So much to learn... help

Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.



</end quote></div>

More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.
 
Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.



</end quote></div>

More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.
 
Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.



</end quote></div>

More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.
 
Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.



</end quote>

More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.
 
Y

ymikhale

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<br />
<br />And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.
<br />
<br />
<br />
<br /></end quote>
<br />
<br /> More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.
 
W

whatzleft

Guest
First of all, sorry to hear about your son. CF can run in so many different stages, my son is 23 and does pretty well. Sure we've had our many trips for hosptial stays ect. But he does well and was dignosed at 3 weeks. He is pancreatic insufficent also, and had very little lung problems although they are starting to arise more now. Stay on the enzymes, my son takes MT-20's 10 with each meal and has for years. He also does the albuterol (puffs)3 times a day or more if needed and pulmozyme once a day. He has had a normal life tho, he played soccer all thru school and was pretty active. Do try and find a CF clinic to go to tho, even if it's a few miles from home. I have found most Dr.s have no idea how to treat CF, he needs a good CF Dr. One more thought on living life as normal as possible.... Let him do all the things he can do growing up, let him be a kid, and be active. The more active he is the better it will be for his lungs. Best thing we did for my son was buy him a trampoline at age 6, he jumped on that thing wearing out 3 pads over the years, and it seemed to help keep him strong and lungs in better shape. Good luck to you, and keep your head up, and most importantly, enjoy everyday that is good, and try not to worry too much about tomorrow and the future. Save the worry part for when you'll really need it. Again, good luck, and may God Bless you and your son.
 
W

whatzleft

Guest
First of all, sorry to hear about your son. CF can run in so many different stages, my son is 23 and does pretty well. Sure we've had our many trips for hosptial stays ect. But he does well and was dignosed at 3 weeks. He is pancreatic insufficent also, and had very little lung problems although they are starting to arise more now. Stay on the enzymes, my son takes MT-20's 10 with each meal and has for years. He also does the albuterol (puffs)3 times a day or more if needed and pulmozyme once a day. He has had a normal life tho, he played soccer all thru school and was pretty active. Do try and find a CF clinic to go to tho, even if it's a few miles from home. I have found most Dr.s have no idea how to treat CF, he needs a good CF Dr. One more thought on living life as normal as possible.... Let him do all the things he can do growing up, let him be a kid, and be active. The more active he is the better it will be for his lungs. Best thing we did for my son was buy him a trampoline at age 6, he jumped on that thing wearing out 3 pads over the years, and it seemed to help keep him strong and lungs in better shape. Good luck to you, and keep your head up, and most importantly, enjoy everyday that is good, and try not to worry too much about tomorrow and the future. Save the worry part for when you'll really need it. Again, good luck, and may God Bless you and your son.
 
W

whatzleft

Guest
First of all, sorry to hear about your son. CF can run in so many different stages, my son is 23 and does pretty well. Sure we've had our many trips for hosptial stays ect. But he does well and was dignosed at 3 weeks. He is pancreatic insufficent also, and had very little lung problems although they are starting to arise more now. Stay on the enzymes, my son takes MT-20's 10 with each meal and has for years. He also does the albuterol (puffs)3 times a day or more if needed and pulmozyme once a day. He has had a normal life tho, he played soccer all thru school and was pretty active. Do try and find a CF clinic to go to tho, even if it's a few miles from home. I have found most Dr.s have no idea how to treat CF, he needs a good CF Dr. One more thought on living life as normal as possible.... Let him do all the things he can do growing up, let him be a kid, and be active. The more active he is the better it will be for his lungs. Best thing we did for my son was buy him a trampoline at age 6, he jumped on that thing wearing out 3 pads over the years, and it seemed to help keep him strong and lungs in better shape. Good luck to you, and keep your head up, and most importantly, enjoy everyday that is good, and try not to worry too much about tomorrow and the future. Save the worry part for when you'll really need it. Again, good luck, and may God Bless you and your son.
 
W

whatzleft

Guest
First of all, sorry to hear about your son. CF can run in so many different stages, my son is 23 and does pretty well. Sure we've had our many trips for hosptial stays ect. But he does well and was dignosed at 3 weeks. He is pancreatic insufficent also, and had very little lung problems although they are starting to arise more now. Stay on the enzymes, my son takes MT-20's 10 with each meal and has for years. He also does the albuterol (puffs)3 times a day or more if needed and pulmozyme once a day. He has had a normal life tho, he played soccer all thru school and was pretty active. Do try and find a CF clinic to go to tho, even if it's a few miles from home. I have found most Dr.s have no idea how to treat CF, he needs a good CF Dr. One more thought on living life as normal as possible.... Let him do all the things he can do growing up, let him be a kid, and be active. The more active he is the better it will be for his lungs. Best thing we did for my son was buy him a trampoline at age 6, he jumped on that thing wearing out 3 pads over the years, and it seemed to help keep him strong and lungs in better shape. Good luck to you, and keep your head up, and most importantly, enjoy everyday that is good, and try not to worry too much about tomorrow and the future. Save the worry part for when you'll really need it. Again, good luck, and may God Bless you and your son.
 
W

whatzleft

Guest
First of all, sorry to hear about your son. CF can run in so many different stages, my son is 23 and does pretty well. Sure we've had our many trips for hosptial stays ect. But he does well and was dignosed at 3 weeks. He is pancreatic insufficent also, and had very little lung problems although they are starting to arise more now. Stay on the enzymes, my son takes MT-20's 10 with each meal and has for years. He also does the albuterol (puffs)3 times a day or more if needed and pulmozyme once a day. He has had a normal life tho, he played soccer all thru school and was pretty active. Do try and find a CF clinic to go to tho, even if it's a few miles from home. I have found most Dr.s have no idea how to treat CF, he needs a good CF Dr. One more thought on living life as normal as possible.... Let him do all the things he can do growing up, let him be a kid, and be active. The more active he is the better it will be for his lungs. Best thing we did for my son was buy him a trampoline at age 6, he jumped on that thing wearing out 3 pads over the years, and it seemed to help keep him strong and lungs in better shape. Good luck to you, and keep your head up, and most importantly, enjoy everyday that is good, and try not to worry too much about tomorrow and the future. Save the worry part for when you'll really need it. Again, good luck, and may God Bless you and your son.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ymikhale</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>



And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.







</end quote></div>



More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.</end quote></div>




You are right. Quality of life is important too.

I would have such a tough time without my Vest - traveling, working, college. Having to depend on someone to do manual CPT or be limited to the flutter or acapella would dramatically reduce my quality of life.

So you're right - understanding both quality and quantity of life is very important.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ymikhale</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>



And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.







</end quote></div>



More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.</end quote></div>




You are right. Quality of life is important too.

I would have such a tough time without my Vest - traveling, working, college. Having to depend on someone to do manual CPT or be limited to the flutter or acapella would dramatically reduce my quality of life.

So you're right - understanding both quality and quantity of life is very important.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ymikhale</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>



And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.







</end quote></div>



More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.</end quote></div>




You are right. Quality of life is important too.

I would have such a tough time without my Vest - traveling, working, college. Having to depend on someone to do manual CPT or be limited to the flutter or acapella would dramatically reduce my quality of life.

So you're right - understanding both quality and quantity of life is very important.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ymikhale</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>



And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.







</end quote>



More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.</end quote>




You are right. Quality of life is important too.

I would have such a tough time without my Vest - traveling, working, college. Having to depend on someone to do manual CPT or be limited to the flutter or acapella would dramatically reduce my quality of life.

So you're right - understanding both quality and quantity of life is very important.
 
S

saveferris2009

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ymikhale</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<br />
<br />
<br />
<br />And rest assured - although healthcare may be more expensive here (stick with a PPO if you can manage...), life expectancy for CFer's tends to be quite a bit higher than in other countries with CF people.
<br />
<br />
<br />
<br />
<br />
<br />
<br />
<br /></end quote>
<br />
<br />
<br />
<br /> More expensive healthcare does not necerally mean higher life expecancy: here in France we don't pay for healthcare and have the same life expectancy as in the US.</end quote>
<br />
<br />
<br />
<br />
<br />You are right. Quality of life is important too.
<br />
<br />I would have such a tough time without my Vest - traveling, working, college. Having to depend on someone to do manual CPT or be limited to the flutter or acapella would dramatically reduce my quality of life.
<br />
<br />So you're right - understanding both quality and quantity of life is very important.
 
U

UsualSuspect

New member
The US could also learn quite a bit by paying more attention to what the Scandinavian nations do, but don't group them together since there are big differences between Denmark and Sweden. Nonetheless, they use a lot of things that don't cost much, but often work just as well, if not better, than some of the hideously expensive medications here.
 
U

UsualSuspect

New member
The US could also learn quite a bit by paying more attention to what the Scandinavian nations do, but don't group them together since there are big differences between Denmark and Sweden. Nonetheless, they use a lot of things that don't cost much, but often work just as well, if not better, than some of the hideously expensive medications here.
 
U

UsualSuspect

New member
The US could also learn quite a bit by paying more attention to what the Scandinavian nations do, but don't group them together since there are big differences between Denmark and Sweden. Nonetheless, they use a lot of things that don't cost much, but often work just as well, if not better, than some of the hideously expensive medications here.
 
U

UsualSuspect

New member
The US could also learn quite a bit by paying more attention to what the Scandinavian nations do, but don't group them together since there are big differences between Denmark and Sweden. Nonetheless, they use a lot of things that don't cost much, but often work just as well, if not better, than some of the hideously expensive medications here.
 
U

UsualSuspect

New member
The US could also learn quite a bit by paying more attention to what the Scandinavian nations do, but don't group them together since there are big differences between Denmark and Sweden. Nonetheless, they use a lot of things that don't cost much, but often work just as well, if not better, than some of the hideously expensive medications here.
 
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