Siblings

cedar

New member
Hi. I am new to this. But I have a question on siblings of CF. My son has a half brother with CF. I was asked to have my son tested by his father for it will help in research. I guess I don't understand how that will help. Should I then also get myself tested? I guess I don't want to put my son through something that he really doesn't need to be.

Also, does CF just "pop" up during a person's life or is it something you have from birth?

Thank you.
 

cedar

New member
Hi. I am new to this. But I have a question on siblings of CF. My son has a half brother with CF. I was asked to have my son tested by his father for it will help in research. I guess I don't understand how that will help. Should I then also get myself tested? I guess I don't want to put my son through something that he really doesn't need to be.

Also, does CF just "pop" up during a person's life or is it something you have from birth?

Thank you.
 

cedar

New member
Hi. I am new to this. But I have a question on siblings of CF. My son has a half brother with CF. I was asked to have my son tested by his father for it will help in research. I guess I don't understand how that will help. Should I then also get myself tested? I guess I don't want to put my son through something that he really doesn't need to be.

Also, does CF just "pop" up during a person's life or is it something you have from birth?

Thank you.
 

Beth

New member
Hi, I'm sure that they want to see if your son was passed the cf gene from his father. Both parents must have the gene for a child to have CF if your son is tested and tests positive for one gene than either you or his father passed it to him. If he has two genes than he is positive for CF and he recieved one gene from you and one from his father. CF is something that you are born with but sometimes the symptoms don't come along until later in life or are just mistaken for other things. My sister was not diagnosed until she was 12 although she had digestive issues her whole life. I hope this helps you and it would probably be a good idea to have your son tested to be on the safe side.


Beth
 

Beth

New member
Hi, I'm sure that they want to see if your son was passed the cf gene from his father. Both parents must have the gene for a child to have CF if your son is tested and tests positive for one gene than either you or his father passed it to him. If he has two genes than he is positive for CF and he recieved one gene from you and one from his father. CF is something that you are born with but sometimes the symptoms don't come along until later in life or are just mistaken for other things. My sister was not diagnosed until she was 12 although she had digestive issues her whole life. I hope this helps you and it would probably be a good idea to have your son tested to be on the safe side.


Beth
 

Beth

New member
Hi, I'm sure that they want to see if your son was passed the cf gene from his father. Both parents must have the gene for a child to have CF if your son is tested and tests positive for one gene than either you or his father passed it to him. If he has two genes than he is positive for CF and he recieved one gene from you and one from his father. CF is something that you are born with but sometimes the symptoms don't come along until later in life or are just mistaken for other things. My sister was not diagnosed until she was 12 although she had digestive issues her whole life. I hope this helps you and it would probably be a good idea to have your son tested to be on the safe side.


Beth
 

Beth

New member
I have two sisters one with CF and one without. We have all been tested (sweat test not genetic testing) and only one of us tested positive.


Beth
 

Beth

New member
I have two sisters one with CF and one without. We have all been tested (sweat test not genetic testing) and only one of us tested positive.


Beth
 

Beth

New member
I have two sisters one with CF and one without. We have all been tested (sweat test not genetic testing) and only one of us tested positive.


Beth
 
T

tammykrumrey

Guest
Being tested for CF, or for a CF mutation really isn't difficult, so I am not sure that I would worry about putting your son through too much. It would be important to know at some time in his life if he were to be a carrier (because it is certainly possible) of the gene when he were to marry someone and start a family. I am not sure how it would help in research unless the son w/CF is participating in a specific research study.

And yes, you are born with CF. The only thing that can just 'pop' up during someone's life would be different symptoms.
 
T

tammykrumrey

Guest
Being tested for CF, or for a CF mutation really isn't difficult, so I am not sure that I would worry about putting your son through too much. It would be important to know at some time in his life if he were to be a carrier (because it is certainly possible) of the gene when he were to marry someone and start a family. I am not sure how it would help in research unless the son w/CF is participating in a specific research study.

And yes, you are born with CF. The only thing that can just 'pop' up during someone's life would be different symptoms.
 
T

tammykrumrey

Guest
Being tested for CF, or for a CF mutation really isn't difficult, so I am not sure that I would worry about putting your son through too much. It would be important to know at some time in his life if he were to be a carrier (because it is certainly possible) of the gene when he were to marry someone and start a family. I am not sure how it would help in research unless the son w/CF is participating in a specific research study.

And yes, you are born with CF. The only thing that can just 'pop' up during someone's life would be different symptoms.
 

amber682

New member
I agree its a good idea to have him tested to see if he's a carrier for the reason Tammy said. Plus, it should just be a simple blood draw that the docs will send out to a lab. To have CF you'd have to be born with it, because you'd have two mutated genes (one from each parent). But sometimes symptoms don't show up for some time, so it could seem that it just popped up.
 

amber682

New member
I agree its a good idea to have him tested to see if he's a carrier for the reason Tammy said. Plus, it should just be a simple blood draw that the docs will send out to a lab. To have CF you'd have to be born with it, because you'd have two mutated genes (one from each parent). But sometimes symptoms don't show up for some time, so it could seem that it just popped up.
 

amber682

New member
I agree its a good idea to have him tested to see if he's a carrier for the reason Tammy said. Plus, it should just be a simple blood draw that the docs will send out to a lab. To have CF you'd have to be born with it, because you'd have two mutated genes (one from each parent). But sometimes symptoms don't show up for some time, so it could seem that it just popped up.
 

benji26

New member
My two children from a previous marriage have a half brother with CF. I will definately get them tested for carrier status when they are ready to have their own children. As I have had a son with CF I have passed on the CF gene and my other two children could be carriers

Donna
Mum to Benjamin 14mths wcf
Monique 13yrs no cf
Daniel 14yrs no cf
 

benji26

New member
My two children from a previous marriage have a half brother with CF. I will definately get them tested for carrier status when they are ready to have their own children. As I have had a son with CF I have passed on the CF gene and my other two children could be carriers

Donna
Mum to Benjamin 14mths wcf
Monique 13yrs no cf
Daniel 14yrs no cf
 

benji26

New member
My two children from a previous marriage have a half brother with CF. I will definately get them tested for carrier status when they are ready to have their own children. As I have had a son with CF I have passed on the CF gene and my other two children could be carriers

Donna
Mum to Benjamin 14mths wcf
Monique 13yrs no cf
Daniel 14yrs no cf
 
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