my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Sitting here in tears and am shocked (update)
- Thread starter my65roses4me
- Start date
my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
my65roses4me
New member
I am not sure yet. I will find that out on Thurs and let oyu all know. I have a feeling it wont be full but pretty close to it. But we'll see.
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div>
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote>
blondelawyer
New member
Sitting here in tears and am shocked
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote>
When I had mine done, they only checked for the most common genes (which at the time was a really low number, I think that they checked for a total of 6!--so I still have about a 1% chance of being a carrier according to Steve from Ambry). I recently started to think about having the full panel done, but my insurance won't cover it, so I have to decide whether to fight them on it or not (since we are not sure that we are going to have children anyway). The insurance company would only cover it if I was already pregnant--how messed up is that!
Anyway, I guess my point is that even if the clinic orders the full test, you may have to fight with your insurance company to get it covered. It can be done, but you will probably have to jump through a bunch of hoops, etc.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote>
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></div></end quote></div>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></end quote>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></end quote>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
Sitting here in tears and am shocked
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></end quote>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
When clinics order testing for partners, which do they do - most common mutations or the fullest panel possible .... or something else?</end quote></end quote>
My hubby was tested in 2004 by request of my cf doctor who was a pulmonologist. We didn't ask insurance or admit it was for conception planning purposes. I suppose the suspected my husband was seeing my doctor for pulmonary complications that were cf suspect. Anyway, the doctor said he'd run it for 98% of the known mutations. Sounded good to us. Turns out that was the Genzyme 89 mutation test. During our first trimester of pregnancy, when we were going over our 13 week blood test regarding risk for Downs, Trisomy 18 and Spina Bifida with the genetic counselor we discussed cf and other family ailments like epilepsy. She told us that the 89 mutation test left us with a 1 in 500 chance that our baby would have cf. I was very surprised it was still this high after having thought we were pretty conclusive in our testing.
My son will be tested with Ambry or Quest and should DH and I pursue any further children by birth we'll have him tested extensively too. Heck we might even do it just because I'm curious.
I should rephrase that... We wanted to have hubby tested for conception purposes and my cf doctor suggested that he submit the test so that insurance would cover it. The cf doctor knew we were testing DH for carrier status. Also, he mentioned that he wouldn't be writing the order for "carrier testing" but rather "cf testing" as carrier testing sets off a red "conception" flag.
I should rephrase that... We wanted to have hubby tested for conception purposes and my cf doctor suggested that he submit the test so that insurance would cover it. The cf doctor knew we were testing DH for carrier status. Also, he mentioned that he wouldn't be writing the order for "carrier testing" but rather "cf testing" as carrier testing sets off a red "conception" flag.