Stanford

[onlyoneloveinmylife]

Has anyone had any experience with the tranplant team at Stanford?

It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

 

[onlyoneloveinmylife]

Has anyone had any experience with the tranplant team at Stanford?

It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

 

[onlyoneloveinmylife]

Has anyone had any experience with the tranplant team at Stanford?

It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

 

[onlyoneloveinmylife]

Has anyone had any experience with the tranplant team at Stanford?

It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

 

[onlyoneloveinmylife]

Has anyone had any experience with the tranplant team at Stanford?

It's getting close to time for a tx and my insurance will only pay for it if I have it done at Stanford.

 

[Liza]

Yes! My daughter Anna had a double lung at Stanford in July 2007. We have had great experiences with them. There was the occassional upset but that was on the ward and it only happened twice, once was with the charge nurse about the fourth day post tx. the other was 5 weeks post tx, with radiology when Anna was in hospital for a potential blockage.

Anna did her own research and after discovering that her first choice was out of region for our insurance and to eliminate the hassle of flipping back and forth every time she needed to go for an appt. or having to pay the difference for being out of region, she decided on her second choice, Stanford. After waiting longer than the average wait, just short of 6 months. They'd told us that they hadn't had to do a 6 month re-work in a loooonnnngggg time. The avg. wait time when Anna was listed, Feb.2007 was 4 months.

We had to relocate immediately in order for her to be listed. Anna was followed by the adult CF team at Lucille Packard while we waited. They too were wonderful. We are certain that there was a reason for us to be there. She has received wonderful care. The docs have all been wonderful. There isn't a resident or doc on the tx team that we don't like. The hospital as a whole is great too. The chaplain, the Eucharistic Ministers (if you are Catholic), most every nurse we've encountered (there are quite a few Philipino nurses and some have thick accents but for the most part I nor Anna had a difficult time understanding them).

We have complete trust in them. They have worked well with Anna's CF docs back in NE. I don't know if you are close to Stanford or if you will be traveling from a distance.

They are, it seems, the only tx hospital that requires their lung tx patients to wear a specific type of mask post tx. It's a magenta P100 respirator. Looks like the gas masks the military wears. Anna hated this mask and had some difficulty with it and was greatful to be rid of it. Most people don't have the problem Anna did though.

We have no doubt in our mind that she chose the right place.

 

[Liza]

Yes! My daughter Anna had a double lung at Stanford in July 2007. We have had great experiences with them. There was the occassional upset but that was on the ward and it only happened twice, once was with the charge nurse about the fourth day post tx. the other was 5 weeks post tx, with radiology when Anna was in hospital for a potential blockage.

Anna did her own research and after discovering that her first choice was out of region for our insurance and to eliminate the hassle of flipping back and forth every time she needed to go for an appt. or having to pay the difference for being out of region, she decided on her second choice, Stanford. After waiting longer than the average wait, just short of 6 months. They'd told us that they hadn't had to do a 6 month re-work in a loooonnnngggg time. The avg. wait time when Anna was listed, Feb.2007 was 4 months.

We had to relocate immediately in order for her to be listed. Anna was followed by the adult CF team at Lucille Packard while we waited. They too were wonderful. We are certain that there was a reason for us to be there. She has received wonderful care. The docs have all been wonderful. There isn't a resident or doc on the tx team that we don't like. The hospital as a whole is great too. The chaplain, the Eucharistic Ministers (if you are Catholic), most every nurse we've encountered (there are quite a few Philipino nurses and some have thick accents but for the most part I nor Anna had a difficult time understanding them).

We have complete trust in them. They have worked well with Anna's CF docs back in NE. I don't know if you are close to Stanford or if you will be traveling from a distance.

They are, it seems, the only tx hospital that requires their lung tx patients to wear a specific type of mask post tx. It's a magenta P100 respirator. Looks like the gas masks the military wears. Anna hated this mask and had some difficulty with it and was greatful to be rid of it. Most people don't have the problem Anna did though.

We have no doubt in our mind that she chose the right place.

 

[Liza]

Yes! My daughter Anna had a double lung at Stanford in July 2007. We have had great experiences with them. There was the occassional upset but that was on the ward and it only happened twice, once was with the charge nurse about the fourth day post tx. the other was 5 weeks post tx, with radiology when Anna was in hospital for a potential blockage.

Anna did her own research and after discovering that her first choice was out of region for our insurance and to eliminate the hassle of flipping back and forth every time she needed to go for an appt. or having to pay the difference for being out of region, she decided on her second choice, Stanford. After waiting longer than the average wait, just short of 6 months. They'd told us that they hadn't had to do a 6 month re-work in a loooonnnngggg time. The avg. wait time when Anna was listed, Feb.2007 was 4 months.

We had to relocate immediately in order for her to be listed. Anna was followed by the adult CF team at Lucille Packard while we waited. They too were wonderful. We are certain that there was a reason for us to be there. She has received wonderful care. The docs have all been wonderful. There isn't a resident or doc on the tx team that we don't like. The hospital as a whole is great too. The chaplain, the Eucharistic Ministers (if you are Catholic), most every nurse we've encountered (there are quite a few Philipino nurses and some have thick accents but for the most part I nor Anna had a difficult time understanding them).

We have complete trust in them. They have worked well with Anna's CF docs back in NE. I don't know if you are close to Stanford or if you will be traveling from a distance.

They are, it seems, the only tx hospital that requires their lung tx patients to wear a specific type of mask post tx. It's a magenta P100 respirator. Looks like the gas masks the military wears. Anna hated this mask and had some difficulty with it and was greatful to be rid of it. Most people don't have the problem Anna did though.

We have no doubt in our mind that she chose the right place.

 

[Liza]

Yes! My daughter Anna had a double lung at Stanford in July 2007. We have had great experiences with them. There was the occassional upset but that was on the ward and it only happened twice, once was with the charge nurse about the fourth day post tx. the other was 5 weeks post tx, with radiology when Anna was in hospital for a potential blockage.

Anna did her own research and after discovering that her first choice was out of region for our insurance and to eliminate the hassle of flipping back and forth every time she needed to go for an appt. or having to pay the difference for being out of region, she decided on her second choice, Stanford. After waiting longer than the average wait, just short of 6 months. They'd told us that they hadn't had to do a 6 month re-work in a loooonnnngggg time. The avg. wait time when Anna was listed, Feb.2007 was 4 months.

We had to relocate immediately in order for her to be listed. Anna was followed by the adult CF team at Lucille Packard while we waited. They too were wonderful. We are certain that there was a reason for us to be there. She has received wonderful care. The docs have all been wonderful. There isn't a resident or doc on the tx team that we don't like. The hospital as a whole is great too. The chaplain, the Eucharistic Ministers (if you are Catholic), most every nurse we've encountered (there are quite a few Philipino nurses and some have thick accents but for the most part I nor Anna had a difficult time understanding them).

We have complete trust in them. They have worked well with Anna's CF docs back in NE. I don't know if you are close to Stanford or if you will be traveling from a distance.

They are, it seems, the only tx hospital that requires their lung tx patients to wear a specific type of mask post tx. It's a magenta P100 respirator. Looks like the gas masks the military wears. Anna hated this mask and had some difficulty with it and was greatful to be rid of it. Most people don't have the problem Anna did though.

We have no doubt in our mind that she chose the right place.

 

[Liza]

Yes! My daughter Anna had a double lung at Stanford in July 2007. We have had great experiences with them. There was the occassional upset but that was on the ward and it only happened twice, once was with the charge nurse about the fourth day post tx. the other was 5 weeks post tx, with radiology when Anna was in hospital for a potential blockage.
<br />
<br />Anna did her own research and after discovering that her first choice was out of region for our insurance and to eliminate the hassle of flipping back and forth every time she needed to go for an appt. or having to pay the difference for being out of region, she decided on her second choice, Stanford. After waiting longer than the average wait, just short of 6 months. They'd told us that they hadn't had to do a 6 month re-work in a loooonnnngggg time. The avg. wait time when Anna was listed, Feb.2007 was 4 months.
<br />
<br /> We had to relocate immediately in order for her to be listed. Anna was followed by the adult CF team at Lucille Packard while we waited. They too were wonderful. We are certain that there was a reason for us to be there. She has received wonderful care. The docs have all been wonderful. There isn't a resident or doc on the tx team that we don't like. The hospital as a whole is great too. The chaplain, the Eucharistic Ministers (if you are Catholic), most every nurse we've encountered (there are quite a few Philipino nurses and some have thick accents but for the most part I nor Anna had a difficult time understanding them).
<br />
<br />We have complete trust in them. They have worked well with Anna's CF docs back in NE. I don't know if you are close to Stanford or if you will be traveling from a distance.
<br />
<br />They are, it seems, the only tx hospital that requires their lung tx patients to wear a specific type of mask post tx. It's a magenta P100 respirator. Looks like the gas masks the military wears. Anna hated this mask and had some difficulty with it and was greatful to be rid of it. Most people don't have the problem Anna did though.
<br />
<br />We have no doubt in our mind that she chose the right place.

 

[onlyoneloveinmylife]

Thank you for the info.

I'm going to the Dr. on tuesday to see if it's time for me to go on the list, and my head is filled with nothing but questions and I haven't the faintest idea where to start.

What kind of things can I expect to look forward to? Or what are some important questions that I may not even have a clue to think about?

Thanks in advance.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[onlyoneloveinmylife]

Thank you for the info.

I'm going to the Dr. on tuesday to see if it's time for me to go on the list, and my head is filled with nothing but questions and I haven't the faintest idea where to start.

What kind of things can I expect to look forward to? Or what are some important questions that I may not even have a clue to think about?

Thanks in advance.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[onlyoneloveinmylife]

Thank you for the info.

I'm going to the Dr. on tuesday to see if it's time for me to go on the list, and my head is filled with nothing but questions and I haven't the faintest idea where to start.

What kind of things can I expect to look forward to? Or what are some important questions that I may not even have a clue to think about?

Thanks in advance.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[onlyoneloveinmylife]

Thank you for the info.

I'm going to the Dr. on tuesday to see if it's time for me to go on the list, and my head is filled with nothing but questions and I haven't the faintest idea where to start.

What kind of things can I expect to look forward to? Or what are some important questions that I may not even have a clue to think about?

Thanks in advance.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[onlyoneloveinmylife]

Thank you for the info.

I'm going to the Dr. on tuesday to see if it's time for me to go on the list, and my head is filled with nothing but questions and I haven't the faintest idea where to start.

What kind of things can I expect to look forward to? Or what are some important questions that I may not even have a clue to think about?

Thanks in advance.<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[CountryGirl]

Hi, Im Anna, thats my mom up there. Im the one who got the tx. Anyways, im not really sure about the questions I asked. I didnt really have many, I did alot of asking other people and went to the lung trans support groups meeting and people told me their stories and they answered questions I didnt think of and honestly cant remember.

The only thing I was really conserned about was seeing my old lungs afterwards and I did. It was so awesome! They said it wasnt an odd question, that lots of transplant patients wish to see their old organs, they said its a way for the to say goodbye. That was honestly my fave part! I know, im weird, but I got to touch them and everything!

Anyways, questions you might ask are whos gonna perform the surgery, if youll meet them before; I didnt meet my surgeon till after. You could ask about the stats for stanfords program, the wait, the success.

I was more than ecstatic that I chose Stanford, I moved from Ne to wait to go there wrather than go to St Louis or Minnesota where I could have lived at home and flew out when I got the call. The doctors are great, the nurses on the step down unit and on the ground floor, where I went for hospitalizations, not during trans, were amazing. Jodie on the step down unit really pushed me to move around afterwards. I only had one bad incident with a charge nurse the whole time I was there, sadly it was right after trans but I told my drs and they were livid and talked to the nurse. My surgical residents were great and always willing to listen to me tell my lame jokes. They had great bedside manor!
I waited about 6 months when I got the call and I had no dry runs. Although it can happen and you have to know it could happen.

If you have any other questions Id be happy to answer them, I wish I could have been more help!

Goodluck!

 

[CountryGirl]

Hi, Im Anna, thats my mom up there. Im the one who got the tx. Anyways, im not really sure about the questions I asked. I didnt really have many, I did alot of asking other people and went to the lung trans support groups meeting and people told me their stories and they answered questions I didnt think of and honestly cant remember.

The only thing I was really conserned about was seeing my old lungs afterwards and I did. It was so awesome! They said it wasnt an odd question, that lots of transplant patients wish to see their old organs, they said its a way for the to say goodbye. That was honestly my fave part! I know, im weird, but I got to touch them and everything!

Anyways, questions you might ask are whos gonna perform the surgery, if youll meet them before; I didnt meet my surgeon till after. You could ask about the stats for stanfords program, the wait, the success.

I was more than ecstatic that I chose Stanford, I moved from Ne to wait to go there wrather than go to St Louis or Minnesota where I could have lived at home and flew out when I got the call. The doctors are great, the nurses on the step down unit and on the ground floor, where I went for hospitalizations, not during trans, were amazing. Jodie on the step down unit really pushed me to move around afterwards. I only had one bad incident with a charge nurse the whole time I was there, sadly it was right after trans but I told my drs and they were livid and talked to the nurse. My surgical residents were great and always willing to listen to me tell my lame jokes. They had great bedside manor!
I waited about 6 months when I got the call and I had no dry runs. Although it can happen and you have to know it could happen.

If you have any other questions Id be happy to answer them, I wish I could have been more help!

Goodluck!

 

[CountryGirl]

Hi, Im Anna, thats my mom up there. Im the one who got the tx. Anyways, im not really sure about the questions I asked. I didnt really have many, I did alot of asking other people and went to the lung trans support groups meeting and people told me their stories and they answered questions I didnt think of and honestly cant remember.

The only thing I was really conserned about was seeing my old lungs afterwards and I did. It was so awesome! They said it wasnt an odd question, that lots of transplant patients wish to see their old organs, they said its a way for the to say goodbye. That was honestly my fave part! I know, im weird, but I got to touch them and everything!

Anyways, questions you might ask are whos gonna perform the surgery, if youll meet them before; I didnt meet my surgeon till after. You could ask about the stats for stanfords program, the wait, the success.

I was more than ecstatic that I chose Stanford, I moved from Ne to wait to go there wrather than go to St Louis or Minnesota where I could have lived at home and flew out when I got the call. The doctors are great, the nurses on the step down unit and on the ground floor, where I went for hospitalizations, not during trans, were amazing. Jodie on the step down unit really pushed me to move around afterwards. I only had one bad incident with a charge nurse the whole time I was there, sadly it was right after trans but I told my drs and they were livid and talked to the nurse. My surgical residents were great and always willing to listen to me tell my lame jokes. They had great bedside manor!
I waited about 6 months when I got the call and I had no dry runs. Although it can happen and you have to know it could happen.

If you have any other questions Id be happy to answer them, I wish I could have been more help!

Goodluck!

 

[CountryGirl]

Hi, Im Anna, thats my mom up there. Im the one who got the tx. Anyways, im not really sure about the questions I asked. I didnt really have many, I did alot of asking other people and went to the lung trans support groups meeting and people told me their stories and they answered questions I didnt think of and honestly cant remember.

The only thing I was really conserned about was seeing my old lungs afterwards and I did. It was so awesome! They said it wasnt an odd question, that lots of transplant patients wish to see their old organs, they said its a way for the to say goodbye. That was honestly my fave part! I know, im weird, but I got to touch them and everything!

Anyways, questions you might ask are whos gonna perform the surgery, if youll meet them before; I didnt meet my surgeon till after. You could ask about the stats for stanfords program, the wait, the success.

I was more than ecstatic that I chose Stanford, I moved from Ne to wait to go there wrather than go to St Louis or Minnesota where I could have lived at home and flew out when I got the call. The doctors are great, the nurses on the step down unit and on the ground floor, where I went for hospitalizations, not during trans, were amazing. Jodie on the step down unit really pushed me to move around afterwards. I only had one bad incident with a charge nurse the whole time I was there, sadly it was right after trans but I told my drs and they were livid and talked to the nurse. My surgical residents were great and always willing to listen to me tell my lame jokes. They had great bedside manor!
I waited about 6 months when I got the call and I had no dry runs. Although it can happen and you have to know it could happen.

If you have any other questions Id be happy to answer them, I wish I could have been more help!

Goodluck!

 

[CountryGirl]

Hi, Im Anna, thats my mom up there. Im the one who got the tx. Anyways, im not really sure about the questions I asked. I didnt really have many, I did alot of asking other people and went to the lung trans support groups meeting and people told me their stories and they answered questions I didnt think of and honestly cant remember.
<br />
<br />The only thing I was really conserned about was seeing my old lungs afterwards and I did. It was so awesome! They said it wasnt an odd question, that lots of transplant patients wish to see their old organs, they said its a way for the to say goodbye. That was honestly my fave part! I know, im weird, but I got to touch them and everything!
<br />
<br />Anyways, questions you might ask are whos gonna perform the surgery, if youll meet them before; I didnt meet my surgeon till after. You could ask about the stats for stanfords program, the wait, the success.
<br />
<br />I was more than ecstatic that I chose Stanford, I moved from Ne to wait to go there wrather than go to St Louis or Minnesota where I could have lived at home and flew out when I got the call. The doctors are great, the nurses on the step down unit and on the ground floor, where I went for hospitalizations, not during trans, were amazing. Jodie on the step down unit really pushed me to move around afterwards. I only had one bad incident with a charge nurse the whole time I was there, sadly it was right after trans but I told my drs and they were livid and talked to the nurse. My surgical residents were great and always willing to listen to me tell my lame jokes. They had great bedside manor!
<br />I waited about 6 months when I got the call and I had no dry runs. Although it can happen and you have to know it could happen.
<br />
<br />If you have any other questions Id be happy to answer them, I wish I could have been more help!
<br />
<br />Goodluck!