Siblings who both have CF

J

julie

New member
I am sorry to take away from the initial poster yet again, really I am.

SEAN, GET A FREAKING CLUE. IF YOU WANT TO START FUNNY BUSINESS, CREAT YOUR OWN FREAKING THREAD!!!!!!!!!!! To me, you are becoming more and more of a nusiance on these forums than of someone who has something, ANYTHING to offer the rest of us. Sure, humor is great but ONLY when used at the appropriate time.

I know you are the type to not be thwarted by others opinions, Great, good for you. But you are about to be asked to take your crap somewhere else if you can't behave yourself. You are a GROWN MAN for petes sake. Grow the F*ck up!!!!!!
 
L

LisaV

New member
I have nieces (by marriage), siblings just a few years apart, who both have CF.
They have very different personalities and CF has impacted them physically in very different ways so far (the older one has had many more exacerbations and many more IVs etc). The older one is angrier - and sometimes acts that out throuh what might be described as "noncompliance" but if I were her, I would be too. I like them both a lot. I identify with the older one more - because of the anger and rebellion I think.

Everybody's different.
That's part of the gift and joy of life I'm thinking.
Probably best not to compare yourself with your brother.
"Identify, don't compare" a friend once suggested to me when I was thrashing around in a bit of mess.
 
F

Faust

New member
Yes, because noting the similarity between two brothers in school that have CF (special and rare) and way different perspectives regarding how they treat themselves (good and evil duality with regards to the reference I made) to a fictional movie where two different immortal (irony comparison to CF) warriors fight it out, surely has no overt sardonic similarities. My reference was understood for what it was by several people, I can't help if you didn't see the similarities in what I was saying. And please Julie, spare me your self righteous "I will ask you to take it somewhere else". Who are you? Oh that's right, a user just like me. I don't know what I would do with myself if you asked me to go elsewhere. I mean, I might just dissolve into a crying, fetal position blob of self loathing and have to start beating up homeless people to compensate for the wounding of my inner child.


To reiterate to those who saw it otherwise: It was a completely innocuous reference to a popular movie. I could have just as easily responded in a form letter like manner like the others did, but what's the point?


For those who were seething due to misinterpretation of my point, I recommend you look into:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.midol.com/index.asp
">http://www.midol.com/index.asp
</a>

and/or


<a target=_blank class=ftalternatingbarlinklarge href="http://www.allaboutcounseling.com/anger.htm
">http://www.allaboutcounseling.com/anger.htm
</a>


<a target=_blank class=ftalternatingbarlinklarge href="http://www.apa.org/journals/releases/neu193288.pdf
">http://www.apa.org/journals/releases/neu193288.pdf
</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://dictionary.reference.com/search?q=irony
">http://dictionary.reference.com/search?q=irony
</a>
 
F

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ender</b></i>

Why does Sean do the things he does?



BECAUSE YOU TOUCH YOURSELF AT NIGHT!</end quote></div>


Hey now Kiel, i'm taking the internal guilt for everyone else, so they don't have to feel so bad about it! Remember way back in the day (from old movies and books etc), where parents told their male children not to touch yourself, because dead relatives watch you? LOL how messed up is that? If I was told that, I would have been very creative with my displays of onanism.
 
A

anonymous

New member
I had to really think about your post before responding to it. I have identicle twins with cf, they have both had the same complications both at the same time. They are both on the same medications also. But mentally, just thinking of it since reading the post, I dont think they do deal with it the same. My one guy does everything so matter of factly and the other fights it all the time. He does his meds etc, but only with him being constantly pushed to do so. Its not that he doesnt want to do them at all, but just has so much more he wants to get done first. He is the same one thats has such a hard time with hospital stays, has had trouble with nightmares in the past, but also seems to know more about the disease. I know its bound to effect both of my boys emotionally, but I never really stopped to think that it could be effecting them in different ways, dont know why I had never thought of it before, just never occured to me I guess.
Mel
 
M

melleemac

Guest
Oooops, that lat post was me, I forgot to sign in yet again, lol
Mel
 
A

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>julie</b></i>

I just have to interject here... Whether or not what Sean said was funny, it's completely off topic and making light of what the initial poster had asked/shared with us. I don't think we always need to be serious, but there is a time and a place... and this post was NOT it.



Sean, once again... please keep in mind the whole appropriate time/place thing. Lord knows you are old enough to know better!</end quote></div>

Holy Crap do you know how to lighten up I would post as myself but you might threaten to ban me since you're on a constant power trip kinda funny how julie threatens to get every Cfer banned for having an opinion but hmmm "one of these things are not like the other" it's YOU you don't even have CF maybe you and your comments should be banned I personally don't care about your corner take it a leave...atleast we'd have an opinion again
 
I

IG

Guest
Wow, get off your high horse, 'anon' I happen to have CF and I agree with ALL that Julie says on this topic, so it's not just an isolated incidence. Don't even think about making it an 'us' and 'them' thing. I think SeanDavis really needs to learn when to cool it. It's gotten to a point where I just recently blocked him because I think he's an immature guy who posts before he thinks. That's my .02$, and I WAS LOGGED IN!

And you know what, this is all I'm going to post on this subject. I used to think that CF.com was a great place but recently I've been rethinking that. It's really gone down the hole lately, which explains my lack of posting. Really between SeanDavis and his non-humorous attempts at humor and the CF2Chat type 'clicks' that have formed (sorry manda) it's getting to be unbearable and to the point that I'd rather leave if it comes to that, than deal with all of this crap that keeps popping up with SeanDavis.
 
E

Ender

New member
Clicks? what clicks? what the hell is going on?

Just chill...my god.

I don't get it...it's so funny. I've been laughing this whole time.

hahahahhahahahahahah
 
F

Faust

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://dictionary.reference.com/search?q=cliques
">http://dictionary.reference.com/search?q=cliques
</a>

I think she meant "Cliques".
 
J

julie

New member
You people who choose to come on here as anonymous and "beast" others really make me laugh about this whole situation.

Are you illiterate or just plain stupid? No, really? I'm not saying nobody's entitled to an opinion, I never stated that. We aren't ever all going to agree. What I am stating is that there is a time and a place for Sean's comments, because they are usually irrelevant to the topic at hand and when so, sometimes they really intimidate the initial poster.

And I don't get this banning thing... or where it comes from. I have no more power on this site than anyone else. My comments to ender and sean were more on a personal level and had nothing to do with banning. Banning doesn't happen for reason such as these (disagreements) nor do I have to power to do so. And repoting it to a moderator... if that's what your refering to, that doesn't ban someone. Rather the moderator might remind someone of the purpose of the board. If they won't listen to us, maybe they'll listen to him.

SO I ask you anonymous. What have you done for people on this site? I usually don't, but I WILL toot my own horn here. In the last 7 months, I have helped 3 other CFers win their disability cases, 2 were previously turned down 4 times for SSDI. Saved them time and Thousands of dollars each with a lawyer for their case. I have saved 6 different families a LOT of money on their taxes this year by sharing tax deduction tips for those who were interested, 1 family will also be filing an addendum to their return for next year and I've helped 2 families get on food stamps by helping them through a hearing to allow food to be counted as a medical deduction. Since you didn't sign in... what have you done for others on this board? Just curious

I may not have CF, but I, just as many other CFers, parents, wives, lovers, friends of CFers on this site have something to offer to others, as well as something to gain. If you don't care about my corner, why do you bother to mention it?

<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

shauna

New member
ohhhh that makes sense cos i was getting confused trying to think what clicks meant. this is making me laugh....btw just on topic again, my sister and i both had out appts today, i've been doing everything possible to stay well and she, well, hasnt and my pfts were 52% and hers were 96! go figure....
 
J

julie

New member
Tia, the CFF just announced another study going on in various states about modifier genes. Have you heard about that one? Maybe for those with siblings who are on this board, something like that might be appealing... help to figure out why people with the same mutations have such differences.

No real insight though on how siblings handle it differently though. My husband has CF, his brother and sisters aren't even carriers. 2 far ends of one spectrum for their family. I do imainge that my husbands brother would be in much worse shape though because he just doesn't respect his body or what he does with it.

Hope you get some more answers.
 
A

anonymous

New member
that is intersting julie....i'll look into that, thanks. i actually have another sister and i have a brother and neither are even carriers...its strange how it works out!

Tia...not logged in <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
A

anonymous

New member
My brother has CF too. He is in his early 20's and i am in my later 20's. We both do our treatments and go to the doc. He lives at home. I am married and live away from home. I tell the docs right away when i get sick. My mom has to call them for my brother. He has not grown up yet. He still acts like he is 14. His pfts are in the 80-90 range. Mine are in the 100 range. He does not like to talk about CF. I think it is good to talk about things that are challenges and find better ways to take care of ourselves. He is the quiet depressed type or the i am denial type from one day to the next. I fight this disease and always will. I am not going to let it hold me back.
 
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