Sinus surgery?

Tisha

New member
Maybe it's just me but surgery sounds rather unpleasant (opening up and scraping off? yuck!)
I've been using a neti pot for saline rinses since over 15 years ago and it works wonders!
Why don't you try that and see if it helps, before surgery??
 

Tisha

New member
Maybe it's just me but surgery sounds rather unpleasant (opening up and scraping off? yuck!)
I've been using a neti pot for saline rinses since over 15 years ago and it works wonders!
Why don't you try that and see if it helps, before surgery??
 
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welshwitch

Guest
The benefits to sinus surgery is that they are essentially removing the infected polyps out of your sinuses.....it's not the most pleasant experience, but trust me, the benefits are SOOOOO worth it if you are a candidate. I can't recommend it enough <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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welshwitch

Guest
The benefits to sinus surgery is that they are essentially removing the infected polyps out of your sinuses.....it's not the most pleasant experience, but trust me, the benefits are SOOOOO worth it if you are a candidate. I can't recommend it enough <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
Hi Melissa, good luck with the sinus crud. My son's had 3 sinus surgeries and each one was a blessing. If you've got polyps growing in there, they can often totally obstruct the passages, giving bacteria a great place to grow & thrive along with extra pressure, headaches and draining crud into your lungs to boot. Sinus flushes are great for maintaining clean sinuses, but if you're clogged up, they won't get where they need to be.
Two surgeries were combined with a bronch & other procedure so my kiddo was on iv antibiotics right after. One surgery was a day-surgery on its own and we didn't even ask about antibiotics. In the buzzing of polyps and widening passages, etc it ended up giving him a whopper of a sinus infection afterwards. From here out, we'll always ask to at least go home with oral antibiotics.
Ask if the surgeon performing the surgery has worked with CF patients before. Often chronic sinusitis and cf go hand in hand.
 
Hi Melissa, good luck with the sinus crud. My son's had 3 sinus surgeries and each one was a blessing. If you've got polyps growing in there, they can often totally obstruct the passages, giving bacteria a great place to grow & thrive along with extra pressure, headaches and draining crud into your lungs to boot. Sinus flushes are great for maintaining clean sinuses, but if you're clogged up, they won't get where they need to be.
Two surgeries were combined with a bronch & other procedure so my kiddo was on iv antibiotics right after. One surgery was a day-surgery on its own and we didn't even ask about antibiotics. In the buzzing of polyps and widening passages, etc it ended up giving him a whopper of a sinus infection afterwards. From here out, we'll always ask to at least go home with oral antibiotics.
Ask if the surgeon performing the surgery has worked with CF patients before. Often chronic sinusitis and cf go hand in hand.
 

LittleLab4CF

Super Moderator
Hi Sunshine, I have had two sinus surgeries, one cryo-cautery of the nasal turbinates (flaps of ruddy flesh). With both surgeries, they performed nasal septoplasties one to resolve a deviation, the second to fix the first. I am old when it comes to CF patients at 61. When I was an adolescent, my doctor would place me under a heat lamp and insert swabs doped with cocaine to drain and shrink the sinuses. Cryo-cautery as well as the cocaine treatments are old school. I had no concept of recreational use of cocaine and at the time, it was just great relief that lasted 4-6 months. I have one rule when a test or procedure is proposed. I ask if anything actionable or directly beneficial will come from what a doctor is proposing. One thing they don't mention is the scar lines from nasal reconstruction, be it sinuses, turbinates or septum is a magnet for acumulation of dry nasal mucus. When this mucus is dislodged, often it bleeds and you now have a scab and around you go again. I would get assurance that this is not going to happen to you with this surgery. I learned after the fact that intent and result can be quite different from one surgeon to another. Be absolutely satisfied by asking lots of questions before hand. If you live in a dry climate, this can be much worse than moderate to humid environment. If you fly a lot, or you live with low humidity, find a compounding pharmacy and get some nasal cream.

This is one surgery I think is worth a second opinion. Consider something as controversial as using Afrin. I prefer the generic, extra moisturizing equivelent. Afrin is one of the most addictive drugs ever made. Not in the real sense, but once you get that open free breathing feeling, it is hard to give it up, very hard. Long term use of Afrin causes blood vessels in the nasal area to migrate close to the membrane and engorge the musosa which has a whole set of its own problems including that rare pop on the nose you go straight to the ER or bleed like a faucet.
 

LittleLab4CF

Super Moderator
Hi Sunshine, I have had two sinus surgeries, one cryo-cautery of the nasal turbinates (flaps of ruddy flesh). With both surgeries, they performed nasal septoplasties one to resolve a deviation, the second to fix the first. I am old when it comes to CF patients at 61. When I was an adolescent, my doctor would place me under a heat lamp and insert swabs doped with cocaine to drain and shrink the sinuses. Cryo-cautery as well as the cocaine treatments are old school. I had no concept of recreational use of cocaine and at the time, it was just great relief that lasted 4-6 months. I have one rule when a test or procedure is proposed. I ask if anything actionable or directly beneficial will come from what a doctor is proposing. One thing they don't mention is the scar lines from nasal reconstruction, be it sinuses, turbinates or septum is a magnet for acumulation of dry nasal mucus. When this mucus is dislodged, often it bleeds and you now have a scab and around you go again. I would get assurance that this is not going to happen to you with this surgery. I learned after the fact that intent and result can be quite different from one surgeon to another. Be absolutely satisfied by asking lots of questions before hand. If you live in a dry climate, this can be much worse than moderate to humid environment. If you fly a lot, or you live with low humidity, find a compounding pharmacy and get some nasal cream.

This is one surgery I think is worth a second opinion. Consider something as controversial as using Afrin. I prefer the generic, extra moisturizing equivelent. Afrin is one of the most addictive drugs ever made. Not in the real sense, but once you get that open free breathing feeling, it is hard to give it up, very hard. Long term use of Afrin causes blood vessels in the nasal area to migrate close to the membrane and engorge the musosa which has a whole set of its own problems including that rare pop on the nose you go straight to the ER or bleed like a faucet.
 

running4life

New member
I've had two. One I was too young to remember. The second was 5 years ago and it was SO worth it. Waking up from anesthesia was rough for me since I got really nauseous, but they immediately gave me something in my IV to end that. I was fine by that evening and took it easy for the next several days. They gave me Lortabs for pain and only took them the first two days. I had headaches for the first few days and was perfectly fine after day 4. No more constant headaches and sinus infections. Easy surgery and recovery. Well worth the slight trouble and pain of surgery.
 

running4life

New member
I've had two. One I was too young to remember. The second was 5 years ago and it was SO worth it. Waking up from anesthesia was rough for me since I got really nauseous, but they immediately gave me something in my IV to end that. I was fine by that evening and took it easy for the next several days. They gave me Lortabs for pain and only took them the first two days. I had headaches for the first few days and was perfectly fine after day 4. No more constant headaches and sinus infections. Easy surgery and recovery. Well worth the slight trouble and pain of surgery.
 

Anomie

New member
I don't know how or why my kid wrote that above post. She's only 4. I guess she's anxious to join the forum.
 

Anomie

New member
I don't know how or why my kid wrote that above post. She's only 4. I guess she's anxious to join the forum.
 

MichaelL

New member
I had two sinus surgeries - one in 1993 and one in 1997. Both were before I was diagnosed with CF and I found them both helpful for my sinus problems. The ENT got me started rinsing my sinuses each morning with salt water using an ear syringe. I have found this very helpful and my sinuses have remained clear since the last surgery.
 

MichaelL

New member
I had two sinus surgeries - one in 1993 and one in 1997. Both were before I was diagnosed with CF and I found them both helpful for my sinus problems. The ENT got me started rinsing my sinuses each morning with salt water using an ear syringe. I have found this very helpful and my sinuses have remained clear since the last surgery.
 
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tammykrumrey

Guest
My 12 year old had sinus surgery around Thanksgiving last year AND she has done FANTASTIC ever since! She was on oral anitibiotics about once a month due to her sinuses causing her to cough. I was pretty confident that her cough was a sinus issue, and asked for a referral by our CF clinic to have them looked at. And sure enough, she was filled with mucus and polyps! The ENT, who told us upfront that she isn't one to jump into sinus surgery, said that Hannah was a great canidate for the procedure after looking at her. I was expecting a lot of discomfort and pain for her after the surgery, but she didn't even need the Rx pain meds filled. Just plain tylenol did the trick<img src="i/expressions/face-icon-small-smile.gif" border="0"> They told her prior to surgery that she would probably be stuffy afterwards, but she felt SOOOO much better immediately. Like others have mentioned above, she said "I can actually breath through my nose!!!" the first day after surgery<img src="i/expressions/face-icon-small-smile.gif" border="0"> It is apparently standard practice by her CF doctor, to start IV meds a week prior to the sinus surgery. That is the only time she has ever been on IV meds. And she was kept over night after the surgery, just to make sure she did ok with the pain. Again, she would do it over again in a heart beat! She was so tired of a stuffy nose, cough, and almost constant headaches! BTW, she has not needed any oral antibiotics since Thanksgiving, when she had the surgery!!! It really has been a blessing!
 
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tammykrumrey

Guest
My 12 year old had sinus surgery around Thanksgiving last year AND she has done FANTASTIC ever since! She was on oral anitibiotics about once a month due to her sinuses causing her to cough. I was pretty confident that her cough was a sinus issue, and asked for a referral by our CF clinic to have them looked at. And sure enough, she was filled with mucus and polyps! The ENT, who told us upfront that she isn't one to jump into sinus surgery, said that Hannah was a great canidate for the procedure after looking at her. I was expecting a lot of discomfort and pain for her after the surgery, but she didn't even need the Rx pain meds filled. Just plain tylenol did the trick<img src="i/expressions/face-icon-small-smile.gif" border="0"> They told her prior to surgery that she would probably be stuffy afterwards, but she felt SOOOO much better immediately. Like others have mentioned above, she said "I can actually breath through my nose!!!" the first day after surgery<img src="i/expressions/face-icon-small-smile.gif" border="0"> It is apparently standard practice by her CF doctor, to start IV meds a week prior to the sinus surgery. That is the only time she has ever been on IV meds. And she was kept over night after the surgery, just to make sure she did ok with the pain. Again, she would do it over again in a heart beat! She was so tired of a stuffy nose, cough, and almost constant headaches! BTW, she has not needed any oral antibiotics since Thanksgiving, when she had the surgery!!! It really has been a blessing!
 
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