF efeects more his stomach and mine is more my lung. He is 8 and carries a full time job. As for myself I am unable to work. I think that us both having CF has made us very close. But I can remember when we were younger he wanted nothing to do with the disease. Then when I got sick he was like WOW.. that is what I have the same thing. But he does not take his meds like he is suppose to and he is never in the hospital. I am always taking meds always in the hospital. But he does not tell alot of people what he has because he does not want to be treated diffrent. Me I tell everyone. And they are shocked.

Jennifer w/CF 32
 
E

EnergyGal

New member
In some families there seems to be competition. Perhaps in some families with CF siblings the competition maybe more pronounced. Some with CF may not take the best care of themselves just to not comply with everyone else just so they can stand out.

I do not have a sibling with CF but we competed with other things and eventually when we became older the competition was no longer there.

I think it is good that you take good care of yourself. Instead of whating to know what your brother is doing just say things, like I see you are keeping busy with things. Try not to focus on cf and maybe he will come around and share with you. Then you could by saying you are taking care of yourself you could say, oh I jog every day or workout often. Not mentioning CF at all.Show him you can take good care of yourself by not mentioning it. As time goes by, he will accept CF and do the things necessary so he can stay alive.
 
L

lovingBenandCambree

New member
I have a brother that is two years older than me. He and I have always handled CF differently. I am always the positvie one that is much sicker than He. He has been the more negative one that hardly does anything to take care of himself. Its hard to see how hard I have to work to breath and live where he just goes day in and day out without doing any treatments. But I have always said I am glad it is me and not him because if it were him I am afraid that he wouldn't even try and just give up. Hopefully now that he has a family that wouldn't be the case but I know that back in High School it would have been. His PFTS are in the 90s whereas mine are in the 50s. It is amazing to me how differently it effects siblings.

Emilee
 
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thefrogprincess

New member
Me and my older brother both have CF. As far as taking care of ourselves I'd say I do a better job. NEither of us has a severe case of CF but I've never been in IVs and he has quite a few times. He just doesn't do much of what the doc suggests. He thinks albuterol is a cure all drug.
 
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shauna

New member
My sister is 2 years younger than me and has cf as well...similar to emilee's brother- she doesnt do much in the way of treatments, pretty negative towards the whole life thing, in a way she's a bit in denial of having cf, but her pft's are always in the 90's. I'm pretty positive about it all...I love my life and do as much as I can to stay healthy but I'm always in and out of hospital and pft's have been lingering in the 40's and 50's for the past few years now. Don't know how it can affect siblings so differently...and I don't know how our attitudes can be so different when we were raised by the same parents?
 
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Faust

New member
I agree...only kill your sibling if you ARE a highlander, have a proper highlander sword, the sibling has CF, and your sibling really is into male CF fertillity. I mean, ya gotta do what ya gotta do ya know?
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>

I agree...only kill your sibling if you ARE a highlander, have a proper highlander sword, the sibling has CF, and your sibling really is into male CF fertillity. I mean, ya gotta do what ya gotta do ya know?</end quote></div>



I GUESS YOU ARE ON ANOTHER DRINKING SPREE, SEANDAVIS BECAUSE A FEW OF YOUR POSTS I HAVE SEEN TODAY ARE INAPPRORIATE. I TRY TO SAY TOO MUCH BECAUSE I DONT KNOW WHEN ITS ME BEING TOO SERIOUS OR WHEN ITS YOU BEING TOO RIDICULOUS!
 
K

kybert

New member
i have an older brother who had cf. he died about 14 years ago at 14. i think we are very similar in the we deal with cf, except that he was a bit more positive. but thats probably because he was a kid and never needed to worry or get down about adult responsibilities. sometimes my mum compares me to him and implies that i dont look after myself as much, but thats because i dont live at home and have someone around 24/7 doing everything for me!
 
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anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JazzysMom</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>



I agree...only kill your sibling if you ARE a highlander, have a proper highlander sword, the sibling has CF, and your sibling really is into male CF fertillity. I mean, ya gotta do what ya gotta do ya know?</end quote></div>







I GUESS YOU ARE ON ANOTHER DRINKING SPREE, SEANDAVIS BECAUSE A FEW OF YOUR POSTS I HAVE SEEN TODAY ARE INAPPRORIATE. I TRY TO SAY TOO MUCH BECAUSE I DONT KNOW WHEN ITS ME BEING TOO SERIOUS OR WHEN ITS YOU BEING TOO RIDICULOUS!</end quote></div>


No its not just you Mel, or just you Julie. I agree, I am sorry, I appreciate humor, but its very insulting to read it where things frankly are not funny. Its one thing to make light of a subject but to make fun of someones hardships is really a reflection of you.

I am sorry Melissa, I realize your issues with your sibling are serious ones or you would not have asked here for help. I am sorry to address this in your thread, I just really felt compelled to defend the dignity of your concerns. I dont take your concerns lightly and I dont find them funny. Again, good luck to you.
 
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