Spirometers

calebf

New member
I'm wondering if many people use spirometers at home and track numbers on a weekly or daily basis. I bought a Microlife spirometer back in 2010 when I was on home IVs and working my numbers back to baseline (88%) from 60% and have used it on and off since then.
Since this May I've been looking into how I can push my lungs to be the absolute best they can be. My work and schedule are very demanding and my health has been a limiting factor that I felt could be remedied with some data and well informed changes in regimen. I was maxing out meds so reducing those while maintaining or increasing energy and lung function were my goals. Exercise and supplements seemed like good approaches. I broke out the Microlife spirometer to measure progress.
So here I am 2 months later, my FEV1 numbers have gone from 3.88 L to 4.73 L (80% -> 97%, baseline typically 4.25 or 88%). I'm off Cipro, but still on Bactrim and Colistin/Tobi (depending on the month). I started a few supplements, particularly high dose NAC. Exercise has been increased but very inconsistent. I tested FEV1 fluctuations between treatments, before/after exercise, after coughing up something, different postures, the best method of breathing/blowing that got the highest numbers, making mental notes along the way. I now feel like I understand my disease a TON more as well as what exactly is being measured with FEV1. (I always understood the concept, but putting the numbers to how I feel and actual symptoms in real time proved invaluable) I feel the best I've felt in years and I think (as I had suspected before) that my baseline of 88% is based more on sick visits than when I am healthy. Additionally (and suprisingly at 97%) I am seeing that there's more progress to be made. I'm still feeling symptomatic deeper in my left lung, where all the trouble typically lies for me. For those spots I think I'm going to need different numbers (FEF25%-75%, FEV6, FVC) to detect and understand changes.
So my question is what, if any, spirometer do you use at home? Do you measure consistently? Have you made any interesting correlations? Are there any spirometers that are reasonably priced that measure numbers beyond FEV1? I'd really like to look at FEF25%-75% on a daily basis and run some tests. Having FVC or FEV6 would be very valuable as well. From what I've seen I'd have to drop at least $500 to get a device to read these numbers, which I may consider, but I'm wondering if there's a cheaper option that anyone else has seen or used.
 

LisaGreene

New member
I really like your post- excellent info. Thx for sharing. I am looking into this for my kids, both w cf. I am looking at a device calledSpiro pd. It's $219 and measures all of the lung function values incl FEF 25-75. Here's a link of the page that shows this: <a href="http://spiropd.com/benefits/">http://spiropd.com/benefits/</a>#
If you get it, will you post about it here? And, I'll do the same. Good luck!
 

JENNYC

New member
Lisa, thanks so much for the web address! I just purchased a Piko 1 meter a couple of months ago and it seems to be fine but isn't near the machine that the one your talking about is. I'm pretty sure I will be getting a new one. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I think both Abby and I will respond better with this one. The Piko 1 only shows the PEF and the FEV1 which is great but doesn't show the small airways. Also it doesn't graph it and keep track of it like this one does. I can buy another $100 platform for the one I have but have seen lots of negative reviews so I haven't bought it. And now I'm glad I didn't. Thanks so much!!
 

calebf

New member
Thanks for the link! I will definitely look into getting that machine. Looks like you may need a prescription. If I get it, I'll certainly share my findings!
 
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