Starting cereal and switching CF doctors

anonymous

New member
Hi again! No, Sydney isn't on Ursodiol but you will find over time that many of the CF meds can be hard to find. Some pharmacies will special order them and then there is always the CF Services Pharmacy (https://www.cfservicespharmacy.com/Home/). We get enzymes from them and if she needs any other CF specialty meds (TOBI, Pulmozyme, etc) in the future, that is where we will get them bc they have been good to deal with, although I have heard stories from others who have had mix-ups with them...I think they have new management or something now.

Kelli
 

anonymous

New member
Hi again! No, Sydney isn't on Ursodiol but you will find over time that many of the CF meds can be hard to find. Some pharmacies will special order them and then there is always the CF Services Pharmacy (https://www.cfservicespharmacy.com/Home/). We get enzymes from them and if she needs any other CF specialty meds (TOBI, Pulmozyme, etc) in the future, that is where we will get them bc they have been good to deal with, although I have heard stories from others who have had mix-ups with them...I think they have new management or something now.

Kelli
 

anonymous

New member
DS is on actigall/urisidol. Has been since he was released from the hospital at 4 weeks after his bowel obstruction surgery. Never had a problem getting it. He gets a months supply big bottle -- liquid form at our local pharmacy. When it was first prescribed they pharmacist laughed and said he had to get out some text books to remember how to mix it up. Once he's older there's a pill form, but right now most of his medications are liquid. Liza
 

anonymous

New member
DS is on actigall/urisidol. Has been since he was released from the hospital at 4 weeks after his bowel obstruction surgery. Never had a problem getting it. He gets a months supply big bottle -- liquid form at our local pharmacy. When it was first prescribed they pharmacist laughed and said he had to get out some text books to remember how to mix it up. Once he's older there's a pill form, but right now most of his medications are liquid. Liza
 
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