So Tired

65rosesgirl

New member
Im 20 years old and i have Cf ive been thinking of pregnancy . Im married and live with my husband who is 22 . Weve been talking about this for long while now , recently i talked to my CF doctor about me having children her responce was i was in good health and i could get pregnant just like any other women , but the only problem is my lungs are at 93% she said if i get pregnant my lung functions are going to go down and their is no way of reversing the damage . My husband says what if i have that baby and my lungs go down quite a bit and that takes some years away from me ?what if i could live to 50 and because i have kids i can only live till 40 ?? I responded by saying that i really wanted to have children and i didnt mind dieing for them but i do mind leaving them by themselves with no mother . This is a difficult choice for me has anyone had to go thru this if so what did you do? i appreciate it!!
-Vanessa- 20/CF
 

ClashPunk82

New member
I don't think that's how it works. Even if your PFT's go down doesn't mean you will die sooner. Some people can live years and years when their PFT's are at 30% and others won't. It all depends on the person.
 

cfNana

New member
I agree with ClashPunk82, I've had 2 kids I don't know what my PFT's were because I wasn't diagnosed until after they were born. I did start getting frequent pneumonia shortly after my first one was born and no one could figure out why, but as far as PFT's I know they were lower several years ago than they are now. I was actually healthier while I was pregnant I assume it was due to the extra weight. I think if you really want to have children you should. I was pregnant when I was 42 and my CF doc said I would do fine as far as my CF was concerned. My problem was my heart but I chose to go ahead with the pregnancy againsy my other Dr's advice. In the end I miscarried but it was probably do to my age rather than my health. I had my other children when I was about your age. I always believed God had it planned that way, I don't know if we would have waited that I could have carried them to term. My children are such a blessing to me and now I have a beautiful grandaughter as well. I wouldn't have changed a thing even if I had known that I had CF before I got pregnant. Good Luck cfNana
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anonymous

New member
Hi Vanessa,
I had a baby when I was 25, I am 40 now. When I was pregnant my pfts were in the high 70s and they did go down a bit while I was pregnant because of the baby pushing up on my lungs, but I did not have any lasting lung 'damage' from the pregnancy. After the delivery they came back to my baseline. I have heard of people who do lose function or get sicker after having a baby, but that did not happen in my case. I have enjoyed pretty much the same health I had before my pregnancy. That is not to say I haven't had a slow progression that would be expected whether I had a child or not, my pfts are now around 50%. I am just saying I don't think I am any worse for the wear than I would be otherwise. Good luck to you with your decision!

Kim
40 w/cf
 

JazzysMom

New member
My health was at its best when I was pregnant. I am not sure if I took better care of myself or if pregnancy agreed with me. All I know is that I felt FANTASTIC. Your PFTs might go down during pregnancy just because the baby is limiting the room for your lungs to expand. It doesnt have to be from CF & it doesnt have to mean damage or irreversible. Yes it can happen, but its dont a given. My main problem came after the baby was born. I was working fulltime, my husband was always working & my daughter was an infant. I wasnt able to balance things & it took its toll. Once I gave up my job (the only thing that could really go) things got a bit easier.
 

anonymous

New member
Thankyou so much for all of your help!! Im feeling better about my decision now i really want to have a baby , maybe my lungs will go down but thats okay as long as i try my best to stay healthy !!! And when i do if god gives me the chance im going to give her/him everything i possibly can give to him/her to keep her happy and healthy !! I want her/him to have everything i couldnt have ..
-Vanessa-<img src="i/expressions/heart.gif" border="0">
 

HollyCatheryn

New member
Vanessa, if your doctor actually told you that your PFTs would drop significantly because of pregnancy and no other reason, he is VERY misinformed. This is NOT backed up by ANY current scientific research. I have built a website around current, accurate information regarding parenthood for people with CF. I encourage you to check it out (<A href="http://www.geocities.com/MurrensNatureMama">www.geocities.com/MurrensNatureMama</A>). You will find answers to much of what you are concerned about and will direct you to other sources from which you can get more information. The current findings are as follows: Each person's CF has a basic trend. Whatever YOUR basic trend is will not be altered by a pregnancy. This means that if your health is on an up-swing, you will probably be healthier after pregnancy than before (I experienced this and several other women with CF that I know have also). If your CF is basically plateaued, then your health will be approximately the same poat-partum as before. If you are on a decline, then your health will be lower after pregnancy than before. Your lung function is well within the "safe range". Researchers have found that outcomes for women whose PFTs are in the 60s or above are much better than those whose PFTs are below 60%. This does not mean that a woman whose PFTs are 55% or 50% cannot have a healthy pregnancy and do well afterward, it just means that the chances for complications and deterioration are greater. Many doctors mistakenly inform their patients that CF-related infections cannot be treated during pregnancy or breastfeeding. On the contrary, many medications and procedures are safe for pregnant or lactating women. There are things you can do to increase your chances of having a healthy pregnancy and birth and of being healthy post-partum. Getting your body as healthy and strong ahead of time as possible is a good start. After you have become pregnant, there are many choices you can make to increase your chances of a healthy, safe pregnancy and delivery. Many women with CF find, however that pregnancy does not happen "just like any other woman". Many of us, in fact most of us, are "sub-fertile". This means that though we are technically capable (having all the proper parts in working order) of conception, but it rarely happens as easily for women with CF as women without. There are also things you can do to improve your chances of conceiving naturally. Much of that information is also available on my website. If you do not find what you are looking for or you have other questions, feel free to email me. I am happy to discuss them with you. If you begin researching on your own and find good current information that is not on my website, PLEASE email me so I can update my website to help other adults with CF.Start now educating yourself. You are the only person who can know what is best for you and you cannot know what is best if you do not know what the facts are.
 

JT

New member
this is similar to what Holly mentioned -- taken from <a target=new class=ftalternatingbarlinklarge href="http://www.findarticles.com/p/articles/mi_m0984/is_1_118/ai_64189445/pg_4">pregnancy in CF</a>

"Pregnancy was well-tolerated in our population of CF women. Most patients carrying a pregnancy to term had mild to moderate disease. The risk factors for deteriorating health and early death after pregnancy are the same as for the whole adult female CF population, with the presence of B cepacia being the most important risk factor for early death. Pregnancy did not affect the rate of yearly decline in [FEV.sub.1]. Follow-up studies of pregnant women with poor lung function and of women with diabetes mellitus will help to assess the safety of pregnancy in these groups. Pregnancy in women with CF preferably should be planned, and teamwork between the obstetrician and the CF team is necessary."
 
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