Spousal Patterns?

Grendel

New member
For those of whom are married, do you find at times your spouse carries a sense of entitilement as a consequence of being with you. Perhaps CF is more difficult than he/she imagined and intentionally or otherwise manifiests a subtle resentment in tone, mood, or choices? Maybe even he/she seems a bit more shelfish than when you first dated or married.

CF is tough, and I am sure it is tough for those who support us. Though we all have limits, has CF tested the limits of your relationship?

Thanks,
Grendel
 
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65rosessamurai

Guest
Actually, my first wife seemed to reflect that description. Basically, she looked down on me for such complications I had, despite my "atypical" mild complications with CF. I think the main problem is that I thought I'd be one of the 2% of the CF males with fertility, yet when tested, was regrettably found not to be (because I could have tested before marriage and save all the heart ache), and the wife, needless to say further, was upset. After that, I did everything in my power to hold the marriage together, but to no avail. I found, after 10 years of marriage, she was selfish, and perhaps looking for "payback" by living a seperate life from me, managing ALL of my income, and leaving me with almost nothing at the end. (It took me 10 years to figure out something was wrong, but only the last year was when I figured it all out!)
Stated it once before, but will reiterate; the test of the relationship was done when I had a serious shoulder injury happen a few years ago. Instead of having proper medical care, she had me LIE on a house loan, because she wanted to have the "dream house" as a form of collateral. I didn't fight for it, so she got that with the divorce, too. (But, by her paying off the loan, my credit credability went up!)
On the contrary, my new wife seems understanding, worried sometimes, and unselfish in dealing with my health. Perhaps because she had seen the effects of bad health with her father, she is so understandable. She also owns a house, and after she inhereted the house from her dad, now owns two houses!

This (a spouse who has seen a family member with poor health) may be a key to how some spouses endure the challenges of a loved one who has CF.
 

Allie

New member
hm...I know I'm not a married Cfer, but the spouse of one, but I'll answer the question anyhow. I hope I never acted as if I had a sense of entitlement to Ry, because that certainly wasn't my intention EVER. I would however like to touch on the resentment part. I got very angry at the DISEASE sometimes. I hated what it did to our family, and yes, I got upset. I always made an effort to tell Ry I wasn't mad or upset at him. But I'm sure sometimes he felt like I resented him.

TO be fair, sometimes he would get frustrated or angry too and take it out on me. I know he wasn't angry with me, but sometimes it took a step back for me to see that. It's hard when you're caught up in the situation.

There is a myriad of things that go through your head when you're married to a CFer. Wanna know a big one for me? GUILT. For being healthy, for choosing to sometimes do things for me, for not forcing him to get a transplant, all the time, guilt. Even now.

Yes, Cf tested the limits of my relationship. Kicking back and watchign the love of your life die, with nothing you can do for them except tell them how much you love them, that puts strain on things. Maybe fear makes us act the in ways we shouldn't. I knew there were times I would pull away from Ry because of what I was afraid would come. No, what I knew would come.

I don't know, I'm not making any sense. But maybe it's not resentment. Maybe it's anger, maybe it's guilt, fear. People respond so differently. Just remember that we are very human too, with faults. Did I ever wish I had a normal, healthy husband? Yes. Kill me, call me horrible, but I did. But I loved Ry, and that got us through it all.

So maybe just talk...CF may test things, for BOTH of you...but you can live through it. Just love each other.
 

HollyCatheryn

New member
Allie, you are SO right - and eloquent!My husband has never been selfish about things with regard to CF. We have made lots of hard decisions together and in most of them CF was a factor (not usually the deciding factor, though). I work parttime, because we need me to and I am able, but anytime I start looking bad he really encourages me to take off and stay home to get well. When I have had to go in the hospital, he has always come up every night after work (even though I'm hospitalized out of town. He is really flexible with me, rarely asks more of me than I can give and if he does it is because I am not communicating well about what I am able to give. He isn't at all selfish. He's been working hard to finish his PhD so that he can have more options to take care of me and our family. Sometimes he'll make a face when I cough or something, but I have learned (through talking about it) that he isn't frustrated with me. He's frustrated that no matter what he does, he can't get rid of my CF. The cough just reminds him that no matter how well I am, I still have CF. It saddens him. I am the love of his life and the mother of his child, he doesn't want anything to happen to me and it saddens him when he is reminded that to a certain degree he has absolutely NO control over it. He has given so much to take care of me and has loved me through many tough times. We have loved and supported each other through lots and much of it has nothing to do with CF. Life is hard, families can be hard, attaining goals is hard and much of it painful. Lots of sacrifices are involved in achieving goals and dreams. We sacrifice for each other. I think I push myself a little harder because I want to be and do the best for him and it gets into a wonderful self-perpetuating cycle. He sees how much I give and it makes him want to give more and work harder and that encourages me to push and give and try and work...I think one thing that has made a BIG difference for us is our age difference. He is 39 (today, actually is his birthday) and I am 26. He was pretty settled and knew who he was when we met and married 6 years ago. He didn't need me to fulfill him or help him find himself. He already had an identity and a purpose. He had also already had time to do the selfish bachelor thing. By the time he married me, he was ready to give that up and be a husband and father. Maturity (not just age) has such a significant impact on how we respond to difficult circumstances. I couldn't have asked for anyone better than I have. I wrote and article about our relationship for the CF Roundtable (<A href="http://www.cfrountable.com">www.cfrountable.com</A> - focus topic CF and relationships) last year entitled "Only the Best."
 

anonymous

New member
I think it is possible that depending on who the caretaker is and what there gender is, determins some of the probable challenges. Ultimately it depends on the individual, though we each have a pattern of behavior and unique needs based on our gender.
 

supermanfan

New member
First I wanted to say one thing to 65rosessamurai.. my heart breaks for you over your story. I think it is a shame when fertility gets in the way of a relationship.

Having that said, my husband was only ever so attentative to me, and helpful when I was down. For a man who never really liked doctors or hospitals he was always willing to stay over night in the hospital with me. True that once I went for the transplant list my doctor said it would change things about having a child... my husband was very saddened by that, as I was. However he never gave up on me, and I can only summerize because he loved/loves me so much. Now that I'm nearly 9 years out from transplant and I have been healthy the whole timewith no complications, we have started consulting with doctors regarding pregnancy. With all the information we've been given we have decided we want to go a head with it. We will probably need to do invitro (sp), and I am 36 years old... so the age thing is a little scary too. I can only be greatful for the man I fell in love with. I have been told so many times I need to write a book about it, but I honestly wouldn't know where to start.

<img src="i/expressions/rose.gif" border="0">
 
I just have to give such amazing credit to my husband for the wonderful person that he is and all that he has been through. I have often times been worried that he would end up feeling some sort of resentment due to my illness. Especially since it was the cause of us uprooting our lives and making a certain career choice for him that he wouldn't have made on his own. However, that being said, I know that it was my own insecurities and that I need to put more trust in him because I do know the type of person that he is and he truly never ceases to amaze me!

Emilee
 
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