I have 2 Delta F508 mutations. Healthwise - PFTs FVC 40% and FEV1 30%, digestive involvement - and CF related diabetes. Things were semi normal for me growing up. I was diagnosed at 1 yr old and went in the hospital roughly once a year through the age of 20-21. Since switching to adult care I have seen an increase in hospital stays and IV treatment as well as a progression of things all around. I am 24 now and am going to be starting the testing for transplant evaluation in the coming months.
Life wise - well at this point CF affects every aspect of my life, but I am handling it okay. I can not work - I tried earlier in the year and became terribly sick and ended up in the hospital after only 1.5 months. I am engaged - with no date set - and do what I can. Physical activities are very limited or difficult. I try to do what I used to do but in most instances it takes much longer to accomplish things than before, like climbing a flight of stairs takes a while - as well as several break along the way. I had limitations in the past, but I didn't pay to much attention to them, now they kind of smack me in the face lol.
Happy Holidays,
Lindsey
Life wise - well at this point CF affects every aspect of my life, but I am handling it okay. I can not work - I tried earlier in the year and became terribly sick and ended up in the hospital after only 1.5 months. I am engaged - with no date set - and do what I can. Physical activities are very limited or difficult. I try to do what I used to do but in most instances it takes much longer to accomplish things than before, like climbing a flight of stairs takes a while - as well as several break along the way. I had limitations in the past, but I didn't pay to much attention to them, now they kind of smack me in the face lol.
Happy Holidays,
Lindsey