Thank you so much! I feel very lucky to have been so warmly welcomed! Although I have lots of CF friends, I've never known any of them go through a pregnancy so it's lovely to feel there is a place where I can chat to people in the same situation.
When my husband (been married 3 years) and I asked my consultant about the possibility of having a baby, we were fully expecting him to say "No, you really shouldn't, your lung function is too low" but we needed to know once and for all if it was a possibility or if we should put it out of our minds forever.
He explained all the risks and research to us, we discussed possible effects of drugs on the baby, how many CF women suffer after the birth because of the work involved in caring for a small child, etc etc. But he said to me that he felt that although my lung function was just below the normal 'minimum' of 50%, it is very stable and so he would fully support me if we decided to go for it. He said they had got 9 CF mothers safely through pregnancy and he felt they would have a very good chance of doing the same for me.
My CF team are amazing, they stop at nothing to keep their patients healthy. I know that if I do get pregnant they will monitor me very closely and treat me very carefully. They work in combination with an OB/GYN team who have looked after CF women before and are at a hospital round the corner from them.
Obviously I'm still a bit nervous - I'm fully aware of the risks and how hard it may turn out to be but the one thing that makes it possible in my mind is that I have a fantastic husband who is at home with me fulltime and who cares for me incredibly well and would also offer loads of support with the baby too. Otherwise, I don't think it would be an option as children require so much energy which I don't always have at times!
My HSG and blood tests were all fine but I had a post-coital test last month and the nurse said my CM was so sticky it was like "wallpaper paste!" (sorry TMI!) I've been trying for months with no luck so they are now going to give me a mucus-thinning drug and if that doesn't work, advise IUI.
Anyway, sorry for the long message - just thought I'd explain the stage I'm at! As I say, thanks so much for making me feel so welcome, I never thought I'd find so many other CF Mums to chat to! xxx
When my husband (been married 3 years) and I asked my consultant about the possibility of having a baby, we were fully expecting him to say "No, you really shouldn't, your lung function is too low" but we needed to know once and for all if it was a possibility or if we should put it out of our minds forever.
He explained all the risks and research to us, we discussed possible effects of drugs on the baby, how many CF women suffer after the birth because of the work involved in caring for a small child, etc etc. But he said to me that he felt that although my lung function was just below the normal 'minimum' of 50%, it is very stable and so he would fully support me if we decided to go for it. He said they had got 9 CF mothers safely through pregnancy and he felt they would have a very good chance of doing the same for me.
My CF team are amazing, they stop at nothing to keep their patients healthy. I know that if I do get pregnant they will monitor me very closely and treat me very carefully. They work in combination with an OB/GYN team who have looked after CF women before and are at a hospital round the corner from them.
Obviously I'm still a bit nervous - I'm fully aware of the risks and how hard it may turn out to be but the one thing that makes it possible in my mind is that I have a fantastic husband who is at home with me fulltime and who cares for me incredibly well and would also offer loads of support with the baby too. Otherwise, I don't think it would be an option as children require so much energy which I don't always have at times!
My HSG and blood tests were all fine but I had a post-coital test last month and the nurse said my CM was so sticky it was like "wallpaper paste!" (sorry TMI!) I've been trying for months with no luck so they are now going to give me a mucus-thinning drug and if that doesn't work, advise IUI.
Anyway, sorry for the long message - just thought I'd explain the stage I'm at! As I say, thanks so much for making me feel so welcome, I never thought I'd find so many other CF Mums to chat to! xxx