Staph Infection???

mmarshal

New member
I am very new to the CF community. My son Easton was born on 9/13/10 and was diagnosed on 10/21/10. I must admit I am not adjusting to the diagnosis very well. I cry just about every night. I am assuming it gets better with time. He is taking the Creon enzymes and we are doing the chest PT's once a day. I have become a complete clean freak, as my husband would say. I follow my other kids around the house with lysol and make sure that they wash their hands constantly. I must say I feel a little bad for them. My doctor called Monday and informed me that Easton's staph level was a 3+ so she perscribed an antibiotic. I am not sure how serious staph bacteria is. I would greatly appreciate any input. I don't know if this was something I could have prevented or not.
 

mmarshal

New member
I am very new to the CF community. My son Easton was born on 9/13/10 and was diagnosed on 10/21/10. I must admit I am not adjusting to the diagnosis very well. I cry just about every night. I am assuming it gets better with time. He is taking the Creon enzymes and we are doing the chest PT's once a day. I have become a complete clean freak, as my husband would say. I follow my other kids around the house with lysol and make sure that they wash their hands constantly. I must say I feel a little bad for them. My doctor called Monday and informed me that Easton's staph level was a 3+ so she perscribed an antibiotic. I am not sure how serious staph bacteria is. I would greatly appreciate any input. I don't know if this was something I could have prevented or not.
 

mmarshal

New member
I am very new to the CF community. My son Easton was born on 9/13/10 and was diagnosed on 10/21/10. I must admit I am not adjusting to the diagnosis very well. I cry just about every night. I am assuming it gets better with time. He is taking the Creon enzymes and we are doing the chest PT's once a day. I have become a complete clean freak, as my husband would say. I follow my other kids around the house with lysol and make sure that they wash their hands constantly. I must say I feel a little bad for them. My doctor called Monday and informed me that Easton's staph level was a 3+ so she perscribed an antibiotic. I am not sure how serious staph bacteria is. I would greatly appreciate any input. I don't know if this was something I could have prevented or not.
 

hmw

New member
Welcome to the site~ I am so glad you found us here, although I wish you didn't have to.

Congratulations on the birth of your son. <img src="i/expressions/rose.gif" border="0"> All of us here can relate to the stress and grief surrounding the time of dx... I'm so sorry for what you've been going through. Yes, it will get better with time. You will slowly come to terms with a new version of 'normal', integrate CF into your life and it will feel less overwhelming more of the time. You will gradually see more and more of the <i>child</i> that is your son and CF as just a <i>part</i> of who he is and you'll even find more ways to balance the CF part of life with how you care for your other children. But it takes time, so try to be gentle with yourself as you work through the process.

It's very important for you to realize that there is nothing you could have done to prevent him from culturing the staph. It is literally everywhere in the environment, and CF lungs are just so receptive to being colonized with bacteria that it's nearly impossible to prevent this from happening. Staph is probably the most common bug for children w/cf to be colonized with. In many cases, it is only treated when the child is showing signs of illness or when levels reach a certain high point (as seen currently with your child) and can be safely ignored the rest of the time.

I hope the antibiotic works well for your little one and he continues to grow and gain well on the Creon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

hmw

New member
Welcome to the site~ I am so glad you found us here, although I wish you didn't have to.

Congratulations on the birth of your son. <img src="i/expressions/rose.gif" border="0"> All of us here can relate to the stress and grief surrounding the time of dx... I'm so sorry for what you've been going through. Yes, it will get better with time. You will slowly come to terms with a new version of 'normal', integrate CF into your life and it will feel less overwhelming more of the time. You will gradually see more and more of the <i>child</i> that is your son and CF as just a <i>part</i> of who he is and you'll even find more ways to balance the CF part of life with how you care for your other children. But it takes time, so try to be gentle with yourself as you work through the process.

It's very important for you to realize that there is nothing you could have done to prevent him from culturing the staph. It is literally everywhere in the environment, and CF lungs are just so receptive to being colonized with bacteria that it's nearly impossible to prevent this from happening. Staph is probably the most common bug for children w/cf to be colonized with. In many cases, it is only treated when the child is showing signs of illness or when levels reach a certain high point (as seen currently with your child) and can be safely ignored the rest of the time.

I hope the antibiotic works well for your little one and he continues to grow and gain well on the Creon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

hmw

New member
Welcome to the site~ I am so glad you found us here, although I wish you didn't have to.
<br />
<br />Congratulations on the birth of your son. <img src="i/expressions/rose.gif" border="0"> All of us here can relate to the stress and grief surrounding the time of dx... I'm so sorry for what you've been going through. Yes, it will get better with time. You will slowly come to terms with a new version of 'normal', integrate CF into your life and it will feel less overwhelming more of the time. You will gradually see more and more of the <i>child</i> that is your son and CF as just a <i>part</i> of who he is and you'll even find more ways to balance the CF part of life with how you care for your other children. But it takes time, so try to be gentle with yourself as you work through the process.
<br />
<br />It's very important for you to realize that there is nothing you could have done to prevent him from culturing the staph. It is literally everywhere in the environment, and CF lungs are just so receptive to being colonized with bacteria that it's nearly impossible to prevent this from happening. Staph is probably the most common bug for children w/cf to be colonized with. In many cases, it is only treated when the child is showing signs of illness or when levels reach a certain high point (as seen currently with your child) and can be safely ignored the rest of the time.
<br />
<br />I hope the antibiotic works well for your little one and he continues to grow and gain well on the Creon. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

mmarshal

New member
Thank you very much for responding. I really appreciate it. I do not know anyone else that has a child with CF so I am glad I can get answers to some of my questions. It has been very helpful to see some of the other posts so I know what to ask Easton's doctors.
 

mmarshal

New member
Thank you very much for responding. I really appreciate it. I do not know anyone else that has a child with CF so I am glad I can get answers to some of my questions. It has been very helpful to see some of the other posts so I know what to ask Easton's doctors.
 

mmarshal

New member
Thank you very much for responding. I really appreciate it. I do not know anyone else that has a child with CF so I am glad I can get answers to some of my questions. It has been very helpful to see some of the other posts so I know what to ask Easton's doctors.
 

hmw

New member
Come join us on the 'Families' forum... more of the parents with little ones will see you there that don't think to check this forum and can be of help to you there with any other questions you have... and just to give you the support you need right now too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

hmw

New member
Come join us on the 'Families' forum... more of the parents with little ones will see you there that don't think to check this forum and can be of help to you there with any other questions you have... and just to give you the support you need right now too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

hmw

New member
Come join us on the 'Families' forum... more of the parents with little ones will see you there that don't think to check this forum and can be of help to you there with any other questions you have... and just to give you the support you need right now too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

imagine04

New member
Welcome to the site, Melissa. I wish you didn't have to join us here either but know that there are tons of helpful parents and cf'ers here on the boards.

Congrats on the birth of your son! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son was born on 10/26/10 and diagnosed on 11/15/10 @ 3wks old. So i can completely relate with having a completely new diagnoses on a new baby. Unfortunately I can't relate to the staph infection but have been preparing myself for those types of issues. As if getting the news that our little ones have this awful disease isn't bad enough we've always got to deal with more wether it be fights with our Clinic Team, Insurance, etc. We're never given a break to just "relax" it seems.

Feel free to add me on facebook if you do have a page there and if you need to vent know that you are more then welcome to do so. While we may be complete strangers we are going through the same roller coaster of emotions and can relate to one another because of our childrens diagnoses.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/home.php?#!/profile.php?id=1244685523">http://www.facebook.com/home.p...file.php?id=1244685523</a>
 

imagine04

New member
Welcome to the site, Melissa. I wish you didn't have to join us here either but know that there are tons of helpful parents and cf'ers here on the boards.

Congrats on the birth of your son! <img src="i/expressions/face-icon-small-smile.gif" border="0">

My son was born on 10/26/10 and diagnosed on 11/15/10 @ 3wks old. So i can completely relate with having a completely new diagnoses on a new baby. Unfortunately I can't relate to the staph infection but have been preparing myself for those types of issues. As if getting the news that our little ones have this awful disease isn't bad enough we've always got to deal with more wether it be fights with our Clinic Team, Insurance, etc. We're never given a break to just "relax" it seems.

Feel free to add me on facebook if you do have a page there and if you need to vent know that you are more then welcome to do so. While we may be complete strangers we are going through the same roller coaster of emotions and can relate to one another because of our childrens diagnoses.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/home.php?#!/profile.php?id=1244685523">http://www.facebook.com/home.p...file.php?id=1244685523</a>
 

imagine04

New member
Welcome to the site, Melissa. I wish you didn't have to join us here either but know that there are tons of helpful parents and cf'ers here on the boards.
<br />
<br />Congrats on the birth of your son! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />My son was born on 10/26/10 and diagnosed on 11/15/10 @ 3wks old. So i can completely relate with having a completely new diagnoses on a new baby. Unfortunately I can't relate to the staph infection but have been preparing myself for those types of issues. As if getting the news that our little ones have this awful disease isn't bad enough we've always got to deal with more wether it be fights with our Clinic Team, Insurance, etc. We're never given a break to just "relax" it seems.
<br />
<br />Feel free to add me on facebook if you do have a page there and if you need to vent know that you are more then welcome to do so. While we may be complete strangers we are going through the same roller coaster of emotions and can relate to one another because of our childrens diagnoses.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.facebook.com/home.php?#!/profile.php?id=1244685523">http://www.facebook.com/home.p...file.php?id=1244685523</a>
 
Top