I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?<img src="i/expressions/face-icon-small-confused.gif" border="0">So anyhow, just to be perfectly clear. <b>You need to take her to a CF Clinic to see what they think.</b> A GI or Pulmo would not be knowledgable enough to deal with diagnosing or not diagnosing a child that doesn't have two mutations - they may not even realize that you can have CF without the second mutation being found yet. Hence why I was discussing my son having no mutations but lots of symptoms and still having a CF diagnosis - he was diagnosed by the CF Clinic. Had we not gone to the CF Clinic we would still be wondering about his problems.So, yes I think you need to rule out CF (by going to a CF Center) and then if it is truly ruled out then you go on to figure out what is causing her problems.
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So sorry! Typing.While.Upset. (ignore previous ramblings)
- Thread starter Kkids
- Start date
I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?<img src="i/expressions/face-icon-small-confused.gif" border="0">So anyhow, just to be perfectly clear. <b>You need to take her to a CF Clinic to see what they think.</b> A GI or Pulmo would not be knowledgable enough to deal with diagnosing or not diagnosing a child that doesn't have two mutations - they may not even realize that you can have CF without the second mutation being found yet. Hence why I was discussing my son having no mutations but lots of symptoms and still having a CF diagnosis - he was diagnosed by the CF Clinic. Had we not gone to the CF Clinic we would still be wondering about his problems.So, yes I think you need to rule out CF (by going to a CF Center) and then if it is truly ruled out then you go on to figure out what is causing her problems.
I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?<img src="i/expressions/face-icon-small-confused.gif" border="0">So anyhow, just to be perfectly clear. <b>You need to take her to a CF Clinic to see what they think.</b> A GI or Pulmo would not be knowledgable enough to deal with diagnosing or not diagnosing a child that doesn't have two mutations - they may not even realize that you can have CF without the second mutation being found yet. Hence why I was discussing my son having no mutations but lots of symptoms and still having a CF diagnosis - he was diagnosed by the CF Clinic. Had we not gone to the CF Clinic we would still be wondering about his problems.So, yes I think you need to rule out CF (by going to a CF Center) and then if it is truly ruled out then you go on to figure out what is causing her problems.
I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?<img src="i/expressions/face-icon-small-confused.gif" border="0">So anyhow, just to be perfectly clear. <b>You need to take her to a CF Clinic to see what they think.</b> A GI or Pulmo would not be knowledgable enough to deal with diagnosing or not diagnosing a child that doesn't have two mutations - they may not even realize that you can have CF without the second mutation being found yet. Hence why I was discussing my son having no mutations but lots of symptoms and still having a CF diagnosis - he was diagnosed by the CF Clinic. Had we not gone to the CF Clinic we would still be wondering about his problems.So, yes I think you need to rule out CF (by going to a CF Center) and then if it is truly ruled out then you go on to figure out what is causing her problems.
I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?<img src="i/expressions/face-icon-small-confused.gif" border="0"><p>So anyhow, just to be perfectly clear. <b>You need to take her to a CF Clinic to see what they think.</b> A GI or Pulmo would not be knowledgable enough to deal with diagnosing or not diagnosing a child that doesn't have two mutations - they may not even realize that you can have CF without the second mutation being found yet. Hence why I was discussing my son having no mutations but lots of symptoms and still having a CF diagnosis - he was diagnosed by the CF Clinic. Had we not gone to the CF Clinic we would still be wondering about his problems.<p>So, yes I think you need to rule out CF (by going to a CF Center) and then if it is truly ruled out then you go on to figure out what is causing her problems.
saveferris2009
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kkids</b></i>
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kkids</b></i>
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kkids</b></i>
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote></div>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kkids</b></i>
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
.</end quote>
Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
saveferris2009
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kkids</b></i>
<br />
<br />Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
<br />.</end quote>
<br />
<br />
<br />Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
<br />
<br />This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Have you started with a diagnosis of asthma or some sort of pancreatic condition that finally turned out to be CF?
<br />.</end quote>
<br />
<br />
<br />Yup, they show up here all the time. Go through the past few months on this section and in the Family section and you'll see many!
<br />
<br />This is why we're being so emphatic about getting testing. It's not going to go away.... <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">
Ok, so I'm really slow typing because I started my last post prior to your post answering the 2nd topic question.Unfortunately a lot of people come on here with questions and then when their child's test shows that they don't have CF we never hear back from them, so I'm not sure how many people actually find out it isn't CF later. You might want to google something to that effect and see what the percentage of people suspected of CF turn out to have something else?And it wouldn't hurt to have them start testing her for other things also while they are still testing for CF. I think the Celiac's test is just a blood test so that shouldn't be a problem.
Ok, so I'm really slow typing because I started my last post prior to your post answering the 2nd topic question.Unfortunately a lot of people come on here with questions and then when their child's test shows that they don't have CF we never hear back from them, so I'm not sure how many people actually find out it isn't CF later. You might want to google something to that effect and see what the percentage of people suspected of CF turn out to have something else?And it wouldn't hurt to have them start testing her for other things also while they are still testing for CF. I think the Celiac's test is just a blood test so that shouldn't be a problem.
Ok, so I'm really slow typing because I started my last post prior to your post answering the 2nd topic question.Unfortunately a lot of people come on here with questions and then when their child's test shows that they don't have CF we never hear back from them, so I'm not sure how many people actually find out it isn't CF later. You might want to google something to that effect and see what the percentage of people suspected of CF turn out to have something else?And it wouldn't hurt to have them start testing her for other things also while they are still testing for CF. I think the Celiac's test is just a blood test so that shouldn't be a problem.
Ok, so I'm really slow typing because I started my last post prior to your post answering the 2nd topic question.Unfortunately a lot of people come on here with questions and then when their child's test shows that they don't have CF we never hear back from them, so I'm not sure how many people actually find out it isn't CF later. You might want to google something to that effect and see what the percentage of people suspected of CF turn out to have something else?And it wouldn't hurt to have them start testing her for other things also while they are still testing for CF. I think the Celiac's test is just a blood test so that shouldn't be a problem.
Ok, so I'm really slow typing because I started my last post prior to your post answering the 2nd topic question.<p>Unfortunately a lot of people come on here with questions and then when their child's test shows that they don't have CF we never hear back from them, so I'm not sure how many people actually find out it isn't CF later. You might want to google something to that effect and see what the percentage of people suspected of CF turn out to have something else?<p>And it wouldn't hurt to have them start testing her for other things also while they are still testing for CF. I think the Celiac's test is just a blood test so that shouldn't be a problem.
<span class="FTHighlightFont">Originally posted by: <b>Buckeye</b> I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?</i></span ft>
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
<span class="FTHighlightFont">Originally posted by: <b>Buckeye</b> I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?</i></span ft>
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
<span class="FTHighlightFont">Originally posted by: <b>Buckeye</b> I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?</i></span ft>
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
<span class="FTHighlightFont">Originally posted by: <b>Buckeye</b> I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?</i></span ft>
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
<span class="FTHighlightFont">Originally posted by: <b>Buckeye</b> I'm with Amy, I am also confused why it is necessary to have the two threads. I kept re-reading the first one and I'm not sure what I was missing or what is different?</i></span ft>
<br />Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.
<br />Again, I'm sorry. In my first post, someone said it was too difficult to read and I don't know how to edit so I started again. I tried my best to make that clear. I didn't mean to cause such confusion. I'm just trying to find out about other people's experiences and I didn't ask it very well in the first post.