Something to get off my chest...

J

Jane

Digital opinion leader
The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.

Thanks for opening the discussion.
 
J

Jane

Digital opinion leader
The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.

Thanks for opening the discussion.
 
J

Jane

Digital opinion leader
The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.

Thanks for opening the discussion.
 
J

Jane

Digital opinion leader
The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.

Thanks for opening the discussion.
 
J

Jane

Digital opinion leader
The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.

Thanks for opening the discussion.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
Oh, and giving him that poison called carnation instant breakfast</end quote></div>

Until those people have tried Ensure and Scandishakes, they have NO PLACE to say a word (and if they have tasted them, and still say that.... are they frickin nuts?). That crap is so gross. Instant Breakfast is the only one I'd <b>ever</b> drink. And as long as it's calories and calcium and all that... who cares?!

Just thought I'd throw that in. Hah.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
Oh, and giving him that poison called carnation instant breakfast</end quote></div>

Until those people have tried Ensure and Scandishakes, they have NO PLACE to say a word (and if they have tasted them, and still say that.... are they frickin nuts?). That crap is so gross. Instant Breakfast is the only one I'd <b>ever</b> drink. And as long as it's calories and calcium and all that... who cares?!

Just thought I'd throw that in. Hah.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
Oh, and giving him that poison called carnation instant breakfast</end quote></div>

Until those people have tried Ensure and Scandishakes, they have NO PLACE to say a word (and if they have tasted them, and still say that.... are they frickin nuts?). That crap is so gross. Instant Breakfast is the only one I'd <b>ever</b> drink. And as long as it's calories and calcium and all that... who cares?!

Just thought I'd throw that in. Hah.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
Oh, and giving him that poison called carnation instant breakfast</end quote>

Until those people have tried Ensure and Scandishakes, they have NO PLACE to say a word (and if they have tasted them, and still say that.... are they frickin nuts?). That crap is so gross. Instant Breakfast is the only one I'd <b>ever</b> drink. And as long as it's calories and calcium and all that... who cares?!

Just thought I'd throw that in. Hah.
 
E

Emily65Roses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>
Oh, and giving him that poison called carnation instant breakfast</end quote>

Until those people have tried Ensure and Scandishakes, they have NO PLACE to say a word (and if they have tasted them, and still say that.... are they frickin nuts?). That crap is so gross. Instant Breakfast is the only one I'd <b>ever</b> drink. And as long as it's calories and calcium and all that... who cares?!

Just thought I'd throw that in. Hah.
 
S

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mb101</b></i>

(Any parents that share Ms.Seana's view of how I came off, I apologize to you as well...I respect everyone and their opinions on here.....to earn respect you give respect.)</end quote></div>

Thanks. That speaks volumes for you as a person. And I want to say I am sorry to you. Talking about living at home, was not an attack, just was meant to show how someone could relate the judgements you are making, to your own situation. I figured you lived at home because of health issues, and I'm sure your parents are great and have made you into a mature responsible adult, and if my child needed me even at 40, the house would always be open to him.

I agree with you, because I have read some things people posted and thought, wow, are you going to buy a bubble to have your child grow up in. There was a post where someone was talking about a child going to preschool and getting an IEP to have a nurse with them all day to "keep sick kids away from them and to wash off the toys" I was like wow, that is a little extreme, especially since their kid was healthy, but then I was like, oh well, I'm not raising their child, maybe there is a reason they need this even though I would never want my child to have a body guard unless he was on IVs or tube feed during school hours.

Finally, again I think adult CFer are a great resource, but a parent could do everything perfect for their child, or should I say parent the way the text books say is the best, and kids will still be kids sometimes, they are individuals and all different, as a parent all you can do, is love them to death, teach and show them things in life, and hope they know the right choices to make, but everyone will or has made a wrong choice sometime in their life.
 
S

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mb101</b></i>

(Any parents that share Ms.Seana's view of how I came off, I apologize to you as well...I respect everyone and their opinions on here.....to earn respect you give respect.)</end quote></div>

Thanks. That speaks volumes for you as a person. And I want to say I am sorry to you. Talking about living at home, was not an attack, just was meant to show how someone could relate the judgements you are making, to your own situation. I figured you lived at home because of health issues, and I'm sure your parents are great and have made you into a mature responsible adult, and if my child needed me even at 40, the house would always be open to him.

I agree with you, because I have read some things people posted and thought, wow, are you going to buy a bubble to have your child grow up in. There was a post where someone was talking about a child going to preschool and getting an IEP to have a nurse with them all day to "keep sick kids away from them and to wash off the toys" I was like wow, that is a little extreme, especially since their kid was healthy, but then I was like, oh well, I'm not raising their child, maybe there is a reason they need this even though I would never want my child to have a body guard unless he was on IVs or tube feed during school hours.

Finally, again I think adult CFer are a great resource, but a parent could do everything perfect for their child, or should I say parent the way the text books say is the best, and kids will still be kids sometimes, they are individuals and all different, as a parent all you can do, is love them to death, teach and show them things in life, and hope they know the right choices to make, but everyone will or has made a wrong choice sometime in their life.
 
S

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mb101</b></i>

(Any parents that share Ms.Seana's view of how I came off, I apologize to you as well...I respect everyone and their opinions on here.....to earn respect you give respect.)</end quote></div>

Thanks. That speaks volumes for you as a person. And I want to say I am sorry to you. Talking about living at home, was not an attack, just was meant to show how someone could relate the judgements you are making, to your own situation. I figured you lived at home because of health issues, and I'm sure your parents are great and have made you into a mature responsible adult, and if my child needed me even at 40, the house would always be open to him.

I agree with you, because I have read some things people posted and thought, wow, are you going to buy a bubble to have your child grow up in. There was a post where someone was talking about a child going to preschool and getting an IEP to have a nurse with them all day to "keep sick kids away from them and to wash off the toys" I was like wow, that is a little extreme, especially since their kid was healthy, but then I was like, oh well, I'm not raising their child, maybe there is a reason they need this even though I would never want my child to have a body guard unless he was on IVs or tube feed during school hours.

Finally, again I think adult CFer are a great resource, but a parent could do everything perfect for their child, or should I say parent the way the text books say is the best, and kids will still be kids sometimes, they are individuals and all different, as a parent all you can do, is love them to death, teach and show them things in life, and hope they know the right choices to make, but everyone will or has made a wrong choice sometime in their life.
 
S

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mb101</b></i>

(Any parents that share Ms.Seana's view of how I came off, I apologize to you as well...I respect everyone and their opinions on here.....to earn respect you give respect.)</end quote>

Thanks. That speaks volumes for you as a person. And I want to say I am sorry to you. Talking about living at home, was not an attack, just was meant to show how someone could relate the judgements you are making, to your own situation. I figured you lived at home because of health issues, and I'm sure your parents are great and have made you into a mature responsible adult, and if my child needed me even at 40, the house would always be open to him.

I agree with you, because I have read some things people posted and thought, wow, are you going to buy a bubble to have your child grow up in. There was a post where someone was talking about a child going to preschool and getting an IEP to have a nurse with them all day to "keep sick kids away from them and to wash off the toys" I was like wow, that is a little extreme, especially since their kid was healthy, but then I was like, oh well, I'm not raising their child, maybe there is a reason they need this even though I would never want my child to have a body guard unless he was on IVs or tube feed during school hours.

Finally, again I think adult CFer are a great resource, but a parent could do everything perfect for their child, or should I say parent the way the text books say is the best, and kids will still be kids sometimes, they are individuals and all different, as a parent all you can do, is love them to death, teach and show them things in life, and hope they know the right choices to make, but everyone will or has made a wrong choice sometime in their life.
 
S

Sakem

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mb101</b></i>

(Any parents that share Ms.Seana's view of how I came off, I apologize to you as well...I respect everyone and their opinions on here.....to earn respect you give respect.)</end quote>

Thanks. That speaks volumes for you as a person. And I want to say I am sorry to you. Talking about living at home, was not an attack, just was meant to show how someone could relate the judgements you are making, to your own situation. I figured you lived at home because of health issues, and I'm sure your parents are great and have made you into a mature responsible adult, and if my child needed me even at 40, the house would always be open to him.

I agree with you, because I have read some things people posted and thought, wow, are you going to buy a bubble to have your child grow up in. There was a post where someone was talking about a child going to preschool and getting an IEP to have a nurse with them all day to "keep sick kids away from them and to wash off the toys" I was like wow, that is a little extreme, especially since their kid was healthy, but then I was like, oh well, I'm not raising their child, maybe there is a reason they need this even though I would never want my child to have a body guard unless he was on IVs or tube feed during school hours.

Finally, again I think adult CFer are a great resource, but a parent could do everything perfect for their child, or should I say parent the way the text books say is the best, and kids will still be kids sometimes, they are individuals and all different, as a parent all you can do, is love them to death, teach and show them things in life, and hope they know the right choices to make, but everyone will or has made a wrong choice sometime in their life.
 
L

LisaV

New member
I really like Jane's take on this.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.</end quote></div>

We are all coming from different perspectives (and different degrees of severity).
I know try as I will to see things from a parent's perspective I'm always seeing them from a spousal viewpoint. So sometimes I get nervous when Ihear about teenagers with CF who still aren't expected to manage their own care. Yikes, I think, what kind of husband/wife will that person be when the time comes to marry (and I know the parents hope their kids will marry)? Will they expect their spouse to be a spouse or a mommy/daddy? Will they carry their own emotional weight in the marriage or expect to be catered to? Will they have detached enough from their original family to really create a new family of their own?

....and then I remember that it is sort of none of my business. That you've got to live to be old enough to marry before you can marry. And that not everyone is looking for the same kind of spouse that I was so maybe a very dependent spouse would be OK for someone anyway.
 
L

LisaV

New member
I really like Jane's take on this.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.</end quote></div>

We are all coming from different perspectives (and different degrees of severity).
I know try as I will to see things from a parent's perspective I'm always seeing them from a spousal viewpoint. So sometimes I get nervous when Ihear about teenagers with CF who still aren't expected to manage their own care. Yikes, I think, what kind of husband/wife will that person be when the time comes to marry (and I know the parents hope their kids will marry)? Will they expect their spouse to be a spouse or a mommy/daddy? Will they carry their own emotional weight in the marriage or expect to be catered to? Will they have detached enough from their original family to really create a new family of their own?

....and then I remember that it is sort of none of my business. That you've got to live to be old enough to marry before you can marry. And that not everyone is looking for the same kind of spouse that I was so maybe a very dependent spouse would be OK for someone anyway.
 
L

LisaV

New member
I really like Jane's take on this.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.</end quote></div>

We are all coming from different perspectives (and different degrees of severity).
I know try as I will to see things from a parent's perspective I'm always seeing them from a spousal viewpoint. So sometimes I get nervous when Ihear about teenagers with CF who still aren't expected to manage their own care. Yikes, I think, what kind of husband/wife will that person be when the time comes to marry (and I know the parents hope their kids will marry)? Will they expect their spouse to be a spouse or a mommy/daddy? Will they carry their own emotional weight in the marriage or expect to be catered to? Will they have detached enough from their original family to really create a new family of their own?

....and then I remember that it is sort of none of my business. That you've got to live to be old enough to marry before you can marry. And that not everyone is looking for the same kind of spouse that I was so maybe a very dependent spouse would be OK for someone anyway.
 
L

LisaV

New member
I really like Jane's take on this.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.</end quote>

We are all coming from different perspectives (and different degrees of severity).
I know try as I will to see things from a parent's perspective I'm always seeing them from a spousal viewpoint. So sometimes I get nervous when Ihear about teenagers with CF who still aren't expected to manage their own care. Yikes, I think, what kind of husband/wife will that person be when the time comes to marry (and I know the parents hope their kids will marry)? Will they expect their spouse to be a spouse or a mommy/daddy? Will they carry their own emotional weight in the marriage or expect to be catered to? Will they have detached enough from their original family to really create a new family of their own?

....and then I remember that it is sort of none of my business. That you've got to live to be old enough to marry before you can marry. And that not everyone is looking for the same kind of spouse that I was so maybe a very dependent spouse would be OK for someone anyway.
 
L

LisaV

New member
I really like Jane's take on this.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jane</b></i>

The more you visit this site, the more you will realize that although we are all in this together, there are different and passionate perspectives. The parent of a CFer, the spouse of a CFer or a CF patient all have valuable insight to bring to the others, but see things in VERY different ways. You are right "to earn respect you give respect". We all need to remember that.</end quote>

We are all coming from different perspectives (and different degrees of severity).
I know try as I will to see things from a parent's perspective I'm always seeing them from a spousal viewpoint. So sometimes I get nervous when Ihear about teenagers with CF who still aren't expected to manage their own care. Yikes, I think, what kind of husband/wife will that person be when the time comes to marry (and I know the parents hope their kids will marry)? Will they expect their spouse to be a spouse or a mommy/daddy? Will they carry their own emotional weight in the marriage or expect to be catered to? Will they have detached enough from their original family to really create a new family of their own?

....and then I remember that it is sort of none of my business. That you've got to live to be old enough to marry before you can marry. And that not everyone is looking for the same kind of spouse that I was so maybe a very dependent spouse would be OK for someone anyway.
 
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