Just 2day I discovered that one of the main exclusion criteria for spiriva ( a long acting bronchodilator used for copd) is cystic fibrosis patients. The bad news is that I 've been on spiriva since 4 months during which my health took a huge decline and I had 4 unsuccessful tune ups. It looks like I ve been another victim of another "bad decision" to say the least from my doc. Does anyone know the amount of damage spiriva can cause to cystic fibrosis patients or have any info related to cf about this damned medication?
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spiriva warning ( doc's mistake)
- Thread starter ihatecf
- Start date
JennifersHope
New member
HI,
I am not clear in what you are saying is wrong with Sprivia? I use that drug as well It was my understanding that it took the place of atrovent.
Why is it contraindicated in CFers and where did you get this information from? Was it from CFF? I have wondered about this drug because it is used to dry secretions and I am not sure that is the best thing for CFers to have their secretions dry, since it would be more difficult to bring stuff up then.
Jennifer
I am not clear in what you are saying is wrong with Sprivia? I use that drug as well It was my understanding that it took the place of atrovent.
Why is it contraindicated in CFers and where did you get this information from? Was it from CFF? I have wondered about this drug because it is used to dry secretions and I am not sure that is the best thing for CFers to have their secretions dry, since it would be more difficult to bring stuff up then.
Jennifer
Hi jennifer,
this is the link which i get my info from
http://www.clinicaltrials.gov/ct/show/NCT00144196
I dont know how much it is credited, but I always correlated my health decline with spiriva until I found this. Please do refer to your doc and reply me back because i'm kinda frustrated.
My email is: sixty_5roses2002@yahoo.com.
take care
this is the link which i get my info from
http://www.clinicaltrials.gov/ct/show/NCT00144196
I dont know how much it is credited, but I always correlated my health decline with spiriva until I found this. Please do refer to your doc and reply me back because i'm kinda frustrated.
My email is: sixty_5roses2002@yahoo.com.
take care
L
luke
Guest
The study was done to evaluate efficacy of spiriva in mild COPD and certain exclusion criteria were set. The way I read the excerpt is not that CF patients are prohibited from taking spiriva but were just excluded from those clinical trials. In their trials they didn't accept any really sick people; you can also see they excluded those that use oxygen therapy or FEV1 <60%. I don't think spiriva will "hurt" anyone I just think that it wasn't the focus on this study and they didn't want us skewing their results.
luke
luke
I don't where you get your info but its obviously incorrect. For once thing Spiriva is just the long acting version of another common med...Atrovent. I have used Spiriva for about 4 months and have never been better. Before that I used Atrovent 4x a day.
Obviously a drug targeted at COPD patients isn't going to include CF patients in the trial...that would skew the data way too much
<a target=new class=ftalternatingbarlinklarge href="http://www.webmd.com/hw/cystic_fibrosis/aa148450.asp
">http://www.webmd.com/hw/cystic_fibrosis/aa148450.asp
</a>Thats one link talking about using anti-choligergics in CF. All it states is its a relatively new treatment approach and that more data is needed to see if it works(spiriva and atrovent belong to this class of meds, Duoneb and Combivent also contain Atrovent)
I also found many links stating that Atrovent has found to be as effective if not more so than Albuterol in CF patients. Spiriva is closely related to Atrovent
Obviously a drug targeted at COPD patients isn't going to include CF patients in the trial...that would skew the data way too much
<a target=new class=ftalternatingbarlinklarge href="http://www.webmd.com/hw/cystic_fibrosis/aa148450.asp
">http://www.webmd.com/hw/cystic_fibrosis/aa148450.asp
</a>Thats one link talking about using anti-choligergics in CF. All it states is its a relatively new treatment approach and that more data is needed to see if it works(spiriva and atrovent belong to this class of meds, Duoneb and Combivent also contain Atrovent)
I also found many links stating that Atrovent has found to be as effective if not more so than Albuterol in CF patients. Spiriva is closely related to Atrovent