After a tx do you still have CF? I mean you have "new" lungs but not a "new" digestive sysem etc. So do the "new" lungs just prolong life? Call me a dumby, just curious. My son is only 3 yrs old, so somewhat still new to ALL this, although he ws dx @ 2 months old. Still would like to know, he's lungs are , to me in bad shape already....lower left lobe extremly damaged & both top lobes midly damaged. He has been in the hospital 5x since birth the shortest being 2 days after a bronch & the longest being 14 days for one of many "tune ups". He's been on home ivs most every visit from the hosptial..... Just wondering too has anyone started out like this & somewhat improved? ( i know this is a progressive diesease, just looking for hope. Also has cultured for MRSA 2x & pseudamous (sp) has had pnuemonia 2x
Leah~mommy 2 Reece 3 w/ CF <img src="i/expressions/angel_ani.gif" border="0">
Leah~mommy 2 Reece 3 w/ CF <img src="i/expressions/angel_ani.gif" border="0">