jbrandonAW
New member
I think you have made the right decision! I see a team, but e prefer one dr over another. I will see the local base doctor for non-major things and they are pretty good about saying whether or not to go to the CF doctor.
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So frustrated with Dr. and wondering what the rest of you do...
I agree, Zeke would be much better served being seen by a team and think it would be to his benefit to transfer his care to a real team and one that is more responsive to you when you need to be in communication with them!
The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
I agree, Zeke would be much better served being seen by a team and think it would be to his benefit to transfer his care to a real team and one that is more responsive to you when you need to be in communication with them!
The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
I agree, Zeke would be much better served being seen by a team and think it would be to his benefit to transfer his care to a real team and one that is more responsive to you when you need to be in communication with them!
<br />
<br />The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
<br />
<br />Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
<br />
<br />Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
<br />
<br />The fields of CF and gastroenterology are both much too specialized for one doctor to be able to keep on top of the latest advances in both. That makes NO sense to me. <img src="i/expressions/face-icon-small-confused.gif" border="0"> And team members w/ their own areas of expertise all have the time and resources to then give it their full attention... this is to the benefit of their patients.
<br />
<br />Emily is seen every time by a team comprised of the dr (there are several, she usually sees one of two in particular that we really like), a cf nurse, a social worker, an rt, a nutritionist, a pt (seen every so often to check on how things are going with the vest/airway clearance, etc), and a clinical research director (she mainly follows kids involved in trials but occasionally checks in with all the kids.) She has been referred to the GI- there is a practice at the same hospital as the CF clinic and one in particular that works with the CF kids, she's also been referred to ped surgery, and the drs there also work closely with the CF clinic. I wouldn't want her CF team to try and handle everything- I appreciate them being specialists in what they do and know they work well with the other departments of the hospital when the need arises.
<br />
<br />Her pediatrician is local (clinic is more than an hour away), but we don't use the ped all too often. The pediatric care center at our local hospital has an affiliation with the children's hospital where our cf clinic is, which I like.
L
Lety
Guest
Alexa has a care team at our cf clinic. The CF clinic has a nutritionist, pulmonologist, cf nurse, respiratory person. I'm so glad to live in a city with a CF Center. Hope things get better.
L
Lety
Guest
Alexa has a care team at our cf clinic. The CF clinic has a nutritionist, pulmonologist, cf nurse, respiratory person. I'm so glad to live in a city with a CF Center. Hope things get better.
L
Lety
Guest
Alexa has a care team at our cf clinic. The CF clinic has a nutritionist, pulmonologist, cf nurse, respiratory person. I'm so glad to live in a city with a CF Center. Hope things get better.
When my son Parker was origionally diagnosed, my insurance did not cover the local CF clinic. However the Pulmonologist who treats him works at both Tulane Medical Center (CF Clinic) and Children's Hospital of New Orleans (where my insurance does cover). Parker sees a pediatrician where we live and we travel to New Orleans for his CF care (2 hour drive). I had a conversation with his pediatrician once about this. Parker's CF decisions are made by the treatment team that Parker sees and all other medical decisions are made by his pediatrician. We have never changed his CF care due to poor service and when my insurance changed to include Tulane we decided to stay at Childrens because it has been working. If a doctor's office is not going to treat you properly then you should move care. If this guy is trying to cover all of Zeke's needs and he is out of town a lot then it may be time to find someone who makes Zeke a little more of a priority.
When my son Parker was origionally diagnosed, my insurance did not cover the local CF clinic. However the Pulmonologist who treats him works at both Tulane Medical Center (CF Clinic) and Children's Hospital of New Orleans (where my insurance does cover). Parker sees a pediatrician where we live and we travel to New Orleans for his CF care (2 hour drive). I had a conversation with his pediatrician once about this. Parker's CF decisions are made by the treatment team that Parker sees and all other medical decisions are made by his pediatrician. We have never changed his CF care due to poor service and when my insurance changed to include Tulane we decided to stay at Childrens because it has been working. If a doctor's office is not going to treat you properly then you should move care. If this guy is trying to cover all of Zeke's needs and he is out of town a lot then it may be time to find someone who makes Zeke a little more of a priority.
When my son Parker was origionally diagnosed, my insurance did not cover the local CF clinic. However the Pulmonologist who treats him works at both Tulane Medical Center (CF Clinic) and Children's Hospital of New Orleans (where my insurance does cover). Parker sees a pediatrician where we live and we travel to New Orleans for his CF care (2 hour drive). I had a conversation with his pediatrician once about this. Parker's CF decisions are made by the treatment team that Parker sees and all other medical decisions are made by his pediatrician. We have never changed his CF care due to poor service and when my insurance changed to include Tulane we decided to stay at Childrens because it has been working. If a doctor's office is not going to treat you properly then you should move care. If this guy is trying to cover all of Zeke's needs and he is out of town a lot then it may be time to find someone who makes Zeke a little more of a priority.