Something to get off my chest...

bittyhorse23

New member
Well said!!! Though I think all us cf-ers go through the "woah is me" stage at some point in our lives, we just have to make sure we shake it off!!!

Great job on the comeback!!!! I hope you stay as healthy as you are now for years to come!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just wrote a blog about how I have been working my butt off to improve my heath and its working...mind over matter and a little elbow grease goes a LONG way!!!!!!
 

bittyhorse23

New member
Well said!!! Though I think all us cf-ers go through the "woah is me" stage at some point in our lives, we just have to make sure we shake it off!!!

Great job on the comeback!!!! I hope you stay as healthy as you are now for years to come!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just wrote a blog about how I have been working my butt off to improve my heath and its working...mind over matter and a little elbow grease goes a LONG way!!!!!!
 

bittyhorse23

New member
Well said!!! Though I think all us cf-ers go through the "woah is me" stage at some point in our lives, we just have to make sure we shake it off!!!

Great job on the comeback!!!! I hope you stay as healthy as you are now for years to come!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just wrote a blog about how I have been working my butt off to improve my heath and its working...mind over matter and a little elbow grease goes a LONG way!!!!!!
 

bittyhorse23

New member
Well said!!! Though I think all us cf-ers go through the "woah is me" stage at some point in our lives, we just have to make sure we shake it off!!!

Great job on the comeback!!!! I hope you stay as healthy as you are now for years to come!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just wrote a blog about how I have been working my butt off to improve my heath and its working...mind over matter and a little elbow grease goes a LONG way!!!!!!
 

bittyhorse23

New member
Well said!!! Though I think all us cf-ers go through the "woah is me" stage at some point in our lives, we just have to make sure we shake it off!!!

Great job on the comeback!!!! I hope you stay as healthy as you are now for years to come!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I just wrote a blog about how I have been working my butt off to improve my heath and its working...mind over matter and a little elbow grease goes a LONG way!!!!!!
 

jdprecious

New member
All parents are different. Not all will be as straight forward with their children about CF as yours. It is a parent's instinct to protect their child from the things that can be potentially harmful. I am not disagreeing with you however because I do 100% agree on the fact that a CF child should be disciplined like every other child so as to keep them from being a rotten bratty "i deserve this and that" sort of kid... it is a pet peeve of mine when parents do not discipline and cannot control their children...but that is a totally different thread!!!
 

jdprecious

New member
All parents are different. Not all will be as straight forward with their children about CF as yours. It is a parent's instinct to protect their child from the things that can be potentially harmful. I am not disagreeing with you however because I do 100% agree on the fact that a CF child should be disciplined like every other child so as to keep them from being a rotten bratty "i deserve this and that" sort of kid... it is a pet peeve of mine when parents do not discipline and cannot control their children...but that is a totally different thread!!!
 

jdprecious

New member
All parents are different. Not all will be as straight forward with their children about CF as yours. It is a parent's instinct to protect their child from the things that can be potentially harmful. I am not disagreeing with you however because I do 100% agree on the fact that a CF child should be disciplined like every other child so as to keep them from being a rotten bratty "i deserve this and that" sort of kid... it is a pet peeve of mine when parents do not discipline and cannot control their children...but that is a totally different thread!!!
 

jdprecious

New member
All parents are different. Not all will be as straight forward with their children about CF as yours. It is a parent's instinct to protect their child from the things that can be potentially harmful. I am not disagreeing with you however because I do 100% agree on the fact that a CF child should be disciplined like every other child so as to keep them from being a rotten bratty "i deserve this and that" sort of kid... it is a pet peeve of mine when parents do not discipline and cannot control their children...but that is a totally different thread!!!
 

jdprecious

New member
All parents are different. Not all will be as straight forward with their children about CF as yours. It is a parent's instinct to protect their child from the things that can be potentially harmful. I am not disagreeing with you however because I do 100% agree on the fact that a CF child should be disciplined like every other child so as to keep them from being a rotten bratty "i deserve this and that" sort of kid... it is a pet peeve of mine when parents do not discipline and cannot control their children...but that is a totally different thread!!!
 

Jane

Digital opinion leader
Wow,

While I agree that many parents go overboard trying to keep their kids safe, I have to defend the reason. The parents on the forum are doing the best they know how for their children. All the kids here have different circumstances and must be raised differently. As we learn more about CF, we must update our style of parenting. Just think about the ways our clinics have changed the way they conduct business. When we first started going to clinic the kids all played together, all used the same equipment, shared hospital rooms etc.

Since my son was diagnosed (1991) so many new things have discovered about CF, and as a result we change our lifestyle to accomodate those new things. When my kids were little it didn't occur to me to worry about where they played. Then they were diagnosed with a mycobacteria that had never been seen <b>IN THE WORLD</b>. Scary? It wasn't until they became very, very sick that we found out how to treat them, and even then it was only a guess.

Fortunately, my children recovered. But if my doctor says- keep them away from aerosolized dirt and standing water- I WILL! I'm not going to keep them in a bubble, but I will teach them what is safe for them.

It is very difficult to imagine raising a child if you are not a parent. All you have as a basis for judgement is your own upbringing. The way you were raised may not be the best way to raise another child. While your advice is well-meaning, please don't be so quick to judge until you a a parent yourself.
 

Jane

Digital opinion leader
Wow,

While I agree that many parents go overboard trying to keep their kids safe, I have to defend the reason. The parents on the forum are doing the best they know how for their children. All the kids here have different circumstances and must be raised differently. As we learn more about CF, we must update our style of parenting. Just think about the ways our clinics have changed the way they conduct business. When we first started going to clinic the kids all played together, all used the same equipment, shared hospital rooms etc.

Since my son was diagnosed (1991) so many new things have discovered about CF, and as a result we change our lifestyle to accomodate those new things. When my kids were little it didn't occur to me to worry about where they played. Then they were diagnosed with a mycobacteria that had never been seen <b>IN THE WORLD</b>. Scary? It wasn't until they became very, very sick that we found out how to treat them, and even then it was only a guess.

Fortunately, my children recovered. But if my doctor says- keep them away from aerosolized dirt and standing water- I WILL! I'm not going to keep them in a bubble, but I will teach them what is safe for them.

It is very difficult to imagine raising a child if you are not a parent. All you have as a basis for judgement is your own upbringing. The way you were raised may not be the best way to raise another child. While your advice is well-meaning, please don't be so quick to judge until you a a parent yourself.
 

Jane

Digital opinion leader
Wow,

While I agree that many parents go overboard trying to keep their kids safe, I have to defend the reason. The parents on the forum are doing the best they know how for their children. All the kids here have different circumstances and must be raised differently. As we learn more about CF, we must update our style of parenting. Just think about the ways our clinics have changed the way they conduct business. When we first started going to clinic the kids all played together, all used the same equipment, shared hospital rooms etc.

Since my son was diagnosed (1991) so many new things have discovered about CF, and as a result we change our lifestyle to accomodate those new things. When my kids were little it didn't occur to me to worry about where they played. Then they were diagnosed with a mycobacteria that had never been seen <b>IN THE WORLD</b>. Scary? It wasn't until they became very, very sick that we found out how to treat them, and even then it was only a guess.

Fortunately, my children recovered. But if my doctor says- keep them away from aerosolized dirt and standing water- I WILL! I'm not going to keep them in a bubble, but I will teach them what is safe for them.

It is very difficult to imagine raising a child if you are not a parent. All you have as a basis for judgement is your own upbringing. The way you were raised may not be the best way to raise another child. While your advice is well-meaning, please don't be so quick to judge until you a a parent yourself.
 

Jane

Digital opinion leader
Wow,

While I agree that many parents go overboard trying to keep their kids safe, I have to defend the reason. The parents on the forum are doing the best they know how for their children. All the kids here have different circumstances and must be raised differently. As we learn more about CF, we must update our style of parenting. Just think about the ways our clinics have changed the way they conduct business. When we first started going to clinic the kids all played together, all used the same equipment, shared hospital rooms etc.

Since my son was diagnosed (1991) so many new things have discovered about CF, and as a result we change our lifestyle to accomodate those new things. When my kids were little it didn't occur to me to worry about where they played. Then they were diagnosed with a mycobacteria that had never been seen <b>IN THE WORLD</b>. Scary? It wasn't until they became very, very sick that we found out how to treat them, and even then it was only a guess.

Fortunately, my children recovered. But if my doctor says- keep them away from aerosolized dirt and standing water- I WILL! I'm not going to keep them in a bubble, but I will teach them what is safe for them.

It is very difficult to imagine raising a child if you are not a parent. All you have as a basis for judgement is your own upbringing. The way you were raised may not be the best way to raise another child. While your advice is well-meaning, please don't be so quick to judge until you a a parent yourself.
 

Jane

Digital opinion leader
Wow,

While I agree that many parents go overboard trying to keep their kids safe, I have to defend the reason. The parents on the forum are doing the best they know how for their children. All the kids here have different circumstances and must be raised differently. As we learn more about CF, we must update our style of parenting. Just think about the ways our clinics have changed the way they conduct business. When we first started going to clinic the kids all played together, all used the same equipment, shared hospital rooms etc.

Since my son was diagnosed (1991) so many new things have discovered about CF, and as a result we change our lifestyle to accomodate those new things. When my kids were little it didn't occur to me to worry about where they played. Then they were diagnosed with a mycobacteria that had never been seen <b>IN THE WORLD</b>. Scary? It wasn't until they became very, very sick that we found out how to treat them, and even then it was only a guess.

Fortunately, my children recovered. But if my doctor says- keep them away from aerosolized dirt and standing water- I WILL! I'm not going to keep them in a bubble, but I will teach them what is safe for them.

It is very difficult to imagine raising a child if you are not a parent. All you have as a basis for judgement is your own upbringing. The way you were raised may not be the best way to raise another child. While your advice is well-meaning, please don't be so quick to judge until you a a parent yourself.
 
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