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social security for children?
- Thread starter anonymous
- Start date
thefrogprincess
New member
I was on SSI when from about age 7 to 14 or 15. Then they changed the standards they use to determine who is eligible and I was "too healthy" because I had never been hospitalized. If you are low income I would recommend trying to get on SSI, but be prepared for a fight. They deny almost everyone at first, except for severe cases so you will have to keep appealing, I would even suggest getting a social security lawyer to help.
It is income based, but there are inpairment listings that you have to meet in order to be considered "qualified". YOu don't have to exactly meet them, it can be a combination of things that all "add up". If you are interested in the inpariment listings, please indicate that and I can post it when I get home.
Julie (wife to Mark 24 w/CF)
Julie (wife to Mark 24 w/CF)
2
2sickkids
Guest
Julie I'd like that info. Was looking on ss website and couldn't find the link. They want me and my baby to apply for it.
<a target=new class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm">http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm</a> CHILDHOOD LISTINGS
<a target=new class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm">http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm</a> ADULT LISTINGS
If your children have both digestive and respiratory issues, I would recommend that you check out both links. Keep in mind that a child (or adult) DOES NOT have to EXACTLY meet the listing. For example, in the adult listing it states C. must have recurrent respiratory infection being treated by nebulized antimicrobial antibiotics or IV medications at lteas every 6 months. Mark did have respiratiry infections, but they were more like every 7-9 months (not the required 6). nebulized ANTIMICROBIAL antibiotics are your Tobi, Colymycin and for the IV's-it's any IV antibiotics. In addition, Mark had bronchitis-but NOT every 2 months or 6 times a year as required. His bronchitis was more like twice a year. In addition, he has digestive problems but doesn't "meet" any of the listings in the digestive impairment listing. The judge ruled that because he had a variety of "problems", none which exactly met the listing, the combination of all those things was deemed as "bad" or maybe even worse so he qualified.
Julie
<a target=new class=ftalternatingbarlinklarge href="http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm">http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm</a> ADULT LISTINGS
If your children have both digestive and respiratory issues, I would recommend that you check out both links. Keep in mind that a child (or adult) DOES NOT have to EXACTLY meet the listing. For example, in the adult listing it states C. must have recurrent respiratory infection being treated by nebulized antimicrobial antibiotics or IV medications at lteas every 6 months. Mark did have respiratiry infections, but they were more like every 7-9 months (not the required 6). nebulized ANTIMICROBIAL antibiotics are your Tobi, Colymycin and for the IV's-it's any IV antibiotics. In addition, Mark had bronchitis-but NOT every 2 months or 6 times a year as required. His bronchitis was more like twice a year. In addition, he has digestive problems but doesn't "meet" any of the listings in the digestive impairment listing. The judge ruled that because he had a variety of "problems", none which exactly met the listing, the combination of all those things was deemed as "bad" or maybe even worse so he qualified.
Julie
ok, we applied for my daughter who is 4 will be 5 in dec, and my husband works full time plus we farm and with our monthly income from paycheck we made aprox 100 to much a month and they said that until we file our 2005 taxes then they would reopen the case and see if she medicaly qualifies as well...do those exceptions you posted apply to those. At one point in her life we were in the hospital every 6 months with something, she was in at christmas but that was the first time in 2years i think i just wonder what all the requirements are to use the money for like what you can pay bills with??? We are fairly new at all this she has crippled childrens which has been a huge blessing without that we would be bankrupt!!!! well any insight with these things would be great i feel like we are in the dark about what we need to know and do!!
Carin
daughter 4 w/cf, son 2 wo/cf
Carin
daughter 4 w/cf, son 2 wo/cf
Carin, unfortunately SSI is based off of income, whereas SSDI (for an adult with work history) is based Solely off of work history and has NOTHING to do with income.
As far as the criteria to qualify (having nothing to do wiht income), I can imagine that the easiest listing to meet would be the option C. The description of recurrent pulmonary infections is basically when your child does a sputum sample (or they do a scrape to test what is in the lungs) and there is growth such as pseudomonas, staph (or many others). That is a "superimposed, recurrent lung infection". and the IV or nebulized antimicrobial treatment is simply ANY IV antibiotics (in the hospital or at home) or any nebulized antibiotics-such as Tobi or Colistin.
Does she have anything like that going on? The nebulizer treatments and lung infections have to occur at least once every 6 months-that's just twice a year. The other "options" are much harder to meet. Hope this helps, if you have any more questions let me know!
Julie
As far as the criteria to qualify (having nothing to do wiht income), I can imagine that the easiest listing to meet would be the option C. The description of recurrent pulmonary infections is basically when your child does a sputum sample (or they do a scrape to test what is in the lungs) and there is growth such as pseudomonas, staph (or many others). That is a "superimposed, recurrent lung infection". and the IV or nebulized antimicrobial treatment is simply ANY IV antibiotics (in the hospital or at home) or any nebulized antibiotics-such as Tobi or Colistin.
Does she have anything like that going on? The nebulizer treatments and lung infections have to occur at least once every 6 months-that's just twice a year. The other "options" are much harder to meet. Hope this helps, if you have any more questions let me know!
Julie
on SSI, you aren't drawing off anybodys social security perse. But, I do know that tehre is something if you don't have enough credits to qualify for SSDI (NOT SSI), you can collect off of a parent's Social security. It is rare, but possible. I don't have specifics on that one though.
Julie
Julie
in scotland u get disability living allowance whether u r on benefits or working it doesnt matter what u earn.......there is low rate and high rate my daughter is getting the high rate just now and then they will look at it again when she is 5.................when she is 16 she will then get the money by herself.
U can also get mobility allowance but she does not get that.
The money is to go for paying for her meds and getting her to the hospital......just now im on benefits and we dont have to pay for her medication so it sounds like its a bit of a pain for yous all.
U can also get mobility allowance but she does not get that.
The money is to go for paying for her meds and getting her to the hospital......just now im on benefits and we dont have to pay for her medication so it sounds like its a bit of a pain for yous all.
I may be wrong but it may be worth looking into at what age children can collect the ocial security off of their parents. I believe they must have some work history, (like if they worked when they were 15 or so) but if they don't have enough credits from working, they can collect off of their parents. I KNOW that there is a "program" like that, I am just not sure what the specifics are. I am also not sure how it effects the parent(s) Social security, but if it will help, it might be worth looking into.
Julie
Julie
mammabettybear5
New member
hi i have 2 boys with cf,my youngest has gotton ssi since he was 6 months old he is know 12,but my oldest it took 3 years to get it then they took it away 1 year later because he was to (healthy)by their standards that was 8 years ago .well we moved to the south 2 years ago for the youngests health the new england winters were relly bothering him.and everyone been harping on me to reapply for the oldest but i never did thinking he wasnt sick enough,well in march i reapplied and believe it or not they called this am and he was approved,i was stunned.he cultered peusomunse,and staph,and the doctor that did his case said between everything hes still a sick little boy even tho hes never been in the hospitol.so if you get turned down dont give up,good luck
mammabettybear5
New member
hi they based my sons ssi on my husbands income plus the kids child support but dont count it all,they still recieve quite a bit each month.
J
jennaxox
Guest
i receive SSI