So Much for Atypical CF...

[amyr]

Cultures for all three just mixed resp flora so that's fantastic news!! We are going to head to the GI/liver specialist and then deal with the glucose issue. I read a very interesting journal last night that discussed how kidney stones are common in CF and it's the PI that's to blame. I'll take clean lungs for now<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[amyr]

Mistyjo: forgot to mention that we never had a dx of crms, has always been coded as CF...and one more thing with us for whatever reason is that the pulmozyme works wonders on the vomiting and belly aches!! Probably thins the mucus in the belly..

 

[patrish22]

Please define "atypical". I'm Mom of 3 w/ CF. Although they are all the same mutation, they have each experienced different manifestations of this disease, would like to hear more on your topic.

 

[patrish22]

Please define "atypical". I'm Mom of 3 w/ CF. Although they are all the same mutation, they have eachexperienced different manifestations of this disease, would like to hear more on your topic.

 

[patrish22]

Please define "atypical". I'm Mom of 3 w/ CF. Although they are all the same mutation, they have eachexperienced different manifestations of this disease, would like to hear more on your topic.<BR>

 

[amyr]

patrish22,
I have defined Atypical CF in my website and provided published medical journals to further explain. Please let me know if you have any questions. I am by no means an expert I am just sharing what I have learned about this disease. Below is the link to the Atypical CF page of my site.

<A HREF="http://www.connections4life.com/Atypical-Cystic-Fibrosis.html">http://www.connections4life.com/Atypical-Cystic-Fibrosis.html</A>

 

[amyr]

patrish22,
I have defined Atypical CF in my website and provided published medical journals to further explain. Please let me know if you have any questions. I am by no means an expert I am just sharing what I have learned about this disease. Below is the link to the Atypical CF page of my site.

<A HREF="http://www.connections4life.com/Atypical-Cystic-Fibrosis.html">http://www.connections4life.com/Atypical-Cystic-Fibrosis.html</A>

 

[amyr]

patrish22,
<br />I have defined Atypical CF in my website and provided published medical journals to further explain. Please let me know if you have any questions. I am by no means an expert I am just sharing what I have learned about this disease. Below is the link to the Atypical CF page of my site.
<br />
<br /> <A HREF="http://www.connections4life.com/Atypical-Cystic-Fibrosis.html">http://www.connections4life.com/Atypical-Cystic-Fibrosis.html</A>

 

[Mistyjo]

Hmmm.... I will remember that about the pulmozyme. I can't hardly take listening to my daughter crying from belly, rectal pain anymore. It took 1.5 hrs the other night for her to have a bm. I'm hoping the enzymes help.

 

[Mistyjo]

Hmmm.... I will remember that about the pulmozyme. I can't hardly take listening to my daughter crying from belly, rectal pain anymore. It took 1.5 hrs the other night for her to have a bm. I'm hoping the enzymes help.

 

[Mistyjo]

Hmmm.... I will remember that about the pulmozyme. I can't hardly take listening to my daughter crying from belly, rectal pain anymore. It took 1.5 hrs the other night for her to have a bm. I'm hoping the enzymes help.