Hi Jessica,
<br />I do agree with a lot Linds is saying. There can be so many reasons a child can't get a transplant, or maybe they tried and couldn't.
<br />I know a little boy on this site Garren, who did get a TX, I think at age 8.
<br />The one thing about this is there are a lot of children, 18months, 8 months, 4yrs, 6yrs, 8yrs, and on who still pass away with this horrid disease.
<br />
<br />The 'mean value age' actually means half will die young and half will live older. I hate this disease, like I'm sure everyone else here does also!!!! Let's just say, ONE is to many!
<br />
<br />As far as Sarah trying to make this positive for us, as was stated earlier ,I don't think that was her point at all. She opened her Heart,and Soul to us, her Pain, Fear, Loss, and Begged for people to not turn away from them. She has been only what is most likly expected, she has shared all her fears, her anger, and she has wanted people to wake up!She is STRONG, SCARED, FAITHFUL, BUT MOST OF ALL SHE IS LOST right now, and needs us all!HER SOUL HURTS!!<img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />
<br />We don't think to much of the very young that we have lost to this disease, but , now that the cyber space is here,there are just as many young that die from this disease as older people and we are having beautiful people like Sarah share with us what is in her heart and what she is going through. Just like Eva, she let us into her life also. I think it is a gift that these families and others that are sharing more with us.
<br />
<br />We are so isolated except through the internet, I feel things will change faster because we now have the internet. We can ask questions, and see what other doctors are doing all over the world. And we can stand up to the doctors that don't want to listen because this makes us more knowledgealbe.Please don't get me wrong we have great doctors, and we have the a_ _ doctors, that are set in their ways and the 'Politics' get in the way! I will never stop saying what a wise man told me once ,when Makailyn was diagnoised,,,,,,,,, KNOWLEDGE IS POWER !!!
<br />
<br />You take care sweetie my heart is with you always,and with Sarah and Conner right now, Karla <img src="i/expressions/brokenheart.gif" border="0">
<br />I do agree with a lot Linds is saying. There can be so many reasons a child can't get a transplant, or maybe they tried and couldn't.
<br />I know a little boy on this site Garren, who did get a TX, I think at age 8.
<br />The one thing about this is there are a lot of children, 18months, 8 months, 4yrs, 6yrs, 8yrs, and on who still pass away with this horrid disease.
<br />
<br />The 'mean value age' actually means half will die young and half will live older. I hate this disease, like I'm sure everyone else here does also!!!! Let's just say, ONE is to many!
<br />
<br />As far as Sarah trying to make this positive for us, as was stated earlier ,I don't think that was her point at all. She opened her Heart,and Soul to us, her Pain, Fear, Loss, and Begged for people to not turn away from them. She has been only what is most likly expected, she has shared all her fears, her anger, and she has wanted people to wake up!She is STRONG, SCARED, FAITHFUL, BUT MOST OF ALL SHE IS LOST right now, and needs us all!HER SOUL HURTS!!<img src="i/expressions/face-icon-small-sad.gif" border="0">
<br />
<br />
<br />We don't think to much of the very young that we have lost to this disease, but , now that the cyber space is here,there are just as many young that die from this disease as older people and we are having beautiful people like Sarah share with us what is in her heart and what she is going through. Just like Eva, she let us into her life also. I think it is a gift that these families and others that are sharing more with us.
<br />
<br />We are so isolated except through the internet, I feel things will change faster because we now have the internet. We can ask questions, and see what other doctors are doing all over the world. And we can stand up to the doctors that don't want to listen because this makes us more knowledgealbe.Please don't get me wrong we have great doctors, and we have the a_ _ doctors, that are set in their ways and the 'Politics' get in the way! I will never stop saying what a wise man told me once ,when Makailyn was diagnoised,,,,,,,,, KNOWLEDGE IS POWER !!!
<br />
<br />You take care sweetie my heart is with you always,and with Sarah and Conner right now, Karla <img src="i/expressions/brokenheart.gif" border="0">