Hi Everyone.
This is really hard for me to post. My daughter is only 3 years old, and is in the process of being tested for CF. I won't know her results for 6 more days...which is killing me. I was hoping to post some of her info to see what everyone thought.
Her symptoms began just after she turned a year old. She would get frequent infections that seemed a lot like bronchitis. After she turned 2, she started getting them once a month. She would get a runny nose, cough, fever, and congestion. We would use a nebulizer at home, and withing about 5-7 days, it would clear up. After 6 months of this, our doctor referred us to a pulminary (sp?) specialist. He diagnosed her with asthma, and gave her an inhaler (Flovent) to help relieve these infections. Last month, we went to the ER and found out she had RSV and Pneumonia. This month (4 1/2 weeks later..) she was back in the hospital. This time, she was addmitted to the Peds ICU. She was taking 80 breaths per minute, wheezing, fever, continuous cough. They still passed it off as asthma, saying she's just suseptible to infections...even though my son (18 months), my husband, and I never pick up these infections from her...nor does anyone else we ahve regular contact with. She's never around anyone else that seems sick either.
I've been looking at the signs and symptoms... and I can agree with the obvious (coughing, frequent infections etc). She seems to do fine with BMs, she's complained about it "hurting" to go...but nothing mucus like or frequent diarreha. If anything, some minor constipation. She is thin, about 30 pounds...which is in the 30th percentile for her age. As for height, she's 3'2", which is in the 60th percentile. She eats really well, but has always been thin for her age. However, my son, is the same way...and he has no signs or symptoms at this point.
I'm not sure what I"m looking for at this point. I'm just sure that there's more to it than a few specific symptoms to answer my questions. She doesn't look like a sick child to me, but then again, I'm sure most children with CF don't "look" sick. Let me know what you all think, please..
This is really hard for me to post. My daughter is only 3 years old, and is in the process of being tested for CF. I won't know her results for 6 more days...which is killing me. I was hoping to post some of her info to see what everyone thought.
Her symptoms began just after she turned a year old. She would get frequent infections that seemed a lot like bronchitis. After she turned 2, she started getting them once a month. She would get a runny nose, cough, fever, and congestion. We would use a nebulizer at home, and withing about 5-7 days, it would clear up. After 6 months of this, our doctor referred us to a pulminary (sp?) specialist. He diagnosed her with asthma, and gave her an inhaler (Flovent) to help relieve these infections. Last month, we went to the ER and found out she had RSV and Pneumonia. This month (4 1/2 weeks later..) she was back in the hospital. This time, she was addmitted to the Peds ICU. She was taking 80 breaths per minute, wheezing, fever, continuous cough. They still passed it off as asthma, saying she's just suseptible to infections...even though my son (18 months), my husband, and I never pick up these infections from her...nor does anyone else we ahve regular contact with. She's never around anyone else that seems sick either.
I've been looking at the signs and symptoms... and I can agree with the obvious (coughing, frequent infections etc). She seems to do fine with BMs, she's complained about it "hurting" to go...but nothing mucus like or frequent diarreha. If anything, some minor constipation. She is thin, about 30 pounds...which is in the 30th percentile for her age. As for height, she's 3'2", which is in the 60th percentile. She eats really well, but has always been thin for her age. However, my son, is the same way...and he has no signs or symptoms at this point.
I'm not sure what I"m looking for at this point. I'm just sure that there's more to it than a few specific symptoms to answer my questions. She doesn't look like a sick child to me, but then again, I'm sure most children with CF don't "look" sick. Let me know what you all think, please..