SSI and Medicaid

A

ashmomo

New member
Hi
We live in Michigan and we do not have SSI, but my kids have Children's Special Health Care Services (pays for all her expences that relate to CF) and will also be getting regular medicaid as soon as I get ahold of my case worker. What I pain!
Ah ha...she just called and said my kids should be on Medicaid, yet I am told by Medicaid they are not??? She says there must be a glitch in the system or something...she has to investigate after she returns Tuesday! Daughter needs her 4 month shots and her ped won't see her til this is straightened out. I really want to avoid going to the community health department...probably GERM infested! Anyways I just started rambling on...
You should definetely be able to keep health coverage if it is anything like Michigan.
Good luck!
 
A

ashmomo

New member
Hi
We live in Michigan and we do not have SSI, but my kids have Children's Special Health Care Services (pays for all her expences that relate to CF) and will also be getting regular medicaid as soon as I get ahold of my case worker. What I pain!
Ah ha...she just called and said my kids should be on Medicaid, yet I am told by Medicaid they are not??? She says there must be a glitch in the system or something...she has to investigate after she returns Tuesday! Daughter needs her 4 month shots and her ped won't see her til this is straightened out. I really want to avoid going to the community health department...probably GERM infested! Anyways I just started rambling on...
You should definetely be able to keep health coverage if it is anything like Michigan.
Good luck!
 
A

ashmomo

New member
Hi
We live in Michigan and we do not have SSI, but my kids have Children's Special Health Care Services (pays for all her expences that relate to CF) and will also be getting regular medicaid as soon as I get ahold of my case worker. What I pain!
Ah ha...she just called and said my kids should be on Medicaid, yet I am told by Medicaid they are not??? She says there must be a glitch in the system or something...she has to investigate after she returns Tuesday! Daughter needs her 4 month shots and her ped won't see her til this is straightened out. I really want to avoid going to the community health department...probably GERM infested! Anyways I just started rambling on...
You should definetely be able to keep health coverage if it is anything like Michigan.
Good luck!
 
A

ashmomo

New member
Hi
We live in Michigan and we do not have SSI, but my kids have Children's Special Health Care Services (pays for all her expences that relate to CF) and will also be getting regular medicaid as soon as I get ahold of my case worker. What I pain!
Ah ha...she just called and said my kids should be on Medicaid, yet I am told by Medicaid they are not??? She says there must be a glitch in the system or something...she has to investigate after she returns Tuesday! Daughter needs her 4 month shots and her ped won't see her til this is straightened out. I really want to avoid going to the community health department...probably GERM infested! Anyways I just started rambling on...
You should definetely be able to keep health coverage if it is anything like Michigan.
Good luck!
 
A

ashmomo

New member
Hi
<br />We live in Michigan and we do not have SSI, but my kids have Children's Special Health Care Services (pays for all her expences that relate to CF) and will also be getting regular medicaid as soon as I get ahold of my case worker. What I pain!
<br />Ah ha...she just called and said my kids should be on Medicaid, yet I am told by Medicaid they are not??? She says there must be a glitch in the system or something...she has to investigate after she returns Tuesday! Daughter needs her 4 month shots and her ped won't see her til this is straightened out. I really want to avoid going to the community health department...probably GERM infested! Anyways I just started rambling on...
<br />You should definetely be able to keep health coverage if it is anything like Michigan.
<br />Good luck!
 
H

hmw

New member
Emily is insured through a state program that is a division of Medicaid. We have never looked into SSI for her. In our state the application processes are completely different.

eta: I don't blame you for not wanting to bring the kids to the state office, however if your state is like mine you will have to when they are first signed up, to physically verify who they are (along with their birth certificates and all the reams of paperwork they will require from you.)

I can completely relate to those here who would be completely crushed by having to pay the steep deductibles & copays that our employer- sponsored policies don't cover. Prescription costs alone in our household would be staggering; Rx costs + monthly premiums on his policy alone cost would more than what we pay to keep our roof over our head. And then God forbid she get sick on his policy coverage alone... it would break us.
 
H

hmw

New member
Emily is insured through a state program that is a division of Medicaid. We have never looked into SSI for her. In our state the application processes are completely different.

eta: I don't blame you for not wanting to bring the kids to the state office, however if your state is like mine you will have to when they are first signed up, to physically verify who they are (along with their birth certificates and all the reams of paperwork they will require from you.)

I can completely relate to those here who would be completely crushed by having to pay the steep deductibles & copays that our employer- sponsored policies don't cover. Prescription costs alone in our household would be staggering; Rx costs + monthly premiums on his policy alone cost would more than what we pay to keep our roof over our head. And then God forbid she get sick on his policy coverage alone... it would break us.
 
H

hmw

New member
Emily is insured through a state program that is a division of Medicaid. We have never looked into SSI for her. In our state the application processes are completely different.

eta: I don't blame you for not wanting to bring the kids to the state office, however if your state is like mine you will have to when they are first signed up, to physically verify who they are (along with their birth certificates and all the reams of paperwork they will require from you.)

I can completely relate to those here who would be completely crushed by having to pay the steep deductibles & copays that our employer- sponsored policies don't cover. Prescription costs alone in our household would be staggering; Rx costs + monthly premiums on his policy alone cost would more than what we pay to keep our roof over our head. And then God forbid she get sick on his policy coverage alone... it would break us.
 
H

hmw

New member
Emily is insured through a state program that is a division of Medicaid. We have never looked into SSI for her. In our state the application processes are completely different.

eta: I don't blame you for not wanting to bring the kids to the state office, however if your state is like mine you will have to when they are first signed up, to physically verify who they are (along with their birth certificates and all the reams of paperwork they will require from you.)

I can completely relate to those here who would be completely crushed by having to pay the steep deductibles & copays that our employer- sponsored policies don't cover. Prescription costs alone in our household would be staggering; Rx costs + monthly premiums on his policy alone cost would more than what we pay to keep our roof over our head. And then God forbid she get sick on his policy coverage alone... it would break us.
 
H

hmw

New member
Emily is insured through a state program that is a division of Medicaid. We have never looked into SSI for her. In our state the application processes are completely different.
<br />
<br />eta: I don't blame you for not wanting to bring the kids to the state office, however if your state is like mine you will have to when they are first signed up, to physically verify who they are (along with their birth certificates and all the reams of paperwork they will require from you.)
<br />
<br />I can completely relate to those here who would be completely crushed by having to pay the steep deductibles & copays that our employer- sponsored policies don't cover. Prescription costs alone in our household would be staggering; Rx costs + monthly premiums on his policy alone cost would more than what we pay to keep our roof over our head. And then God forbid she get sick on his policy coverage alone... it would break us.
 
C

camperscove

New member
A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started digging a little deeper into options. They also arrange for respite care, in-home nursing care for when he needs I.V.'s but we don't want him to be hospitalized, and they coordinate all of his Medicaid/TEFRA paperwork. So now i only have to do battle with our primary insurance<img src="i/expressions/face-icon-small-smile.gif" border="0"> I would start by contacting your pediatrician's office and ask them for agencies that they are aware of. Also, do a google search for your areas Infant Learning Program, they would be a great resource for kid friendly care coordinators. And lastly, search for your areas independant-living or developmental disability office, they would also be able to point you in the right direction.
I hope this helps! We personally have been blesses to have someone "on our side"!
 
C

camperscove

New member
A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started digging a little deeper into options. They also arrange for respite care, in-home nursing care for when he needs I.V.'s but we don't want him to be hospitalized, and they coordinate all of his Medicaid/TEFRA paperwork. So now i only have to do battle with our primary insurance<img src="i/expressions/face-icon-small-smile.gif" border="0"> I would start by contacting your pediatrician's office and ask them for agencies that they are aware of. Also, do a google search for your areas Infant Learning Program, they would be a great resource for kid friendly care coordinators. And lastly, search for your areas independant-living or developmental disability office, they would also be able to point you in the right direction.
I hope this helps! We personally have been blesses to have someone "on our side"!
 
C

camperscove

New member
A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started digging a little deeper into options. They also arrange for respite care, in-home nursing care for when he needs I.V.'s but we don't want him to be hospitalized, and they coordinate all of his Medicaid/TEFRA paperwork. So now i only have to do battle with our primary insurance<img src="i/expressions/face-icon-small-smile.gif" border="0"> I would start by contacting your pediatrician's office and ask them for agencies that they are aware of. Also, do a google search for your areas Infant Learning Program, they would be a great resource for kid friendly care coordinators. And lastly, search for your areas independant-living or developmental disability office, they would also be able to point you in the right direction.
I hope this helps! We personally have been blesses to have someone "on our side"!
 
C

camperscove

New member
A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started digging a little deeper into options. They also arrange for respite care, in-home nursing care for when he needs I.V.'s but we don't want him to be hospitalized, and they coordinate all of his Medicaid/TEFRA paperwork. So now i only have to do battle with our primary insurance<img src="i/expressions/face-icon-small-smile.gif" border="0"> I would start by contacting your pediatrician's office and ask them for agencies that they are aware of. Also, do a google search for your areas Infant Learning Program, they would be a great resource for kid friendly care coordinators. And lastly, search for your areas independant-living or developmental disability office, they would also be able to point you in the right direction.
I hope this helps! We personally have been blesses to have someone "on our side"!
 
C

camperscove

New member
A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started digging a little deeper into options. They also arrange for respite care, in-home nursing care for when he needs I.V.'s but we don't want him to be hospitalized, and they coordinate all of his Medicaid/TEFRA paperwork. So now i only have to do battle with our primary insurance<img src="i/expressions/face-icon-small-smile.gif" border="0"> I would start by contacting your pediatrician's office and ask them for agencies that they are aware of. Also, do a google search for your areas Infant Learning Program, they would be a great resource for kid friendly care coordinators. And lastly, search for your areas independant-living or developmental disability office, they would also be able to point you in the right direction.
<br />I hope this helps! We personally have been blesses to have someone "on our side"!
 
R

ReneeP

New member
I have two daughters with CF and can totally relate to the extreme out of pocket expenses even when you have good health insurance. I struggled for years to keep up and just about two years ago found out about Medicaid Waiver Programs. I live in Texas so our program will be a little different than yours but every state has the programs. I am posting a link to the West Virginia site for you to look at. Basically Medicaid Waiver Programs will provide Medicaid to people with disabilities who do not qualify for SSI because of income. The difference between this and regular Medicaid is that the parent's income and assets do not count. So bascially my husband and I can make as much money as we want and that has no effect on the girl's Medicaid (not that we make a ton of money by any means...but you know what I mean). It has been an absolute life saver for my family. Check it out and see what you can find. The one downfall is that there are usually waiting lists. But the sooner you get on the list, the sooner you'll be on the program. Good luck!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.wvdhhr.org/bcf/family_assistance/medicaid.asp">LINK</a>
 
R

ReneeP

New member
I have two daughters with CF and can totally relate to the extreme out of pocket expenses even when you have good health insurance. I struggled for years to keep up and just about two years ago found out about Medicaid Waiver Programs. I live in Texas so our program will be a little different than yours but every state has the programs. I am posting a link to the West Virginia site for you to look at. Basically Medicaid Waiver Programs will provide Medicaid to people with disabilities who do not qualify for SSI because of income. The difference between this and regular Medicaid is that the parent's income and assets do not count. So bascially my husband and I can make as much money as we want and that has no effect on the girl's Medicaid (not that we make a ton of money by any means...but you know what I mean). It has been an absolute life saver for my family. Check it out and see what you can find. The one downfall is that there are usually waiting lists. But the sooner you get on the list, the sooner you'll be on the program. Good luck!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.wvdhhr.org/bcf/family_assistance/medicaid.asp">LINK</a>
 
R

ReneeP

New member
I have two daughters with CF and can totally relate to the extreme out of pocket expenses even when you have good health insurance. I struggled for years to keep up and just about two years ago found out about Medicaid Waiver Programs. I live in Texas so our program will be a little different than yours but every state has the programs. I am posting a link to the West Virginia site for you to look at. Basically Medicaid Waiver Programs will provide Medicaid to people with disabilities who do not qualify for SSI because of income. The difference between this and regular Medicaid is that the parent's income and assets do not count. So bascially my husband and I can make as much money as we want and that has no effect on the girl's Medicaid (not that we make a ton of money by any means...but you know what I mean). It has been an absolute life saver for my family. Check it out and see what you can find. The one downfall is that there are usually waiting lists. But the sooner you get on the list, the sooner you'll be on the program. Good luck!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.wvdhhr.org/bcf/family_assistance/medicaid.asp">LINK</a>
 
R

ReneeP

New member
I have two daughters with CF and can totally relate to the extreme out of pocket expenses even when you have good health insurance. I struggled for years to keep up and just about two years ago found out about Medicaid Waiver Programs. I live in Texas so our program will be a little different than yours but every state has the programs. I am posting a link to the West Virginia site for you to look at. Basically Medicaid Waiver Programs will provide Medicaid to people with disabilities who do not qualify for SSI because of income. The difference between this and regular Medicaid is that the parent's income and assets do not count. So bascially my husband and I can make as much money as we want and that has no effect on the girl's Medicaid (not that we make a ton of money by any means...but you know what I mean). It has been an absolute life saver for my family. Check it out and see what you can find. The one downfall is that there are usually waiting lists. But the sooner you get on the list, the sooner you'll be on the program. Good luck!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.wvdhhr.org/bcf/family_assistance/medicaid.asp">LINK</a>
 
R

ReneeP

New member
I have two daughters with CF and can totally relate to the extreme out of pocket expenses even when you have good health insurance. I struggled for years to keep up and just about two years ago found out about Medicaid Waiver Programs. I live in Texas so our program will be a little different than yours but every state has the programs. I am posting a link to the West Virginia site for you to look at. Basically Medicaid Waiver Programs will provide Medicaid to people with disabilities who do not qualify for SSI because of income. The difference between this and regular Medicaid is that the parent's income and assets do not count. So bascially my husband and I can make as much money as we want and that has no effect on the girl's Medicaid (not that we make a ton of money by any means...but you know what I mean). It has been an absolute life saver for my family. Check it out and see what you can find. The one downfall is that there are usually waiting lists. But the sooner you get on the list, the sooner you'll be on the program. Good luck!
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.wvdhhr.org/bcf/family_assistance/medicaid.asp">LINK</a>
 
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